Hi...well, yesterday was the FIRST day of feeling completely normal....so that's 3 weeks of nightly enemas (after the yo-yoing of tapering/reflaring) and I'm going till the end of the month for sure (especially till the hemmies completely heal as well). Remember my flare was extremely mild.
I'm uber impressed with your being able to hold the enema for 4 - 5 hours, and would think it normal if there's inflammation in the sigmoid/rectum to trigger a bm when there's something in there. I would qualify 3 ounces of fluid to be something. I think you're doing pretty good for considering the amount of inflammation and only 2 weeks of nightly enemas.
I wouldn't even consider to taper them for at least another month or more...
If you have dicyclomine, you might consider to take it before bedtime. Maybe don't eat after suppertime and take a fibre supplement to help bulk the stool a teeny bit to help slow it down a bit.
I wouldn't consider you in a place that only after 2 weeks of enemas that you'd need stronger intervention unless you were getting worse.
My take on it anyway....it could also be that the increase of Colazal has increased some of the bowel activity and it might ease once the moderate ulceration quiesces.
Hang tough.....but it does get a bit much when things change on us veterans, doesn't it?
Are you on probiotics as well?
*Heather* Status..Asacol (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!