My daughter had j-pouch surgery this past July. She only had UC for less than 2 years but had 3 very big flares. She missed alot of school. When she was first diagnosed (and we were still ignorant to UC) we never thought she would have surgery. We also said she wouldn't go on some of the bigger, more powerful drugs. Who knew at the time! Her decision to have surgery was based on the facts that 1-she was having a harder and harder time getting into remission, 2-her flares looked to be coming more often, 3-she felt like she was losing her teenage years to a disease, 4-she didn't want to live on powerful drugs for another 60+ years wondering what damage they were doing. Even though infertility can be an issue with a j-pouch, she didn't want to worry about having and raising children while having a flare.
For Bratcat (our daughter), surgery was the best decision. She is having a wonderful senior year of high school. She has been able to participate in everything a typical 17 year old should be doing. She is happy and healthy. She is looking forward to college.
Bratcat had surgery while she was in remission. Better for the body but at the same time, harder to sometimes accept in the mind because you are healthy. I think the best thing to do is to consult with a surgeon. Get the information from them. Ask questions. Get details. Weigh your options. You don't have to necessarily make any decisions but you will have all the knowledge if and when you are ready to make a decision.
--Mom of bratcat (17 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp