what would you do?

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orangeman
Regular Member


Date Joined Oct 2007
Total Posts : 36
   Posted 3/20/2009 7:01 AM (GMT -6)   
I'm looking for everyone's opinion.  I finally tapered off prednisone (varying doses since april 07) last month.  It's been almost 5 weeks now with no issues (crossed-fingers!) except gaining weight has been slow.  I want to add 10lbs (5'9" 155lb this morning). 
 
I saw my GI yesterday and he wants to do another colonoscopy.  My last one was August 08 when I was down to 5mg Pred.  The procedure triggered a flare that I could not get under control until bumped up to 40mg of pred.  I could not taper below 20, without returning symptoms, until my Humira was bumped up to weekly injections.  Humira has been great.
 
Anyway, I do not want to upset things down there and do not want to have the colonoscopy.  The GI disagrees.  Would you have the procedure?  Also, I'm in the Army and will moving to San Antonio at the end of June which means a new GI doctor.  Chances are the new GI will want to take a look.
 
Thanks
 
UC since April 2006; first flare May 2007, hospitalized 28 days.
Remicade infusion brought symptoms under control, but caught MRSA infection from PICC line.
2nd Remicade at 14 weeks, severe reaction, no more Remicade.
tapering prednisone (10mg/day down from 60), started taper 4/10/08 (2.5mg every two weeks)
Flared at 5mg, bumped back up to 40mg for 6 weeks on 7/26, tapering again 5mg every two weeks, (25mg for last week)
Will probably be starting 6MP soon
Humira - 1 shot every two weeks (since December 2007)
Calcium - 2x per day
Multi-vitamin
 


orangeman
Regular Member


Date Joined Oct 2007
Total Posts : 36
   Posted 3/20/2009 7:04 AM (GMT -6)   

I signature is wrong.  I updated it, but it did not take.

Current meds:  humira weekly, calcium 2x/day, off pred for 5 weeks after varying between 5 and 60mg since April 07


UC since April 2006; first flare May 2007, hospitalized 28 days.
Remicade infusion brought symptoms under control, but caught MRSA infection from PICC line.
2nd Remicade at 14 weeks, severe reaction, no more Remicade.
tapering prednisone (10mg/day down from 60), started taper 4/10/08 (2.5mg every two weeks)
Flared at 5mg, bumped back up to 40mg for 6 weeks on 7/26, tapering again 5mg every two weeks, (25mg for last week)
Will probably be starting 6MP soon
Humira - 1 shot every two weeks (since December 2007)
Calcium - 2x per day
Multi-vitamin
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/20/2009 7:17 AM (GMT -6)   
I would say, "Last one triggered a flare, I am doing great atm and not willing to take that chance." Flare can equal 2 months to a year of pain. Who is taking the risk? You. Is it something that is going to benefit your health or give them some valuable knowledge on what they need to do now with you? Or is it just a procedure getting billed to insurance?

When you switch GI's take results from your last colonoscopy and give to them, and hopefully you are still doing great. Don't forget you are the one paying them in the end.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/20/2009 9:35 AM (GMT -6)   
Yeah, stick to your guns and say no. My doc knows scopes cause irritation that lasts a while, and we're very judicious about them. What would the doc find that would change your treatment??? Curiousity is not a good enough reason. Take your med records to the new doc, they don't need to see it again either.

We have the right to have a say in our care.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, down to 10 mg. Waiting for insurance decison on Humira... 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/20/2009 9:40 AM (GMT -6)   
Nope, I wouldn't. My doc isn't big on doing scopes, anyway. He said that it's not really the amount or extent of inflammation that matters, but the symptoms that a patient is experiencing, really. And he doesn't like doing them too often because there ARE risks associated with them. As long as you've been on pred, it's definitely not worth the risk to have to go on it again. And, I wouldn't let a new doc do another one, either.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


orangeman
Regular Member


Date Joined Oct 2007
Total Posts : 36
   Posted 3/20/2009 10:27 AM (GMT -6)   
thanks. I was planning to bypass the colonoscopy and your responses have sealed it for me. My GI just wants to see what is going on down there. It's not worth the risk. I just left a message with his nurse.
UC since April 2006; first flare May 2007, hospitalized 28 days.
Remicade infusion brought symptoms under control, but caught MRSA infection from PICC line.
2nd Remicade at 14 weeks, severe reaction, no more Remicade.
Severe reaction to 6MP (3 days in hospital November 2008)
Prednisone (between 5 and 60mg/day since April 2007) tapered off on 22 Feb 2009 
Humira - 1 shot every two weeks (December 2007) changed to weekly December 2008.
Calcium - 2x per day
 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4180
   Posted 3/20/2009 3:17 PM (GMT -6)   
No, I would not get the colonoscopy. If you are not having any symptoms right now and the last one triggered a flare, I don't see why you would need one.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops; Ortho Tri-Cyclen


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 3/20/2009 9:51 PM (GMT -6)   
The facts that you're doing o.k. at the moment, flared after last c-scope which was less than 1 yr ago, & expect to relocate soon (making contact with a new doc necessary) indicate that "NO" is the right answer now. There will be other opportunities for scoping in the future; it doesn't need to be done just because your present doctor is "curious" about a vague "something"! May you continue to feel well for a good long while. / Old Hat (30 yrs with left-sided UC ... [etc.])
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