How often do you get Remicade infusions? I started on Remicade in Aug '08. I only reached full remission for a couple of weeks in October - but then I was stupid and enjoyed some wine two weekends in a row, and that flared me up again. I haven't been fully in remission since. And for the past few infusions I've passed blood for the last few weeks before my Remicade appt.
Before chaging the frequency of my infusions, my dr incrased from 5mg/kg to 7.5mg/kg. So now we still have the option of increasing the dose as well as increasing my frequency. I am feeling better this time around. I still pass blood once in a while, but nothing terrible yet. And I still go to the bathroom several times a day with great urgency. But I'm maintaining my healthy weight and I am functioning fine. Even my dr said that I may not lose all of my symptoms, but as long as we can keep them in check and stop any bleeding, then that can be seen as success.
I think if I maxed out on the dose and frequency though and still had major problems, I would consider a new drug (Humira maybe) or even surgery.
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda ( 2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg, increased in March to 7.5mg/kg (started Aug 2008 - 6 infusions so far, next infusion on 4/30 continuing every 8 weeks); Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate)
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C,
Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (currently taking one daily, will increase to two soon)
Current Status: Reached remission for a few weeks in October 2008, but symptoms returned after I allowed myself to enjoy wine again.... gave up wine and have not been in full remission again yet.