I can't do this

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MustLoveDogs
Regular Member


Date Joined Jan 2009
Total Posts : 394
   Posted 3/19/2009 10:25 PM (GMT -6)   
Having to administer Cortifoam to a child has to be one of the worst tortures for a parent.  I've done it twice and there is NO way I can do this again.  I am so angry right now...angry for this disease, angry that she can't be a "normal" kid and angry that there aren't better medications available for those with UC and Crohn's.  I know it is going to make her feel better but I just can't put her through it again and listen to her scream and cry.  She would rather go back on Pred and I have to agree with her. confused
Gwen
 
10 yr old daughter diagnosed with "UC-like Crohn's" 12/08
currently on 2400 mg Asacol 


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 3/19/2009 10:56 PM (GMT -6)   

Having to watch your child be sick is heartbreaking. I can only imagine having to explain to your 10 year old why this is so important. My daughter was 15-1/2 when she was diagnosed. She used Rowasa enemas and hydrocortisone enemas. She couldn't bring herself to do them alone. So I administered them. The first several times literally took about 45 minutes. She cried, she turned, she said no (even though she knew it was the thing that would help her). I would get her to calm down and relax (as much as possible) and just when I would be close to insertion, she would tense up and say wait. Over time she got better at it. I can't say she ever liked it. In the beginning, after the medicine was in, I would sit with her and help her breathe through the feeling. I told her it was a great precursor to Lamaze childbirth breathing!

The enemas are usually very good because they get to the disease directly. My daughter was on prednisone several times but the side effects and risks so outway the positiveness. I would try to continue with the cortifoam if you can. Hopefully she will become a bit more accepting.


--Mom of bratcat (17 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


PinkPaperclip
Regular Member


Date Joined Mar 2009
Total Posts : 108
   Posted 3/20/2009 3:23 AM (GMT -6)   
So enemas hurt.. That I didn't know! She didn't feel better a couple of hours afterwards? Maybe the good effects of the medication will encourage her to continue? I don't know anything about enemas but now I know they hurt! Mustlovedogs and Bennie, I am so sorry that your children have been diagnosed with UC so young... It must be very hard for a kid to accept this condition. Mustlovedogs, I am sending you lots of virtual positive energy ;) and wish you both find a way to make the treatment bearable :S
Diagnosed with pancolitis 19/03/09
Prednisone 40 mg, Mezavant 4.6g
 


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 3/20/2009 3:48 AM (GMT -6)   
From what I have experienced, enemas should not hurt if done the right way; and when I used cortifoam I actually found the foam to be cooling. You should try using KY jelly as I find that the enema tip goes in much much smoother with KY (especially compared to vaseline). Put a lot of KY on and around the tip.

It should not hurt when you insert the enema, or even when you expel the foam.

When the foam is expelled you feel a momentary surge of pressure, which is slightly uncomfortable, but I still do not remember feeling any pain with that.

Yes, going on oral prednisone is a lot easier, but the short-term and long-term side-effects are worse, and if your daughter can somehow handle taking cortifoam then I would try using it again. The first few times doing an enema can be awkward and embarassing, especially for your child since you're helping her with it, but very soon you get the hang of it, and once she feels the benefit she probably won't mind doing it.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine, 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Mesacol/Asacol enema at least once a week
Spinach & sunflower seed diet

Post Edited (Rio in Maryland) : 3/20/2009 4:01:40 AM (GMT-6)


Southernbelle
Regular Member


Date Joined Feb 2009
Total Posts : 33
   Posted 3/20/2009 5:46 AM (GMT -6)   
I don't know , not having a child, but I suspect for a 10 year old especialy it's not so much physical pain as just not wanting your mom to have to stick something up your butt!! And i'm sure as with Bratcat, who is at least old enough to understand, it's still hard to relax. For those of use who are used to using them try to imagine inserting it all tensed up. Poor thing. I feel for her and for you Mom. I wish you both better days.
58/F/Hairdresser
Dx leftsided UC July 08.Can't handle any masalamine or 6-MP
Been on steroids twice. Do well on those.
Suppliments: Aloe MPS, probiotics, enzymes, C and E, Curcumin,CoQ10,Grapeseed extract, Selenium, Cal.-Mag w/D, Multi., Vit.E enemas, Three-lac
Meds: mild blood pressure. Prilosec, Wellbutrin, steroid suppositories
 
