Alternative Treatments

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indiemelody
New Member


Date Joined Mar 2009
Total Posts : 2
   Posted 3/19/2009 12:16 PM (GMT -6)   
Hello All!

I was diagnosed earlier this month with IBD (the doctor was non-specific about what kind and I will no more next week when I have a follow-up appointment).

When I took the prescription for Lialda to the pharmacy I found out that it was going to cost about half of my month's salary up front to get the medicine, so I walked away and determined to find out about alternative solutions to the problem.

I have been chronicling my experiences since my diagnosis for both me and for anyone else who is going through the same thing. I would like to share this blog with everyone in hopes that I can share my insights with you and that you can do the same for me. I would greatly appreciate your support and feedback as I learn more about this condition and the treatments available to me.

My blog is located at: http://poorpersonmedicine.blogspot.com

Thanks!
Melody :)

Post Edited (indiemelody) : 3/19/2009 11:25:51 AM (GMT-6)


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/19/2009 12:36 PM (GMT -6)   
Lialda is probably the most expensive 5ASA...Asacol is much less expensive. Also, the drug companies have patient assitance programs for those who do not have insurance and cannot afford their prescriptions. Sicklygirl (I think) gets her drugs for free, and I'm sure she'd be glad to give you some info.

I think that alternative treatments can work, but what I've learned most about this disease so far is that what treatments work for one person, whether they be conventional or alternative, don't work for others. So it really is a process of trial and error. I tend to put more faith in conventional treatments, simply because those medicines have been very well studied, and I myself am a research scientist.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


Sweetpea17
Regular Member


Date Joined Jan 2009
Total Posts : 73
   Posted 3/19/2009 12:47 PM (GMT -6)   
Im in the program for the Asacol. I get a year worth of asacol. If i had to pay for it I dont know what I would do. All you have to do is call this number for Procter and Gamble and get an application mailed to you. Than you fill out your part and than take it to your GI and have them fill out the rest. After you mail it in you just have to wait to see if your accepted. Than they send you like 6 bottles of pills at a time.

The number is 1-800-830-9049. Best of luck to you. I hope it works out because I know how much it has for me.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/19/2009 4:15 PM (GMT -6)   
BUMPED for patient spiders and others that posted on duplicate thread in Crohns Forum

LYN
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
              CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            Keep The Fight Going..Or YOu Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
                                     LYN


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 3/19/2009 6:59 PM (GMT -6)   
Asacol, Colazal, Lialda are harmful to the kidneys. I still plan to live at least another 20 years; so I'm using Probiotics and diet to stay in remission instead of Colitis maintenance medicines.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: pro-inflammatory foods, HFCS, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

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