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Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/24/2009 7:41 AM (GMT -6)   
I have noticed lately that there seems to be a bit of confusion regarding some of the forum rules and internet ettiquete.  So I am going to post clarification on some points.
 
- Hijacking - Everyone does it.  Heck I've even done it a few times myself!  But the proper way to get your questions answered is to create your own post.  Hijacking a thread simply means that you post on another posters post about a different question then what the original poster wanted to know.  For example, we have a poster that wants to know about Asacol and you go on that post and start talking about 6mp/Imuran or Prednisone.  This defeats the purpose of the original poster that is trying to find information for himself/herself.  This is not a capital offense!  tongue   But more of a common courtesy.
 
- Searching for old topics - Use the Google bar above and NOT the HW search function.  The Google search bar works wonderfully while the HW search is a bit iffy.  So please look for old topics before creating a new post to find information for yourself.  Many of these older posts can be very informative and can answer many of your questions.  We get a lot of repeat questions and some of the veteran members can get tired of repeat questions.  But if you can not find what you are looking for then by all means, create a new post.
 
- Moderators - We are not superhumans.  smilewinkgrin We do not get paid for being moderators - we are volunteers.  We have a life and families.  We can not be on here 24/7.  We can not read every single post - though we do try! We are sufferers the same as you.  Many of us mods even have several other health conditions to contend with (myself included).  So it can be tough sometimes to come online and read every single post.  The Uc forum is the second largest and busiest forum on HW that is why we have so many moderators.  But we rely on the veteran members or even regular members to help other members in regards to forum rules and 'net ettiquete.  They have been around HW long enough to confidently tell our newly diagnosed the rules.  It doesn't have to come from the moderators.  We are simply here to keep the peace, help when we can and enforce HW rules.  But we are very approachable and if you ever have a question or concern, do NOT hesitate to contact us via email.  Our email addresses are under our forum names.
 
I think that about covers the main topics I wanted to discuss.  Feel free to add to this post if you have a question or concern. 
 
 


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 

Post Edited (Red_34) : 3/24/2009 8:31:42 AM (GMT-6)


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 3/24/2009 8:37 AM (GMT -6)   
Thanks Sherry; I just popped on and second all of your points. All of you forum members deserve a thanks too because when we can't be here, I notice many of you welcoming new members and helping others through tough times...and good ones too. We have an incredible forum, so let's keep up the commeraderie!

Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/24/2009 9:38 AM (GMT -6)   
I definately agree Carol! Our members are awesome! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/24/2009 11:41 AM (GMT -6)   

Just to let you know I read every word!

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008  Cannot tolerate mesalamines, Canasa, etc. Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred.
Started on prednisone Feb.7, 2009 - tapering to 20 mg. for two more weeks and then down to 15 mg.etc.  Added 6-MP Feb. 28.
Added Anusol suppositories - March 16 - see doc in 3 months. 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/24/2009 11:47 AM (GMT -6)   
Well-said, Sherry.

And to our veteran members, I'm in awe of how giving you are, how willing to share experiences and also to gently point out forum rules when needed. The Mods couldn't do it without such a great membership, so kudos to you!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 3/24/2009 4:14 PM (GMT -6)   

bump

 


Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 3/24/2009 9:52 PM (GMT -6)   
Thanks for reminders, Sherry. A situation I noticed recently that can make for verrrry long posts: some members are copying at length from the post right above theirs & then adding comments. To my tired ol' eyes this is unnecessary. If a thread is running into 2 or more pages & a member wants to comment on a post far back toward the beginning, then it makes sense to copy points from that post into the new reply. Just my take on possibilities for saving HW Webspace. / Old Hat (30 yrs with left-sided UC ... [etc.])

quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 3/24/2009 11:15 PM (GMT -6)   
Old Hat...I totally agree with that suggestion!

Sherry and mods.....I can see if a thread is totally railroaded, but most do get back on point do they not?

q
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/25/2009 6:29 AM (GMT -6)   
Heather, yes for the most part they do indeed :) But sometimes it can take a while to get there ;)

Old Hat, that is a good point that I didn't even consider! Thank you for bringing that up :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 3/25/2009 8:45 AM (GMT -6)   
Good point Old Hat; I'll try and watch for that too. And I agree Quincy, most do get back to what the original post was about (and I've been one to railroad!) but it's good to try and steer folks back or ask them to create a new post because it's easy to get lost and forget about the subject at hand especially when it's a long thread. Thanks to you both for great suggestions! :-)

Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 3/26/2009 1:21 AM (GMT -6)   
I'd like to bring up something else.....bringing up very old posts....isn't that in effect hyjacking? the issue has long ago finished.