 


Ouchie2
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 3/20/2009 5:58 AM (GMT -6)   
omg this thread breaks my heart....I hate them too but I cant imagine what your poor children are going through
38 year old female
UC - Diagnosed 2006
HLA-B27 Gene
Iritis 2008
4 x Asacol
100mg Mercaptopurine (6MP)
Doxycycline


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 3/20/2009 6:50 AM (GMT -6)   
This is very trying but I have to agree that if done correctly there shouldn't be any pain. Are you sure her crying isn't about the invasiveness of it? You really really really do not want to keep a 10 year old on prednisone. It can have life long side effects that are irreversible. Surgery would be a better option than more prednisone.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/20/2009 7:05 AM (GMT -6)   
The tips on those things CAN hurt going in, depending on the brand used. Just FYI for the few who said they shouldn't hurt. It's not the enema hurting though its the applicator insertion and coming out. They have actually made me bleed before. I have also had to go through 2 or 3 tips to find one smooth enough to use before. You can put all the KY/A&D you want on them and that doesn't help. Just something to be aware of. The hydrocortisone enemas are the worse, rowasa a little better, just bigger tips so sometimes thats a problem. Never used cortifoam so not familiar with those, but I'm a pro on the others. I don't know how I'd do it with a child like that....
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 3/20/2009 7:08 AM (GMT -6)   
what's worse, having her to suffer a little temporary discomfort from the enema or having her to possibly suffer a lifetime of health problems from the prednison? It would be an easy choice for me if it was my daughter, no way would I put her on prednison if I could avoid it.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/20/2009 8:38 AM (GMT -6)   
I'm not sure how your daughter was when she was little and had to take liquid antibiotics but my son absolutely HATED it. I would literally have to pin him down and make him take the liquid. It broke my heart tremendously because he was crying his eyes out. But I KNEW that it would make him better. The same can be said about the enema/foam/suppositories. I know that it is rough to have to administer medication to your children especially if they don't want it. But as a mother, you have to but keep it in the back of your mind that this is for the greater good. Long term pred is not good especially for children because they are still growing. Prednisone over time can stunt growth and cause bone loss. It may be the easy way out now but in the long run........?

It truly breaks my heart to know of any child that has to endure this horrible condition! It's bad enough to handle it as an adult.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


geminisunset
Regular Member


Date Joined Sep 2008
Total Posts : 153
   Posted 3/20/2009 8:38 AM (GMT -6)   
I feel so bad for you and your daughter. :( I was on Rowasa enemas briefly but they didn't do anything for me (I was in a really bad flare that only Remicade was able to control). But the experience of doing the enemas was not pleasant. The instructions gave a few different "poses", but only one worked for me. And even then I had to use a lubricant and go very very slowly throughout the whole process. I wonder if it would help to have "tea time" with her first and have her drink some soothing herbal tea blends (I like Bigelow's Sweet Dreams tea). It might help her relax initially. Then use a LOT of lubricant.

Good luck to the both of you. This DD requires a lot of patience as the patient - I can't imagine watching my child go through it. :(
GeminiSunset
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Medications: Lialda (2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg, increased in March to 7.5mg/kg (started Aug 2008 - 6 infusions so far, next infusion on 4/30 continuing every 8 weeks); Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate)
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (currently taking one daily, will increase to two soon)
Current Status: Reached remission for a few weeks in October 2008, but symptoms returned after I allowed myself to enjoy wine again.... gave up wine and have not been in full remission again yet. 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/20/2009 9:07 AM (GMT -6)   
I can't imagine what you or your daughter are going through with this.

I suggest trying the applicator on yourself - maybe filled with water or nothing - so you can get a feel for the angle that is necessary to administer the foam w/o pain. I found that I got a few minutes of instant relief from the foam.

Another suggestion would be to try steroid suppositories first and work your way (your daughter) up to the enemas. Many doctors don't believe the steroid suppositories do much good - but they are easier to administer and would get your daughter used to having some put "up there".

