I went for my follow-up appointment at the hospital today with my consultant, after my stay in hospital a few weeks ago. He has reduced my medication down which is great as things have improved. But nearly every time I see him he seems to make a point of saying that Proctitis doesn't cause alot of health problems or interrupt your life. And that as in my case - it can just be hard to treat sometimes. I have been off work for 2 months so far and have been feeling pretty ill with it, when I told him the GP had signed me off all this time and I said I hoped to go back this week, he half-laughed and said "Yes I think you will be fine to be at work".
As a consultant he is really good and in every other aspect really knows what he is talking about, and I know I could have it so much worse, as so many of you here do. But I feel sometimes like he thinks I'm making a big deal out of nothing and that all I've got is just a 'nuisance rather than a problem' (his words when I was first diagnosed.)
22 year old female, from the UK.
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for IV Hydrocortisone - had no effect!
Hospitalised Feb '09 for a week of IV Hydrocortisone.
Currently taking daily:
30mg Prednisolone tablets (tapering)
5mg Prednisolone suppositories x 2
1g Mesalazine suppositories x 2 (soon to change to Acetarsol)
1g Mesalazine granules x 4