Spinach/Sunflower diet.... symptoms worse?

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geminisunset
Regular Member


Date Joined Sep 2008
Total Posts : 153
   Posted 3/24/2009 9:45 AM (GMT -6)   
I know I read that some people's sypmptoms worsened before they got better when they started the Spin/Sunflower diet. How bad did the symptoms get? How long before you noticed an improvement?
 
I started the spin/sunflower diet on Sat 3/21 (1 cup frozen spinach daily, and about 4-5 tablespoons of sunflower seed butter daily). And yesterday and today there's been an increase in blood and pain while defecating. Should I be contacting my doctor? Should I stop this diet? Or is this normal for things to get worse before they get better?
 
Any advice is appreciated.
GeminiSunset
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Medications: Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda (2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg, increased in March to 7.5mg/kg (started Aug 2008 - 6 infusions so far, next infusion on 4/30 continuing every 8 weeks); Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate)
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (currently taking one daily, will increase to two soon)
Diet: Spinach and Sunflower seed butter diet (starting 3/22/09)
Current Status: Reached remission for a few weeks in October 2008, but symptoms returned after I allowed myself to enjoy wine again.... gave up wine and have not been in full remission again yet. 


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 3/24/2009 10:47 AM (GMT -6)   
Does the sunflower seed butter you bought contain sugar? if yes does increased sugar normally worsen symptoms for you? I know sugar did for me while flaring. The only advice I can give you is to try and find some sugar free sunflower seed butter and see if that helps and suffer through symptoms worsening for a while and hope they improve soon. I don't see what good contacting your doctor will do when he/she more than likely hasn't heard of the diet. I guess they could put you on enemas or something. But if it was me I would try and find sugar free sunbutter and suffer through symptoms worsening for a while because I have seen them worsen for others before improving. Did your stools seem more bulky since starting the diet? If yes maybe that's stretching your colon a little more than it has been used to lately and tearing open some of the ulcers and causing them to bleed more. If that's the case I would think the worsening of the symptoms will pass soon.

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 3/24/2009 11:42 AM (GMT -6)   
I didn't find the s+sf diet did anything for me over several months-- however I know some here say that it helped them and more power to them. In my case, even sugar free sunflower butter flared me up, and very quickly at that. Raw seeds have flared me in the past so I never even tried those. However, as
Cfromutah suggests, if sugar is the culprit and you can tolerate sugar-free sunflower butter, here is where I got mine from: http://www.futtersnutbutters.com/ Theirs is delicious beyond belief and contains nothing but sunflower seeds ground into butter. Good luck.
Pancolitis >20 years, allergic to all 5ASAs
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up 
Currently Remicade and lots of probiotics, tapering pred again, maybe surgery this year
 
 


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 3/24/2009 11:49 AM (GMT -6)   
Probiotic, I thought you only tried the sunflower seed butter for a few days? Because I remember you claiming it flared you more right of the bat and you couldn't tolerate continuing eating it? or did you eat sunflower butter for several months?

geminisunset
Regular Member


Date Joined Sep 2008
Total Posts : 153
   Posted 3/24/2009 11:51 AM (GMT -6)   
Thanks for both of your responses. :) I will be checking the ingredients as soon as I get home. Typically, sugar doesn't bother me too much, unless its syrup or a substitute. But yes, my stools have been more formed (there's still loose stools/mucus, but there are long-forgotten formed stools in the mix!). And now that I think about it, I only went 3 times this morning - so thats an improvement as well. I imagine the formed stools could be the culprit, so I'll hang in there and see if those will heal up soon.
GeminiSunset
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Medications: Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda (2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg, increased in March to 7.5mg/kg (started Aug 2008 - 6 infusions so far, next infusion on 4/30 continuing every 8 weeks); Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate)
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (currently taking one daily, will increase to two soon)
Diet: Spinach and Sunflower seed butter diet (starting 3/22/09)
Current Status: Reached remission for a few weeks in October 2008, but symptoms returned after I allowed myself to enjoy wine again.... gave up wine and have not been in full remission again yet. 


VerM
Regular Member


Date Joined Feb 2009
Total Posts : 101
   Posted 3/24/2009 1:49 PM (GMT -6)   
I almost found more urgency for a while then it slowly got better. I think when they start being formed it pushed the colon out more or something.
I will not be passive.  I will fight until I win.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/24/2009 2:01 PM (GMT -6)   
Regarding your question about should you contact my doctor, ask yourself what you think it will accomplish.
Doctors are likely to dismiss these diet solutions so won't have any helpful advice about it, but are available to prescribe something or order a test/scope , if that's what you want.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, down to 10 mg. Waiting for insurance decison on Humira... 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 3/24/2009 2:07 PM (GMT -6)   
I base whether or not something works for me on my symptoms. If my symptoms get worse, then I usually ate something wrong.

Perhaps its the sunflower seed butter. I would try spinach without the sunflower seed butter and see what happens.

How are you making your spinach? Are you using any other ingredients? If so, it could be the other ingredients.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 3/24/2009 2:13 PM (GMT -6)   
Geminisunset,

You could also try using canned spinach instead of frozen spinach. I find that canned spinach works better for me.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine, 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Mesacol/Asacol enema at least once a week
Spinach & sunflower seed diet


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 3/26/2009 2:53 PM (GMT -6)   
Hi Gemini -
Sorry I missed this post. How are things going? I did get worse in the beginning, because I was eating seeds and fresh spinach (bad idea). Even when I switched, it was still bad for a while (probably because even cooked spinach can be tough on IBS), but by week three I was seeing definite improvement.

Are you eating the spinach following the rules of the IBS website I told you about? Remember to always eat it with lots of soluble fiber (white bread or pasta) to buffer it.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08) and IBS
Status:  Remission
What Worked:  Spinach/Sunflower Seed Diet & IBS Diet (www.helpforibs.com)
What Didn't Work:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol, Iron, Zoloft, Acidophilus.
 
 
 
 
 


geminisunset
Regular Member


Date Joined Sep 2008
Total Posts : 153
   Posted 3/26/2009 3:21 PM (GMT -6)   
Kiss520 - I'm doing much better now. I am wondering if it was just a result of the formed stools - I haven't had formed stools in a long time. I posted more on the other spin/sun thread. Following the IBS diet has made a huge difference too. I was doing a lot of it before reading that site, but now it makes more sense to me (not just trial and error anymore, I have lists to look at! ha ha).
GeminiSunset
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Medications: Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda (2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg, increased in March to 7.5mg/kg (started Aug 2008 - 6 infusions so far, next infusion on 4/30 continuing every 8 weeks); Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate)
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (currently taking one daily, will increase to two soon)
Diet: Spinach and Sunflower seed butter diet (starting 3/22/09)
Current Status: Reached remission for a few weeks in October 2008, but symptoms returned after I allowed myself to enjoy wine again.... gave up wine and have not been in full remission again yet. 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 3/26/2009 5:32 PM (GMT -6)   
It's funny you mention that, because when I started having formed stools, it kinda hurt. I think my colon/rectum wasn't ready for anything that hard.

I'm so glad to hear that you've had such noticeable progress. I get just as excited for other people as I did for myself, because I know what a HUGE relief it is.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08) and IBS
Status:  Remission
What Worked:  Spinach/Sunflower Seed Diet & IBS Diet (www.helpforibs.com)
What Didn't Work:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol, Iron, Zoloft, Acidophilus.
 
 
 
 
 

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