I can see searching for old posts for information....but not to resurrect to reply.

quincy
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/26/2009 6:20 AM (GMT -6)   

I agree with quincy - you should start a new thread and question when they are so old!

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008  Cannot tolerate mesalamines, Canasa, etc. Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred.
Started on prednisone Feb.7, 2009 - tapering to 20 mg. for two more weeks and then down to 15 mg.etc.  Added 6-MP Feb. 28.
Added Anusol suppositories - March 16 - see doc in 3 months. 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/26/2009 6:33 AM (GMT -6)   
Bringing up old posts is not hijacking IF it's within the subject of the post. Now if someone brought up an old post about Asacol and started talking about Prednisone then yes that is hijacking. That is the whole purpose of looking up old posts, to find the information you are looking for and expanding if you need more info but as long as it is within the original posts subject.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 3/26/2009 12:35 PM (GMT -6)   
But, why bring up an issue with that particular OP when it's been long resolved?
A new and current post is better...because, it still doesn't have anything to do with the OP.

I don't see it as being effective, only frustrating wondering if so-and-so's issue is still happening, etc.

q
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/27/2009 8:02 AM (GMT -6)   
Sorry I didn't get back to you sooner. I have had a tremendous headache that just wouldn't quit so my computer time has been limited.

Yes for the most part these question from the OP has been answered - sometimes not though. And an old post may not get as many views that has a new question from a new poster. But old posts are always going to show up eventually. Some people don't know or realize that it's an old post and post on it anyway. There is no way really to police that because it's not against forum rules or anything. We can however gently suggest a new poster create a new post if their question is not answered in an old post. But if a new poster does create a question within an old post of the same subject, that is not hijacking is what I was trying to say.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 3/27/2009 10:54 AM (GMT -6)   
Makes sense....thanks for the clarification.

Gee Sherry....I'll bet the wonky weather has something to do with your horrific headache. I sure hope it eases for you and that it's not anything else coming on.

Please take care....

q xx
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/27/2009 12:58 PM (GMT -6)   
No actually these horrific headaches are from my bulging/herniated discs in my neck. I go in on Tuesday for my 2nd cortesteroid injection. After about 4-5 weeks the shots start to wear off but over the course of 3 injections they have a cumulative effect that lasts for 6 months to a year (hopefully!).
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 3/28/2009 1:55 AM (GMT -6)   
Oh my..that's right....I sure hope that the shots work to give you some relief. Gee...didn't you have shots as well for your back?

You need to look into the Dr. Ho's neck relief thingie that takes the pressure off the discs/nerves. If I find it I'll post. Looks like it could be of some use on bad days.

I bet Tuesday can't come soon enough....can you take any pain meds to help until then?

quincy
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/28/2009 2:07 AM (GMT -6)   
There must be at least 500 posts regarding probiotics alone, and that can take up a lot of room, which is why it's encouraged to read through old posts and add to those if there are any question's that weren't answered from them...and most of the mods do a really good job but I have noticed that they sometimes single people out for certain things like posting the same info at the UC forum as at the CD forum( guess it's refered to as forum junping or something), some people seem to get away with doing it while others do not, I know there's no such thing as a perfect system and that mods are only human but it can still be frustrating.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/28/2009 7:43 AM (GMT -6)   
No Pb, it's not called forum jumping. We are all allowed to enter other forums. It's the multiple posting rule that we catch. You are not allowed to post the exact same post in multiple forums. *Raises hands* Not my rule! lol We only catch it if other moderators from the other forums catch it or we get a sneaky suspicion about someone. And like I said, the moderators aren't superhuman :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/28/2009 7:50 AM (GMT -6)   
Q - I had shots in my Sacroiiliac joint which did nothing for my lower back pain. But right now I am taking Tylonel Arthritis and Skelaxin to cope with the neck pain. It's not so bad during the day but at night I twist and turn my neck at such odd angle that I think is contributing to it. I am seeing my Primary on Monday to see about getting some sort of neck brace for when I sleep.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 

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