New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 3/19/2009 7:32 PM (GMT -6)   
Get on it; 400IU a day...

Diagnosis Oct 07 and then Aug 08: Inditerminate Patchy Colitis. Also suffer from Peptic Ulcers could be related to Asacol. Current Medication: 500mg Asacol Suppositories, 800mg Asacol Tablets x 2 a day.


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 3/19/2009 10:44 PM (GMT -6)   
I saw an alternative doc and he did a blood test  for my vit D levels.  I was deficient, and he upped me to 5000 IU/day.  This happened at the same time as some other med changes, but I've been feeling better...

 
36 y.o. male
Diagnosed w/ UC in May '06, had symptoms since '99
Meds & supplements: LDN 3.0mg, Florastor, Lialda, Allegra, multi-vitamin, buproprion, fluoxetine, vit E, D, zinc, and pancreatic enzymes.


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/20/2009 8:22 AM (GMT -6)   
I do 5000 IU D3 every 2 days in winter months. Not so much in summer since I am a vit D producing machine!!
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 3/20/2009 10:14 AM (GMT -6)   
Vitamin D is receiving alot of attention in the treatment of IBD and other diseases. Those of us living in cold, northern climates and/or working inside all day don't receive enough sunshine on our skin to produce the vitamin D we need and many are unknowingly deficient.

Anyone who wants to learn more can check out these articles:

http://www.drhoffman.com/page.cfm/169
(Scroll about halfway down the page to "Part II, The vitamin D connection"

http://articles.mercola.com/sites/articles/archive/2008/12/27/important-vitamin-d-update.aspx


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


Geeve
Regular Member


Date Joined Oct 2005
Total Posts : 54
   Posted 3/21/2009 9:44 PM (GMT -6)   
Which kind of Vitamin D, or does it matter? I take D3 for joint health (because it is "dry", not oil-based in a gel cap, which bothers me). I didn't know Vitamin D could help UC.
Geeve
 
dx 2001 in transverse & descending colon
Asacol only, then tapered off; managing now with diet
 
Enjoying life's blessings (my hubby/best friend; my cats)
Learning new things (poker, knitting, what's next?!!)


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 3/27/2009 7:50 AM (GMT -6)   
I take 2000 IU a day - it doesn't seem to help my guts, though. Should I take more?
23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.
  • Psyllium powder   
  • Cortenema


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 3/27/2009 9:27 AM (GMT -6)   
From what I've read, D3 is the form to take.

Mitzo, I'd have your D levels tested before you go any higher.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 3/27/2009 9:36 AM (GMT -6)   
It's probably a good idea to take vitD even if you think it doesn't help. I believe some steroids and Immune drugs can drain vitD from your system. They say vitD plays a key role in controlling your immune system.

quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 3/28/2009 2:00 AM (GMT -6)   
some packaging doesn't state vitamin D3.
But the product ingredient will help.....it's called cholecalciferol.
Don't by the D2 which is called ergocalciferol.

q


*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 3/28/2009 7:08 AM (GMT -6)   
Lots of testing going on in England with Vitamin D3 and a cure for IBD. They are linking the lack of sunlight with immune responses. I started taking 400IU, I might up it to 800 (taking 2 tablets).

Diagnosis Oct 07 and then Aug 08: Inditerminate Patchy Colitis. Also suffer from Peptic Ulcers could be related to Asacol. Current Medication: 500mg Asacol Suppositories, 800mg Asacol Tablets x 2 a day.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 3/28/2009 8:49 PM (GMT -6)   
LondonRed, have you seen all the info on Dr. Mercola's site about vitamin D?

http://www.mercola.com/article/vitamin-d-resources.htm


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 3/29/2009 4:44 PM (GMT -6)   
Thats princesa. I visits St Marks Hospital and there were ads everywhere asking people to participate in a Vitamin D experient for IBD. St Marks is the leading IBD hospital in Europe. I think there is something in it.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patchy Colitis. Also suffer from Peptic Ulcers could be related to Asacol. Current Medication: 500mg Asacol Suppositories, 800mg Asacol Tablets x 2 a day.


Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 3/29/2009 5:28 PM (GMT -6)   
Are the Vitamin D in a multi vitamin suffcient to be taking?  I think the one I take is Mens Health and it has 400IU.
Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Asacol - 2 x 3 day (waiting for results)
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Mens Multi Vitamin - 1 a day
Metamucil Wafers - Once a day
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
Diagnosed with PSC: 3/9 --now taking Urso


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 3/29/2009 6:30 PM (GMT -6)   
I've been taking about 1000 to 2000 vit D a day for about a month, don't know if it is helping or not taking so many things, but it is cheap enough vitamin. My sister who has RA, her doctor told her to take 10,000 vit D for it because her blood test came back very low on Vit D, my sister also had/has UC. So very well could be a connection.

Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/29/2009 8:15 PM (GMT -6)   
Can check your levels at grassrootshealth.net. Fairly cheap at $30. I'll be curious to figure mine out.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 3/30/2009 8:14 AM (GMT -6)   
What's a normal vitamin D level? Mine's 22 and my PCP wants me to take 50000 IU per week for 8 weeks!

Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (7 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3 DS, Turmeric
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/30/2009 9:59 AM (GMT -6)   
Alot of info on that website including levels, charts, percentage of people tested in certain levels etc.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 25, 2018 12:16 PM (GMT -6)
There are a total of 3,006,469 posts in 329,343 threads.
View Active Threads


Who's Online
This forum has 161835 registered members. Please welcome our newest member, scattycatty.
330 Guest(s), 7 Registered Member(s) are currently online.  Details
acarined, Anitas, Admin, BillyBob@388, Alxander, straydog, iPoop