Scope results - submucosal nodule

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Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 3/18/2009 9:58 AM (GMT -6)   
My colonoscopy is over a month ago, but I thought I share my results anyway since something was odd and bizarre:
 
My colonoscopy was on Feb 13 and you could already tell from the pictures that my doc gave me, that I still had patches of mild and moderate inflammation. The odd thing was - and seeing it really freaked me out! - that I had a lump in my colon that looked like as if someone pushed a table tennis ball under the skin of a chicken (sorry, for a lack of better description) and it was close to the terminal illeum. It looked huge on the picture. My doc said that she thought it was a "submucosal nodule", but to be sure it is nothing serious, she took biopsies.
 
Well, the biopsies also confirmed that I had still mild to moderate inflammation (although I do not have any colitis symptoms anymore which of course is a big plus) and that that lump indeed was a submucosal nodule or in other terms: A swollen lymph node in the lining of the colon. I didn't know you had lymph nodes right there! Of course I am relieved that it wasn't anything malicious ... it really looked scary.
 
I will have another colonoscopy in one year or two - depending on how well I fare on 6MP in the long run and whether I will flare or not. This was my 15th colonoscopy in my UC "career". I used to say that I rather have a colonoscopy than a teeth cleaning at the dentist and I am sticking to it! tongue
 
Anyone ever had a "submucosal nodule"? Just wondering, because my doc behaved as if she doesn't get to see these things very often. The lump was not discolored or had a different texture than the other tissue, but boy - it could have been a scene from a horror movie ... or at least what I thought back then while being heavily sedated ... .
Scarlett, 38 yo., TX
Pancolitis since 3/1997
Meds
6 x Asacol a day
75 50 mg 6-MP
Align (probiotic)
Flintstones Complete Vitamins


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/18/2009 10:01 AM (GMT -6)   

Probably why I NEVER want to see what it looks like in there!  I will leave that to my doctor and let him tell me what is going on!

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008  Cannot tolerate mesalamines, Canasa, etc. Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred.
Started on prednisone Feb.7, 2009 - tapering to 20 mg. for two more weeks and then down to 15 mg.etc.  Added 6-MP Feb. 28.
Added Anusol suppositories - March 16 - see doc in 3 months. 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 3/18/2009 10:04 AM (GMT -6)   

Elaine,

NOT knowing and NOT seeing what is going on in there makes me nervous. I really NEED to see what's going on and not merely putting my trust into what my doc tells me - I had bad experiences with GIs before, maybe that is the reason why. One the other hand I cannot watch when I get my blood drawn, but when it comes to colonoscopies, I want to see it all - the naked truth! smilewinkgrin


Scarlett, 38 yo., TX
Pancolitis since 3/1997
Meds
6 x Asacol a day
75 50 mg 6-MP
Align (probiotic)
Flintstones Complete Vitamins


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/18/2009 10:07 AM (GMT -6)   

I would have no problem looking at YOURS!  LOL

Blood does not bother me - but that in the toilet is the worst!  I hate that part of UC the most.  Glad you are doing well on 6MP. Do you ever have any symptoms of UC now - mucous, blood, any other?

Good luck!  I have only had 3 colonocopies and 3 sigmoids in my 68 years so guess I am lucky but I don't mind them - since I am sleeping!

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008  Cannot tolerate mesalamines, Canasa, etc. Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred.
Started on prednisone Feb.7, 2009 - tapering to 20 mg. for two more weeks and then down to 15 mg.etc.  Added 6-MP Feb. 28.
Added Anusol suppositories - March 16 - see doc in 3 months. 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 3/18/2009 10:17 AM (GMT -6)   
Elaine,

I do not have any UC symptoms at all. I have one to two BMs in the morning with no urgency or whatsoever. No pain, no blood, no mucus, no tummy noises or cramps ... feels like heaven. So from the results of the scope I am not in remission since I still have inflammation, but personally I am in remission, because I don't have any symptoms. And who gives a hoot what the biopsies said when you feel awesome? The stuff with the 6MP is just a rocky road as you might have gathered from my other posts. I hope that 6MP will work for you too - are you expected to go 75 mg? I hope you will be okay. 75 mg was too much for me and I have quite a small frame. That might have come into play as well. I agree that the toilet blood is the worst.
Scarlett, 38 yo., TX
Pancolitis since 3/1997
Meds
6 x Asacol a day
75 50 mg 6-MP
Align (probiotic)
Flintstones Complete Vitamins


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/18/2009 10:19 AM (GMT -6)   
Glad to hear it wasn't serious...that sounds scary! I am with you on seeing the pictures, though. I'm curious about that kind of stuff! But, I'd rather have my teeth cleaned than have a colonoscopy! I hated the prep for it, but I've never had a cavity or anything, and I like the way my teeth feel after the dentist!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/18/2009 10:21 AM (GMT -6)   

Yes, doctor mentioned 75 and even 100 mg.  I reminded him that I have a 100 body under this 230 lb. body.  I am very sensitive to medications and will try the 75 but looking for more problems.  BUT - still having mucous streaked with blood first BM morning - only having a couple and otherwise fine.  Feeling little discomfort left side and started the suppositories last night - maybe that will help heal up the rectal area - hope so.

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008  Cannot tolerate mesalamines, Canasa, etc. Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred.
Started on prednisone Feb.7, 2009 - tapering to 20 mg. for two more weeks and then down to 15 mg.etc.  Added 6-MP Feb. 28.
Added Anusol suppositories - March 16 - see doc in 3 months. 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 

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