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nucid
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 3/19/2009 10:56 PM (GMT -6)   
Does anyone else get dizzy with UC? One of my worst symptoms was dizziness. I'm feeling much better now and down to light headedness about half of the time. It's manageable, but so annoying!
Female 33 Married
diagnosed January 2009
mild pancolitis
Sulfasalazine 500mg 3X

"The Lord is my Shepherd"


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 3/20/2009 5:39 AM (GMT -6)   
I don't get dizziness, but I was light-headed at times, and found out that I had become severely anemic. An overnight stay in hospital with blood transfusions helped get things back in order.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine, 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Mesacol/Asacol enema at least once a week
Spinach & sunflower seed diet


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 3/20/2009 6:34 AM (GMT -6)   

Yes...!! And its reaaaaally annoying, I'm wondering if mine is a result of the Prednisolone I am on, however I have suffered with dizzy/lightheaded spells before and find if I do too much then I get very headachey then it comes on. It just seems to have been alot worse since I've been in hospital and on Pred.

What have you done to manage it? 


22 year old female, from the UK.
 
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for IV Hydrocortisone - had no effect!
Hospitalised Feb '09 for a week of IV Hydrocortisone.
  
Currently taking daily: 
30mg Prednisolone tablets (tapering)
5mg Prednisolone suppositories x 2
1g Mesalazine suppositories x 2 (soon to change to Acetarsol)
1g Mesalazine granules x 4
Fybogel supplement
Vitamin tablet
 
                             
                             


nucid
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 3/20/2009 1:33 PM (GMT -6)   
I haven't done anything to manage it. When I was really dizzy I was very, very ill. As my UC has gotten more under control my dizziness has improved. I'm down to light headed sometimes. It's very annoying because I don't feel like I can trust my body during outings. I'm wondering if its a symptom of general bad health or if its from vitamin deficiency. I'm also wondering if its a sign that my immune system is "doing its thing." Sometimes when light headed I have more pain, but sometimes not. For a year before I was diagnosed I was light headed every time I was fighting a cold. Can it be a sign that your body is generally overtaxed? Can anyone shed some light?
Female 33 Married
diagnosed January 2009
mild pancolitis
Sulfasalazine 500mg 3X

"The Lord is my Shepherd"


nucid
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 3/20/2009 1:40 PM (GMT -6)   
qwerty, I am really glad I am not the only one feeling dizzy. It's really unsettling to feel unstable.

Rio in Maryland, I know that if I am anemic it is only slightly. I have been slightly anemic since adolescence. I think I will try some iron anyway just because I just had my monthly cycle. I have not had anemia cause dizziness before. I haven't been severely anemic and I haven't had bleeding in months.
Female 33 Married
diagnosed January 2009
mild pancolitis
Sulfasalazine 500mg 3X

"The Lord is my Shepherd"


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/20/2009 1:51 PM (GMT -6)   
This is usually a sign of dehydration, you best be careful with that, start drinking more fluids (preferably more water and some pedialyte) and if that doesn't change anything then you should see your doc.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/20/2009 2:04 PM (GMT -6)   
I've been experiencing marked dizziness, really for the first time. I think I might fall over sometimes!

I wasn't sure if it was from re-starting Asacol (my Rx ran out and I was without for about a week), or prednisone (but only 20 mg). I asked my doc, and she said although Asacol lists dizziness among the effects, the studies show little difference from the placebo (she had neat links to every kind of study on her computer). So, don't think it's that.

I'll try drinking more water, that's easy and makes some sense. I notice it most when I'm in stores, and that's also when you can easily get dehydrated. And I had a lot of watery D the past few weeks.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, down to 10 mg. Waiting for insurance decison on Humira... 


fargman
Regular Member


Date Joined Dec 2008
Total Posts : 74
   Posted 3/20/2009 2:22 PM (GMT -6)   
I get dizzy spells a few times a day where I think I might pass out. Never do though, and it only last about 10-20 seconds. I drink tons of water though and am very hydrated.

I'm not sure which medication to attribute it to, but I know it's not the Asacol since I've been on the same dose for years and have only recently started having this. My guess it that it's the Prednisone for me.
Diagnosed '93. 
 
Asacol, Prednisone, Remicade, Imuran
 


geminisunset
Regular Member


Date Joined Sep 2008
Total Posts : 153
   Posted 3/20/2009 2:33 PM (GMT -6)   
The only time I was light-headed and/or dizzy was when I was very dehydrated. I didn't realize how dehydrated I was until when I was in the hospital they had to give me a spearate IV back of patassium. My heart rate was high too because of the dehydration. If you are having a lot of D, I was recommend Pedialite (sp?) - I drank the grape one, and added ice. I could only drink it extremely cold otherwise I didn't like the taste. Now that I'm hydrated, I don't have any light-headed or dizzy spells.
GeminiSunset
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Medications: Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda (2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg, increased in March to 7.5mg/kg (started Aug 2008 - 6 infusions so far, next infusion on 4/30 continuing every 8 weeks); Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate)
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (currently taking one daily, will increase to two soon)
Current Status: Reached remission for a few weeks in October 2008, but symptoms returned after I allowed myself to enjoy wine again.... gave up wine and have not been in full remission again yet. 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 3/20/2009 3:08 PM (GMT -6)   
I've experienced lightheadedness, dizziness, fainting spells, and blackouts almost my whole life--most likely due to low blood pressure. It runs in the family. I don't think much of it. I guess I'm used to it.

I often get lightheaded when I'm sick. My blood pressure goes down. And then there have been times in which I've fainted or blacked out because I didn't get enough air. Now I make sure I have the windows slightly open when I'm driving on a hot and sunny day. (Yep. I passed out for a few seconds when driving once, because I didn't get enough air. Luckily, no one was in the next lane.)

Being anemic and dehydrated increases my feelings of lightheadedness. I always drink lots of water when I exercise, and I make sure not to get up too quickly.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


nucid
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 3/20/2009 7:29 PM (GMT -6)   
I haven't had any D in a couple months. I thought maybe it was dehydration originally because I had D in addition to a very bad UTI. But now I haven't had D in very long time. I will drink more water anyway. My UTI came back. Yea, I get to see a new specialist now!
My worst dizziness was before I was on any meds, it has gotten better or worse with the UC. I wonder if it is part of the UC.
Female 33 Married
diagnosed January 2009
mild pancolitis
Sulfasalazine 500mg 3X

"The Lord is my Shepherd"


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/20/2009 7:42 PM (GMT -6)   
It would really only be part of the UC from being dehydrated as all IBDers are prone to dehydration...otherwise it's not really considered a typical symptoms like D or bleeding unless you're dehydrated of course.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 3/21/2009 10:42 AM (GMT -6)   
I get dizzy, too. I'm not dehydrated or anemic. I don't know if it's the UC or the meds.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops; Ortho Tri-Cyclen

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