Great News!!!!

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kazzaz
Regular Member


Date Joined Sep 2008
Total Posts : 31
   Posted 3/23/2009 6:24 PM (GMT -6)   
So in the past month ive gone from considering surgery to now in remission. After having colonoscopy i found out that my medicine had not been going throughout the whole colon but had completely cleared the right (i think..) side from UC, while the part towards the end was very inflamed. So after using canasa for a while i think im finally in remission. The last time that i had a bowel movement was around 8am yesterday. Im sooo happy :)
15yr old male
diagnosed January 04
8 pills of pentasa perday
canasa
remicade (taken about 10 times or more)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/23/2009 6:40 PM (GMT -6)   
Only got one thing to say -
 
 
smilewinkgrin  YIPEEEEEE!!!!!!
 
Senior - New diagnosed with proctosigmoiditis - 6/2008  Cannot tolerate mesalamines, Canasa, etc. Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred.
Started on prednisone Feb.7, 2009 - tapering to 20 mg. for two more weeks and then down to 15 mg.etc.  Added 6-MP Feb. 28.
Added Anusol suppositories - March 16 - see doc in 3 months. 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 3/23/2009 6:49 PM (GMT -6)   
I am so happy for you:) I hope you stay in remission for a very long time. Congratulations!!
UC Mom
Son diagnosed 10, 2006 at age 15
6MP 75 mg. per day
Culturelle


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 3/23/2009 6:51 PM (GMT -6)   
Excellent news!!!! Hope you continue to feel well for a long while.

Just a suggestion...please don't abruptly stop the Canasa....try going to every second night and if that's good for a few weeks, go to every third night (or day..whatever you're doing)....and keep at a maintenance dosage of twice a week or once a week...tapered to that point of course..

quincy
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kazzaz
Regular Member


Date Joined Sep 2008
Total Posts : 31
   Posted 3/23/2009 7:21 PM (GMT -6)   
Thank you!!

Thats probably what im gonna end up doing Quicy, thanks for the suggestion :)
15yr old male
diagnosed January 04
8 pills of pentasa perday
canasa
remicade (taken about 10 times or more)


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 3/23/2009 10:04 PM (GMT -6)   
That's great to hear! I was in the same situation last fall--I had surgery scheduled, but then the right combo of rectal meds me into remission.

:)
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (6 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3 DS, Turmeric
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/23/2009 10:24 PM (GMT -6)   
Great! :)
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 3/23/2009 11:36 PM (GMT -6)   
Sweet! :)

Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 3X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 3/24/2009 8:44 AM (GMT -6)   
Yahoo! Excellent news!

Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/24/2009 8:49 AM (GMT -6)   
Good Stuff!! Get out and enjoy it.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


geminisunset
Regular Member


Date Joined Sep 2008
Total Posts : 153
   Posted 3/24/2009 9:06 AM (GMT -6)   
Congrats, Kazzaz!!! Take good care of yourself so you can enjoy feeling well for a looonnnngggg time!! :)
GeminiSunset
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Medications: Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda (2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg, increased in March to 7.5mg/kg (started Aug 2008 - 6 infusions so far, next infusion on 4/30 continuing every 8 weeks); Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate)
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (currently taking one daily, will increase to two soon)
Diet: Spinach and Sunflower seed butter diet (starting 3/22/09)
Current Status: Reached remission for a few weeks in October 2008, but symptoms returned after I allowed myself to enjoy wine again.... gave up wine and have not been in full remission again yet. 


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 3/24/2009 9:10 AM (GMT -6)   
Wonderful!! :-)
31 yr old female currently breastfeeding
Diagnosed 2/29/08 with Mild Universal UC
I've had UC since 2000 but was in remission for most of those 8 years med free
Lialda Colazal & Asacol made symptoms worse, MUCH worse
Not taking any meds for now. May be on 6mp soon?

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