Pinkpaperclip, my doctor said that the "seriousness" of this disease, in his mind, isn't really related to how much of the colon is affected, but rather the symptoms the patient is experiencing. My colonoscopy showed pancolitis, but he said someone with just a few inches of affected area could have as bad of symptoms as I did (and I was having 15-20 BMs/day with severe urgency). The "good" thing about proctitis is that the rectal meds, which are better at healing inflammation than oral meds, can reach the entire affected area, which just isn't possible in pancolitis.
Thankyou for this comment fruitgirl...not even my consultant thinks that proctitis necessarily affects your health in any big way. You may have read a thread I posted yesterday about
him basically saying I shouldn't be feeling THAT ill with it, even though I quite clearly am! I think quite often though it seems the more intestine infected then the worse the symptoms, but as you've just said here thats certainly not always the case and everyone is different. :)
22 year old female, from the UK.
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for IV Hydrocortisone - had no effect!
Hospitalised Feb '09 for a week of IV Hydrocortisone.
Currently taking daily:
20mg Prednisolone tablets (tapering)
5mg Prednisolone suppositories x 1
1g Acetarsol suppositories x 1 (soon to change to Acetarsol)
1g Mesalazine granules x 2