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travelinman
New Member


Date Joined Nov 2008
Total Posts : 3
   Posted 3/20/2009 5:20 PM (GMT -6)   
Greetings all. Thanks again for making this such a great board.

My first ever "Help Me!" post.

I have been an unsuccessful prednisone weaner for almost two years now. Usually get down to about 5mg/day and then all hell breaks loose (literally).

This time, however, my stomach is rumbling and making noises on a level that's never happened before. Really loud stuff that would just embarrass the hell out of me if I didn't have an office. Sometimes, but not always accompanied by bad gas. Those who have heard them are actually shocked.

I'm fearing something may be going on in there that's worse than usual. Can anyone relate? Accompanied by the usual morning awful-ness of diarrhea, then occasional attacks during the day. Went back up to 20 mg pred, for a couple days, but nothing yet.

a

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/21/2009 11:42 AM (GMT -6)   
Is it your stomach or your gut? (down lower) My gut will rumble and groan sometimes, loud, too. My hubby laughs, I shrug, usually it means a bathroom visit soon! I guess my work environment is too noisy, I never hear it there. I guess I'm saying it is not at all unusual, just part of the disease.

You may have seen me suggest 1/2 an immodium in the morning, after the morning awful-ness, if you want to limit the attacks during the day. It's enough to calm the system but not shut things down so much that you are uncomfortable.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, down to 10 mg. Waiting for insurance decison on Humira... 


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 3/22/2009 8:02 AM (GMT -6)   
Travelingman,

If you use prednisone often then it can stop being as effective, and higher doses may then need to be taken. So, when I used prednisone the first time I started at 40mg and then tapered down. The second time I was told to start at 60mg instead, and then tapered down.

I was having the same problems as you below 10 mg, and was still advised to get off it as the doctor did not want me taking it for more than 3 months straight. Also, his advice was that for however long you are on a course of prednisone, you should then take a break off prednisone that is at least twice as long before getting back on it, if at all. e.g. 3 months on, 6 months off.

What other meds are you on? Have you gotten a second opinion on your treatment options - because 2 years to taper off one course of prednisone is a very long time.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine, 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Mesacol/Asacol enema at least once a week
Spinach & sunflower seed diet

Post Edited (Rio in Maryland) : 3/22/2009 8:09:15 AM (GMT-6)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 3/22/2009 11:03 AM (GMT -6)   
You could go back to the 10mg maybe and alternate tapering...
19, 5, 10, 5, 10, 5, 5, 5, ....etc

When you want to get to the next incriment, do the same process.


You might want to ask the doc for rectal meds to help keep that area calmer while tapering. Maybe the steroid enemas since it will have a teeny bit of the steroid absorbed into the bloodstream via the colon. That amount might help the tapering of pred.

Hope you feel better soon,

Welcome to the forum!
quincy
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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