anybody like to take breaks from rowasa

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 3/22/2009 7:11 AM (GMT -6)   
I'm supposed to use it every night but some nights I'm just too tired. I know its better to do every single day like my doctor told me but sometimes I feel like I just need a night off. How do other rowasa users feel?
UC diagnosed January 05
Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07), levbid, prednisone (been off since nov. 08!), rowasa
Current meds: Asacol 4 - 3x, Aciphex (acid reflux), canasa and rowasa alternating every other night, konsyl (fiber for bulking stool), multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30603
   Posted 3/22/2009 11:00 AM (GMT -6)   
I can relate. I'm in a very mild flare now and have been on nightly for 3 weeks...I still have nausea and slight urgency in the morning..but not frequency.

I wanted to skip a night, but decided not to considering since Christmas I tapered very quickly twice and now am back to square one. It add insult to injury, my brain is only focussed on the now hemorrhoid that's reared..lol!

Skip a night here and there...but one night might be two, might be three..etc.

It only takes a seconds to do the enema....worth it methinks.

Keep us posted as to how you're doing.
quincy
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 3/22/2009 12:16 PM (GMT -6)   
I didnt ever have to take that but i think its SO much better to do it and be safe than sorry. I always hated taking 11 pills a day but hey..if a 17 yr old can do it..so can you =)
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Step1 Ileostomy on Nov.19,2008..waiting on Step2 =]
"The past is history, the future is a mystery. Today is a gift, that's why it's called the present"


Deacon Blues
Regular Member


Date Joined Oct 2006
Total Posts : 304
   Posted 3/22/2009 1:06 PM (GMT -6)   
I had a script for Rowasa a couple years ago...never used it. Just wanted to avoid enema as long as possible. I was w/out insurance for a couple years so I couldn't get a new script to try it. I may have a mild flare 2 times a year, mostly have been in remission for a couple years. I have insurance again and am tired of rear pain etc. and want to try Rowasa ...I guess...
Diagnosed with UC in 1999
PANCOLITIS-mild to moderate (remission for 2 years!!)
3-400mg Asacol 3x per day
45 yrs old


tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 3/22/2009 8:53 PM (GMT -6)   
I have found that rectal meds, when used faithfully, put me into a gorgeous remission. I function like I did pre-colitis; no gas, bloating, fatigue, blood, mucous, nothing. And yet...I detest using my rowasa. I bounce back & forth between using my medicine and not, and my flare symptoms follow along like a dog on a leash. So, PMIrony, I understand completely about not always using your enema! And not to delve too closely into personal territory, but an enema at bedtime somehow doesn't set a romantic mood with your spouse, either. :)

I talked about this with my GI at my last appointment--that even though I knew Rowasa was effective, I despised using it. He prescribed canasa, the suppository version of mesalamine. I find that it is SO much easier to use, because unlike the enema, I can insert it any time, because I don't have to lie still for 30-60 minutes after using it. I have always found the enema uncomfortable for the first 20 minutes, but I don't notice the suppository after it's been inserted.

Like a lot of of UC sufferers, my worst time of day is mornings, but after lunch my symptoms seem to go well. I bring my suppository to work and use it there-not something that I could do with the rowasa.

Depending on your symptoms, the supp's might be a good solution for you. They're working well for me!
Erica, 32
Pancolitis, diagnosed July 2006, at age 29
(Colonoscopy January 2008 showed active disease just in sigmoid and below!)
Imuran & colazol daily; Rowasa and/or canasa rectal meds as needed for maintenence
Currently pregnant-due October 2009


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 3/23/2009 11:32 AM (GMT -6)   
It's not the most convenient type of med, that's for sure-- and suppositories ooze out after a while, yuck. Another galling thing is that we in N. America still can't get the mesalamine rectal foam that became available in the UK, Europe, & Australia a few yrs ago. Julee70 bought herself a supply while traveling abroad in the fall & reported in a post here that it definitely WORKS. So annoying that we STILL cannot get the Rx filled near home!!!!!!!!!!! PMIrony, you are not alone in your frustration with the bedtime nuisance. / Old Hat (30 yrs with left-sided UC; presently have moderate flare in sigmoid colon)

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/23/2009 12:14 PM (GMT -6)   
I guess I'm just weird, because I don't really mind using rowasa. However, it causes absolutely NO discomfort, pain, weird feeling, anything for me. I'd use them every day for the rest of my life, no complaints, if I knew they'd keep me in solid remission!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/23/2009 2:15 PM (GMT -6)   
When I was really flaring - no matter how not in the mood I was I never missed a night cuz I just wanted to get better.  Once I started feeling better - even before I was ready to taper - every once in a blue moon I would skip a night - or just use a suppository instead.  Not the best thing to do - but I totally understand how you are feeling. :)

Mamas Boys
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 3/23/2009 2:49 PM (GMT -6)   
Thank you everyone. I feel like this has been one of the most useful discussions I have posted in my time at HW and I appreciate all your responses. I took a few days off just because sometimes I feel too tired to deal with it all - even though its kinda simple. I'm back in the routine now, but its nice to hear others with the same frustrations. Be well all!
UC diagnosed January 05
Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07), levbid, prednisone (been off since nov. 08!), rowasa
Current meds: Asacol 4 - 3x, Aciphex (acid reflux), canasa and rowasa alternating every other night, konsyl (fiber for bulking stool), multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30603
   Posted 3/24/2009 2:01 AM (GMT -6)   
We all take breaks, and good to hear you're back on the Rowasa. Be rebellious for a night...but not a few in a row. Not worth it, really.

The idea of using the suppositories instead on occasion is a good one....if one doesn't mind using them.

Keep us posted as to how you're doing.

quincy
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, June 23, 2018 6:08 AM (GMT -6)
There are a total of 2,974,457 posts in 326,177 threads.
View Active Threads


Who's Online
This forum has 161282 registered members. Please welcome our newest member, BettyBoop.
290 Guest(s), 4 Registered Member(s) are currently online.  Details
Dahlias, Old Mike, Kathy77, straydog