bb224, I would definitely recommend getting a second opinion from another GI specialist, at another practice.
There are a lot of good doctors out there, and unfortunately some bad ones too, so a second opinion can give you some peace of mind about
whether you're pursuing the best options; especially since your GI specialist and family doctor don't agree on some of your treatments.
I have had check-ups with 4 different GI specialists (and in different countries) and though they all offered somewhat similar basic options (asacol, canasa, cortifoam), they had significant differences of opinion on prednisone, imuran/azathioprine, remicade, supplements, diet. I was told that Imuran should have an effect in 3 months, and at the most 6 months.
I haven't heard about
taking 8 imodium a day till imuran kicks in - and you're still going 10-20 times a day. From what I know, if your diet has not changed much then consistently dark/black stool can be caused by blood in the stool, so you're right that the blood just might be getting soaked into the stool instead, and that's why it's not visible.
I'm not sure about
the kidney stones, but hopefully someone else can offer advice on that.
You're very young so I know it can be harder to question the authority of your doctors but I would recommend that you get a second opinion, speak
openly to your GI specialist about
all your concerns...and stay strong!
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine, 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Mesacol/Asacol enema at least once a week
Spinach & sunflower seed diet
Post Edited (Rio in Maryland) : 3/24/2009 1:02:05 PM (GMT-6)