So I get this letter today from these people, Benefit Risk Management, a division of Johnson & Johnson Pharmaceutical Research & Development. The letter goes on to say "Thank you for alert
ing us to your "experience" while on Remicade. We are obligated to follow adverse events, blah, blah, blah, & have enclosed a medical record release form so that we may obtain your records from your physicians." What ?!?!! #1- what "experience" are they talking about
? Yes, I wound up in Intensive Care for a week after an infusion.....2 years ago! And #2- none of my doctors, or myself, have attributed that solely to the Remicade. And #3- how did they get my name & address????? Apparently, Centocor is owned by Johnson & Johnson. And of course, there is no 800# on the letter so I can call & say "What the hell???". I'm leery of signing the release form- what would you guys do? And how do you think they got my info? Or even know about
my hospitalization, if that's what they are referring to? A little creepy, no? Very Big Brother-esque.
diagnosed with UC '02
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07