Thank you Southernbelle and Kops2da for responding to my post so quickly.
Southernbelle: He is 19, still living at home and yes, it kills me to see anyone suffer, especially one of my own! What you described is exactly what I was thinking... strep throat, staph infection and God knows what else!
I have a million more questions to ask, hope you can answer some of them.
Did your urgent care doctor prescribe antibiotics or put you back on Prednisone to get the Asacol "allergy" symptoms under controll?
My g'son's Specialist took him off both Asacol and Didrocal... told him to go without any meds for 3 weeks. Won't his mouth/throat ulcers get worse? the acne (boils?) get worse? It's like his system is totally toxic! Do you get worse for 10 days and then start improving without any meds?
If just left without any meds to counteract this allergy, won't the ulcers do damage to his digestive system? And now that Prednisone has stopped him from producing whatever it is that makes your immune system kick in, won't the inflamation get worse and possibly lead to complications like infections, etc?
Like you, my g'son was very concerned about going on Prednisone to start with because of all the bad side effects to this drug. We have a bone disorder in our family already and to put Prednisone on top of it was a very hard decision... that was why his Specialist put him on the Didrocal suppliment hoping it would stop the loss of bone density.... which so far, it has (altho he is now off that as well).
This is such a debillitating disease! G'son has been off work since mid Dec. The 1st 4 weeks on Prednisone he started to felt better, then when Asacol was introduced he progressively got sicker again. His money for meds is quickly running out. He's in bed most of the time, totally fatigued, lathargic and in pain. Has lost so much weight... is basically back to square one!
How did you cope during your "allergic" period, while the Asacol was getting out of your system? Just suffer? With diabetis if your blood suger gets out of wack, you can counteract it with insullin or exercise... how do you counteract this allergy? Does "Benedryl or other antihistomines" help this allergy (they do for penicillin allergy)?
Kops2da: I'm not sure what proctosigmoiditis is or how it differs from UC of the large intestine, but you've been on some of the same meds for UC for awhile. How are you coping now?
It feels good to get my concerns out instead of sitting here worrying so much about it. Thank you for letting a Granny vent.
G'son diagnosed December 2008 with moderate to severe UC - just finished Prednisone 40mg; now on Asacol 800 x 6; Didrocal 90 dys; multivitamins; probiotics; boost; flaxseed.