I have had UC for over 5 years now. It used to be completely controlable with Immodium. I went on long trips no problem as long as I remembered my Immodium.
I went into remission last summer, and came out of remission in early fall, and things have changed drastically. Immodium just delays the inevitable for a few hours, and now I am passing liquid bloody gas. I canm't make it 3 feet to the bathroom when a bout of this gas comes on, so I have to wear protection in my undies.
No this is the weird part. I never have D anymore. I have formed or hard little turds, but with lots of blood. The urgency is still terrible thoigh, and I won't even dare go to the mall for fear the next bathroom will be too farI am now almost completely housebound.
I notice all of you seem to know where your US is located, and many things I have no clue about. My doc has never talked to me about these things. The only thing he ever said was initially..."you have a bit of UC". He gave me suppositories and enemas and told me that would take care of it, and it did.
He never told me it would/could get worse. He never told me anything about where it was located/
The next colonoscopy he told me I had a few "precancerous polyps" that he removed.
Again not a word about location of the Uc ect.
I finally found this board, and that's when I realized that the posters here knew so much more about this disease than I did.
I am presently on 3 Asacol 3 times a day, and have many boxes of enemas, which I can no longer hold in. I tried warming them. I tried using half at a time, and every other suggestion I read here, but it just comes right out(very urgently). I used to have no problem using them. I also have Canasa, but they aren't helping either. My doc tor is a Pred believer, and tried to put me on it soon as my meds quit working, before trying any other thing, but I refused. He wasn't happy with me, and you know what? If I do have to go on Pred one day, so be it, but not before I try every other thing first. I already have questionable teeth, arthritis, and insomnia, and am 30 pounds over weight(as you can see my UC has not lost me any weight).
So to make a long story longer, can you help me with some questions for my doc to ask him when I go for my colonoscopy on March 31st?
How do I know I haven't got CD?
I can't understand why all your docs gave you so much info about your disease and mine didn't. I found out more here and on google than he ever told me.
Thank you for your patience.