Thank you so much. I'm not doing well emotionally today and needed to hear something positive. When your son had the low counts how often at the time were they monitoring his blood. My heart goes out to all of you that you and they have to deal with UC (not fun and especially when you are young) bless you for your good wishes and hugs really can use them today
It was back in 2003 so my memory is fuzzy, but he hadn't been on it too long - maybe two-three weeks. He was also on prednisone at that time which also can play a part in the lowered white counts. He was doing better UC wise so the doctor just had him quit the 6mp altogether. I believe when they first start the immunosuppressors they test weekly and if all looks good, every two weeks, then four and now they are up to tests every 12 weeks. We'll never go longer than that though as it is always wise to monitor regularly on these drugs.
I just have to remind my self that these drugs have been around for quite sometime and the IBD patients take a much lower dosage than organ transplant patients that also take this drug. I also know of some really young ones that take this drug and do very well on it.
A good thing to remember also, is that if by chance you have a bit of trouble with white counts or liver issues - a tweak in dosage usually does the trick and if you have to come off of it, the white counts and liver usually recover very quickly. And like I said, my son never felt bad, we just became aware of the issues because of the blood work!!
Post everyday for the first few days if you would like and we will hold your hand through this time - you can also email me if you would like - my email can be found by clicking on the envelope icon below my member name over on the left. I so understand what you are going through!!! ((((big hugs))))!!!
Here is a neat article about
the lady that invented 6mp and Imuran. It was approved in 1953, she eventually won the Nobel Peace prize for this!! Really great story that kind of helps you to "know thy enemy": http://www.nap.edu/html/biomems/gelion.html
Mom of Son 17 UC dx 07/02, Sulfasalazine 6g, Azasan 75mg, Cortafoam (when flaring), folic acid, L. Reuteri, Culturelle, Zyrtec, Iron, Vit/Min
Daughter 10 UC dx 08/07 Colazal 750mg x 3, 6MP 12.5mg, Iron, Vit/Min., Culturelle