Hi...it's good you have a diagnosis, albeit one that's not common. I did a little reading, and it does state that one should be on a high fibre diet...I'm assuming specific as to not cause you discomfot, but to help keep the proper peristalsis and cleaning of the colon as to prevent diverticula from getting involved.
Seems 5ASA meds are a good thing, so you're already in that category of treatment.
Have you done much research on it?
What do you eat on a daily basis? Maybe some of us could help with that...
*Heather* Status..Asacol (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!