there's got to be a middle ground here- I can understand both "sides", Qvist & supersaw. Yes, the anxiety of wondering "Will I make it?" is rough- so much so that we opt to stay home often. However, we stay home & everything is fine, then think "Why didn't I go out?". And many times, it is true that the urge doesn't necessarily mean a bm, or mucous/blood. It's just that, an urge- sometimes you can ride it out by telling yourself "There's nothing there, I don't have to go to the bathroom, I just went". Deep breathing, calming techniques, etc. all help with this. I don't really get anxiety anymore- I did for a long time, a few years, but finally realized that if any accidents happen, so what? So they happen. Not that big a deal. I've nearly always managed to be able to pull over & go on the side of the road, if need be. And when I'm out, I usually do go into every bathroom possible, sometimes more than once in any one store! I always think the store "detectives" are sure I'm trying to shoplift, after 2-3 bathroom trips over one half-hour K-Mart jaunt. Obviously I'm not talking about
being in a severe flare- then, forget going out, you are indeed going to the bathroom all the time! But on a day-to-day, doing alright period, I've found that when you do just suck it up & go, things usually are fine. Not always- I had an accident last week, during the ten minute ride home after dropping my daughter at school- just could not hold it. I wound up pulling over at some conservation land, running off in the woods, cleaning myself up, going home, getting changed & doing laundry! The only scenario that truly causes me anxiety is traffic in an urban area- no trees/woods to dash into, plus everyone in their cars would see you. So that does cause some anxiety. But I very rarely put myself in those situations, & if I think I will, I may take Immodium prior to the drive.
diagnosed with UC '02
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07