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shortstuff
New Member


Date Joined Feb 2009
Total Posts : 11
   Posted 3/25/2009 3:23 PM (GMT -6)   
Well, it's been 2 weeks tomorrow since I started the Entocort, and **fingers crossed** it seems to be working!! Along with the Cortenemas every night and 12 Pentasa a day that is. I feel so much better, I am not running to the bathroom as much, the cramps have gotten so much better and overall I feel like there is a light at the end of the tunnel. I hope that this continues so that I can taper off the Entocort and then just use the enemas to maintain. It's amazing to remember what it feels like to have somewhat solid poops again!! =]
22-High School Student Teacher

Pentasa- 4 pills 3x a day
Cortenemas nightly
Entocort 3 pills a day

Currently flaring =/


robray
Regular Member


Date Joined Mar 2005
Total Posts : 130
   Posted 3/26/2009 11:01 PM (GMT -6)   
I noticed nobody responded to your post. Best of luck with getting better. A word of caution with the Entocort. Your doctor may have already told you this...

Osteoporosis: When taken by mouth, long-term use of budesonide may result in weakening of thebones, causing them to have an increased risk for fracture. If you have been taking this medication on a continuous basis, talk with your doctor about your particular risk for osteoporosis.

I am not saying this to freak you out, but I have osteoporosis from steriod use. I have only ever been on pred twice in my 17 years with UC, but I have taken Entocort enemas many many times. I highly suspect it caused my osteoporosis and I am 35 now.

If you haven't had a bone scan done I would ask your doctor for one so you at least have a baseline.

I hope you get well soon.

I forgot to mention that Entocort worked like magic for me. I imagine you will be feeling better very soon.
UC (Pancolitis) diagnosed in 1992.
   Medications: Dipentum, Salofalk Enemas, prednisone (Stopped 2008), entocort enemas (Stopped 2008), Cortenema (Stopped), Asacol (Stopped 2003)
   Other therapies: Spinach & Sunflower Seeds, gluten free, dairy free (except for aged cheese and SCD yogurt), rice free, HPI (2008), SCD (Stopped, but still make yogurt), Vitamine E enema
Osteoporosis diagnosed in 2008.
   Medications: None yet, but they want me to take fosamax
GERD diagnosed 2008, but had it forever.
   Medicaitons: Parriet (Stopped)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30601
   Posted 3/27/2009 12:37 AM (GMT -6)   
shortstuff....awesome to hear you're feeling so much better.

I'm curious if you were on Rowasa (or other 5-ASA enema) before trying the cortenemas?

Do you have pancolitis or limited UC? If limited..up to where?

quincy
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 3/27/2009 6:43 AM (GMT -6)   
Entocort has worked well for me, but my doc insists I taper off after a few weeks and then the symptoms just come right back.
23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.
  • Psyllium powder   
  • Cortenema


shortstuff
New Member


Date Joined Feb 2009
Total Posts : 11
   Posted 3/27/2009 11:42 AM (GMT -6)   
quincy,

I was not on any other enemas first, I started with the Cortenemas. I'm not sure how far up my colitis goes, I don't remember from my original dx 8 years ago...


Hopefully when I start to taper my symptoms won't come back. I have no problem continuing with the enemas to help maintain remission.


Thanks for the support!!
22-High School Student Teacher

Pentasa- 4 pills 3x a day
Cortenemas nightly
Entocort 3 pills a day

Currently flaring =/

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