The side effects from long term pred use are not anything I would choose to inflict on a child.

Try to do something to calm both of you before and after using the foam or suppositories. Maybe treat yourself and your daughter to something you've really wanted or really like if you can get through the next two and then again for four (or something) after that.

I know from experience that I had to work myself up mentally to be able to use the Rowasa the first time. After about a week, I had a method down and it wasn't a problem any more.

Best of luck.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission???
Asacol 12 per day,  Azathioprine 50mg, Aciphex, Effexor XR, Forvia, Fibercon, and Culturelle
Remicade: 1st infusion 06/17/08:  Next infusion: April 1
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/20/2009 9:09 AM (GMT -6)   

As a Grandmother who had to try these suppository/enema/Proctofoam things late in life - I sure feel for you and your daughter.  At 10 is has to be hard to explain why she needs this medicine.  Talk to her about how it feels - is it really pain or just not wanting you to "mess" with that end. 

As her doctor or better yet - nurse - for something like lidicaine to "numb" the area before - that could help if she actually has discomfort.  I found the Procotfoam a lot better than the enemas BUT the suppositories are even easier - they are in and not uncomfortable in seconds!  If her doctor thinks she would get the benefits from the suppositories - I would try them - I am using Anusol and seems to be helping along with prednisone and 6MP.

Please do not consider prednisone yet - she is much too young!!

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008  Cannot tolerate mesalamines, Canasa, etc. Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred.
Started on prednisone Feb.7, 2009 - tapering to 20 mg. for two more weeks and then down to 15 mg.etc.  Added 6-MP Feb. 28.
Added Anusol suppositories - March 16 - see doc in 3 months. 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/20/2009 9:37 AM (GMT -6)   
I'm so sorry that your daughter has this disease at such a young age. It's cruel.

At 10, I think she is old enough to understand that yes, it's not fun, but that it's the best way to help her get better. I agree that talking with her about whether it hurts or whether she's uncomfortable with you messing around "down there" is what's really bugging her. And, if it hurts, use lots and lots of lube and maybe have her try at least putting the applicator in herself.

Prednisone is definitely NOT a good thing for her to be on long-term. There are some very, very, very potentially serious side effects, and you definitely need to think about that. Honestly, I'd look at moving on to an immunesuppressant or a biologic long before I'd consider long-term prednisone use. There is a lot of good new information suggesting that's a much better course of treatment that allowing UC patients to be on and off of prednisone continuously.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


sore_guts
Regular Member


Date Joined Jun 2007
Total Posts : 185
   Posted 3/20/2009 11:40 AM (GMT -6)   

OMG – I really feel for you and your daughter.  I am a Mom of a 5 and 2 year-old so this breaks my heart for you.  I had an extremely hard time trying to get eye-drops in my sons eyes recently for pink eye.  He would shake his head, cry, and plead with me to stop.  That was frustrating and made me cry, but that was just eye drops and just in the eye.  It must be so much more difficult to have to put something in the other end.  Children do not have the same reasoning adults have in understanding that it will make them better, even at 10.  I completely feel for your frustration and understand your thinking in that pred would be easier.  If all else fails and it comes to oral steroids maybe you could try Entocort first?  It is supposed to have less side effects.  I hope your daughter gets well soon


 sore_guts
 
Currently in Remission since June 2008!! Backed off to far from spinach/seed diet and started flaring again :(
 
High magnesium/ beta carotene diet
37 year old female with left-sided UC
lialda 1 pill  3 2 times/day
Digestive Advantage Colitis formula 1/day
 
 


MustLoveDogs
Regular Member


Date Joined Jan 2009
Total Posts : 394
   Posted 3/20/2009 12:34 PM (GMT -6)   
Hi everyone

Thanks so much for your support and advice. For those who have said it shouldn't hurt...please think about the fact that she is ONLY 10 years old! She is a really good pill taker and has never given us trouble when it comes to taking medicine. It's also about the "gross factor" - I mean WHO wants to have something put in ther butt!!! If she could do it herself that might make it easier but that is not an option. It's hard enough to have a disease that you are totally embarrassed about (5th graders can be so cruel) and then to add this to it is a bit much for a 10 yr old to handle. We are not talking about steroids long term - her Dr said we could do just a few days (3 or 4) and see what happens. I will ask about Entocourt. I wonder why don't doc's offer that as a first option instead of Pred? She was on Pred in December for a month and gained a lot of weight so she is aware that it is not a "quick fix" without side effects!

