I noticed nobody responded to your post. Best of luck with getting better. A word of caution with the Entocort. Your doctor may have already told you this...
Osteoporosis: When taken by mouth, long-term use of budesonide may result in weakening of thebones, causing them to have an increased risk for fracture. If you have been taking this medication on a continuous basis, talk with your doctor about
your particular risk for osteoporosis.
I am not saying this to freak you out, but I have osteoporosis from steriod use. I have only ever been on pred twice in my 17 years with UC, but I have taken Entocort enemas many many times. I highly suspect it caused my osteoporosis and I am 35 now.
If you haven't had a bone scan done I would ask your doctor for one so you at least have a baseline.
I hope you get well soon.
I forgot to mention that Entocort worked like magic for me. I imagine you will be feeling better very soon.
UC (Pancolitis) diagnosed in 1992.
Medications: Dipentum, Salofalk Enemas,
prednisone (Stopped 2008), entocort enemas (Stopped 2008), Cortenema (Stopped), Asacol (Stopped 2003)
Other therapies: Spinach & Sunflower Seeds, gluten free, dairy free (except for aged cheese and SCD yogurt), rice free,
HPI (2008), SCD (Stopped, but still make yogurt), Vitamine E enema Osteoporosis diagnosed in 2008.
Medications: None yet, but they want me to take fosamax
GERD diagnosed 2008, but had it forever.
Posted 3/26/2009 11:37 PM (GMT -7)
shortstuff....awesome to hear you're feeling so much better.
I'm curious if you were on Rowasa (or other 5-ASA enema) before trying the cortenemas?
Do you have pancolitis or limited UC? If limited..up to where?
*Heather* Status..Asacol (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!
Posted 3/27/2009 5:43 AM (GMT -7)
Entocort has worked well for me, but my doc insists I taper off after a few weeks and then the symptoms just come right back.
23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.
- Psyllium powder
Posted 3/27/2009 10:42 AM (GMT -7)
I was not on any other enemas first, I started with the Cortenemas. I'm not sure how far up my colitis goes, I don't remember from my original dx 8 years ago...
Hopefully when I start to taper my symptoms won't come back. I have no problem continuing with the enemas to help maintain remission.
Thanks for the support!!
22-High School Student Teacher
Pentasa- 4 pills 3x a day
Entocort 3 pills a day
Currently flaring =/