As with everything, we will get past this. It just really sucks right now! I appreciate having you all to "talk" to!!
Gwen
 
10 yr old daughter diagnosed with "UC-like Crohn's" 12/08
currently on 2400 mg Asacol 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/20/2009 12:36 PM (GMT -6)   
It is heartbreaking but you and your daughter have to try and stay focused in the fact that it will help her and as the med works it'll likely be less painful...it likely hurts so much because of the inflammation but it will get better and pred will do so much harm in the short and long run whereas the cortifoam doesn't release the steroids into the blood stream so there is lack (if any) side effects...in the long run the cortifoam will be better for her health overall then the pred because imagine how heartbreaking it's gonna be when she starts to have real long term and permanant effects from using pred.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 3/20/2009 3:31 PM (GMT -6)   
     Gwen, my heart goes out to you and your daughter.  I can just imagine how very difficult it is seeing your daughter suffer so.  It IS a big deal for a child to have to take this medicine and enemas.  The poor little girl probably gets herself in such a tizzy at just the thought of the enema and that probably makes her muscles constrict which makes it more difficult to insert.  I was a child back in the early 50's when parents thought enemas were needed to "clean you out".  Apparently, I was constipated quite often and I can still remember lying face down on my parents kitchen table while my dad held me down and my mother TRIED to give me an enema..ugh.
     Has your GI doctor ever recommended Canasa suppositories for your daughter?  I was hospitalized last year and was so inflamed in my rectum that I just couldn't do the enemas and one of the GI doctors brought the Canasa suppositories to me.  They weren't half as bad as the enemas.
     I want to add one more thing.  You mentioned your daughter took her medicine well.  My hat goes off to her because I still have a daughter living at home who will be 32 in May and takes the Children's chewable vitamins because she says she cannot swallow the adult ones.  SHEESH.  God forbid she ever gets this crappy disease!
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 3/20/2009 3:42 PM (GMT -6)   
Makes you wonder why kids get this disease. I can see someone who abused their bodies over 60 years, but teenagers and kids getting this just isn't right.

mollymcbutter
Regular Member


Date Joined Mar 2009
Total Posts : 130
   Posted 3/20/2009 5:22 PM (GMT -6)   
Hi there, I am sorry she and you have to go through this, I have used this is the past and didn't have a problem, I don't know if it stung at first and slight burning sensation or not, but I thought cooling also.  You know, I was wondering you know when we were children (like myself) the anticipation of getting a shot you were crying so hard you could hardly breathe.  Probably the stress and anticipation of it is most of what is going on for her, but still I realize you still have to go through those hard emotions.  Hang in there maybe in time it will not be such a scary thing for her, I too, am sorry at such a young age she has to endure this.  Now I'm sending sending hugs to the two of you
MustLoveDogs said...
Having to administer Cortifoam to a child has to be one of the worst tortures for a parent.  I've done it twice and there is NO way I can do this again.  I am so angry right now...angry for this disease, angry that she can't be a "normal" kid and angry that there aren't better medications available for those with UC and Crohn's.  I know it is going to make her feel better but I just can't put her through it again and listen to her scream and cry.  She would rather go back on Pred and I have to agree with her. confused


mollymcbutter
Regular Member


Date Joined Mar 2009
Total Posts : 130
   Posted 3/20/2009 5:23 PM (GMT -6)   
Hi, just said to mustlovedogs I didn't find them to hurt so don't know that is the norm.  Just in case you are apprehensive
PinkPaperclip said...
So enemas hurt.. That I didn't know! She didn't feel better a couple of hours afterwards? Maybe the good effects of the medication will encourage her to continue? I don't know anything about enemas but now I know they hurt! Mustlovedogs and Bennie, I am so sorry that your children have been diagnosed with UC so young... It must be very hard for a kid to accept this condition. Mustlovedogs, I am sending you lots of virtual positive energy ;) and wish you both find a way to make the treatment bearable :S


PinkPaperclip
Regular Member


Date Joined Mar 2009
Total Posts : 108
   Posted 3/20/2009 6:22 PM (GMT -6)   
I totally feel the same way! I know people who drink like fish, use drugs, eat fast food and don't even get sleep every night and they are 100% healthy (well.. you know... they are not stuck like us). I don't think UC is about abusing your system though, maybe nobody knows for sure but I kinda agree with the theory of an unexplainable auto-immune disease. Your body attacks your own organs for protection even if there is no threat.. I'ts kinda like allergies no?
Zippy123 said...
Makes you wonder why kids get this disease. I can see someone who abused their bodies over 60 years, but teenagers and kids getting this just isn't right.

Diagnosed with pancolitis 19/03/09
Prednisone 40 mg, Mezavant 4.6g
 


MustLoveDogs
Regular Member


Date Joined Jan 2009
Total Posts : 394
   Posted 3/20/2009 6:26 PM (GMT -6)   
Yes, it's an autoimmune disease and it runs in our family. It has nothing to do with "abusing" ones' body but I know what you mean - innocent kids should not have to suffer. I just remind myself that many kids suffer with worse things :(
Gwen
 
10 yr old daughter diagnosed with "UC-like Crohn's" 12/08
currently on 2400 mg Asacol 


mollymcbutter
Regular Member


Date Joined Mar 2009
Total Posts : 130
   Posted 3/20/2009 6:32 PM (GMT -6)   
Hi, I get your point about your daughter, hope when I said for me it didn't hurt, I didn't mean that it doesn't hurt her, sorry if my response sounded that way.  I totally agree for someone her age, this must be a traumatic thing for someone so young to go through...Molly
MustLoveDogs said...
Hi everyone

Thanks so much for your support and advice. For those who have said it shouldn't hurt...please think about the fact that she is ONLY 10 years old! She is a really good pill taker and has never given us trouble when it comes to taking medicine. It's also about the "gross factor" - I mean WHO wants to have something put in ther butt!!! If she could do it herself that might make it easier but that is not an option. It's hard enough to have a disease that you are totally embarrassed about (5th graders can be so cruel) and then to add this to it is a bit much for a 10 yr old to handle. We are not talking about steroids long term - her Dr said we could do just a few days (3 or 4) and see what happens. I will ask about Entocourt. I wonder why don't doc's offer that as a first option instead of Pred? She was on Pred in December for a month and gained a lot of weight so she is aware that it is not a "quick fix" without side effects!

As with everything, we will get past this. It just really sucks right now! I appreciate having you all to "talk" to!!


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 3/20/2009 9:14 PM (GMT -6)   

Gwen,

I'm so sorry to hear what you and your poor daughter are going through.  I can't imagine how difficult it must be for both of you.  One thing I wanted to ask - is she clenching when you administer the medicine?  By clenching I mean tightening up her muscles.  The more relaxed she can be, the less it will hurt.  When I used rectal meds, I had to tell myself to slow my breathing and relax my rectal muscles.  If you can explain to her that she has to be as relaxed and loose (muscle-wise) as she is when she's sleeping (give her that frame of reference), maybe that would work.  It might even help to use some relaxation techniques before administering. 

As for the prednisone, it may seem like an easy answer for the short-term but as many people on this site will tell you, you should avoid long-term use at all costs.  And from what I've heard here, after your first use of prednisone, it often loses it's effectiveness.

As Sherry said, it can be terrible to watch your child suffer; but when you know you're doing it to ultimately make her feel better, you have to keep going.

I'm saying a prayer for you tonight.  I hope her symptoms improve quickly, so you can both find some peace with this.

PS.  I just had a thought.  You mentioned you were using Cortifoam, and the times when I used it I noticed that although the tip was very narrow, it was very pointy.  And if my aim was off a little, the tiniest poke really hurt.  Maybe your doctor/pharmacist can give you another applicator that's rounder/softer.


DX:  Pancolitis as of 9/08 (Proctitis as of 1/08) and IBS
Current Treament:  Spinach/Sunflower Seed Diet
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol, Iron, Zoloft, Acidophilus.
Status:  Remission
 
 
 
 

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