Hello to all my old friends and a ne hello to all those I don't know here - on Ostomy forum now

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schrek-chewbacca hunk
Veteran Member

Date Joined Jun 2005
Total Posts : 2666
   Posted 3/25/2009 7:59 PM (GMT -6)   
I have been there for a couple of months and I am going in for a complete ileostomy and rectum removal on the 16th.  In between I am going in for pre-op tests and the required reading and ostomy meetings at the hospital.
I wanted to thank everyone here for allowing me to be a mod several years ago, and to all the people who supported me and provided a fellowship of love.
To the newer people who I have never met, I hope your journey to remission is a good one, and hang in there...there are lots of people in remission who you never hear a peep from who have this dd,
To the doctors and drug makers who I have to say gave me some very good years along the way - and the remission that I was so looking forward to.  (I had to stop remi as I am taking drugs incompatible with any immuno-supprescent for my Charcot disease diagnosed 2 years ago).  I have great visions of healing with new drugs and therapies, holistic and pharma.
In the meantime, my path is following a different way now.  And for me, having two diseases was just too much to fight.  My wonderful doctor agrees - and if anyone in the Wash DC needs a great GI, give me a line, as he has done everything including giving me his cell phone when I was in the hospital.  He is a saint.
And all are you.  I will be in the Ostomy room, just next door.  I will try to pop in to see what is going on here and say hello from time to time.  And please don't be afraid of the Ostomy room.  There is a magical spirit there as well.  And there is great information if anyone needs to ask.
With all my love here and many thanks to all
schrek chewbacca   

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 3/25/2009 8:47 PM (GMT -6)   
Hey schrek nice to see ya, please know I'm sending all my best wishes for your ileostomy and rectom removal, I'm sorry it had to come to this and I hope your other health issues have improved?

Keep in touch and take good care!

My bum is broken....there's a big crack down the middle of it! LOL :)

potty girl
Veteran Member

Date Joined Dec 2006
Total Posts : 835
   Posted 3/25/2009 9:01 PM (GMT -6)   
good to hear from you Bob, hope everything turns out good for you. wishing you a speedy recovery

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,

Regular Member

Date Joined Nov 2008
Total Posts : 339
   Posted 3/25/2009 10:28 PM (GMT -6)   
sending you lots of wishes - everything turns out well
I will pray for your fast recovery :-)
Right now -FLARING (after my Rubella vaccination)
Diagnosed in Jan'2009: Canasa suppositories 1000 nightly...doubled during flare
Symptoms: Mucus, blood, constipated (not always), Lots Gas & No D!
Also gifted with Hypothyroid & have calicum deficiency family history!
Meeting with Doc next month - not yet on oral medication - Doc wants to try just Canasa first!
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09

Regular Member

Date Joined Mar 2009
Total Posts : 45
   Posted 3/26/2009 12:27 AM (GMT -6)   
I feel like I should refer to you as Mr. Schrek since you are a noted veteran and I'm new to the site. I appreciate your fine attitude. You obviouslly have quite a following.
i appreciate your encouragement - as one who after 11 tough years on the prednisone, suppositories, asacol, Lialda, Immuron, Assacol and now Cimzia injections - if this last one doesn't do it - I may meet you at the next forum too. I am seriously starting to think about getting rid of this diseased colon.

Thank you for the brave and elloquent words you shared.

Elite Member

Date Joined May 2003
Total Posts : 30993
   Posted 3/26/2009 12:54 AM (GMT -6)   
Hi Bob....it's awesome to see you!!! I do hope your surgery goes well and that the recovery time isn't long.

It's good the decision has been made to allow you relief from the suffering that's continued from UC. You've definitely given it your best fight....and more.

Your strength, encouragement and optimism always touches me.

Healing thoughts and best wishes to you and Mrs. Schrek.

Heather xx
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Veteran Member

Date Joined Jul 2005
Total Posts : 1614
   Posted 3/26/2009 4:10 AM (GMT -6)   
Nice to hear from you Bob. Hope everything goes well for you
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 3/26/2009 6:38 AM (GMT -6)   
I know you've had a very tough road in the past and I am wishing nothing but the best for you in the future. Speedy recovery and happy thoughts! You have always been the teddy bear rock here for so many people that I feel blessed to have known you. God bless Bob and tell the wife that she is an awesome lady as well.

Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE


Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 3/26/2009 10:26 AM (GMT -6)   
I'm new, so I don't know you, but best of luck with surgery and recovery!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).

Old Hat
Veteran Member

Date Joined Feb 2007
Total Posts : 5190
   Posted 3/26/2009 2:51 PM (GMT -6)   
May the April 16th surgery be a totally positive turning point for you, including the Charcot's disease, too. You have certainly endured more than your share over the past two yrs! I'm wishing all the best to you & your wonderful wife. It's good to know that you intend to "visit" us on this forum in the future; we look forward to that! You might find some helpful insights from reading Paul L's posts here from Oct.-Dec. '08 about his colectomy experience in Toronto-- he's about your age, I think. / Old Hat (30 yrs with left-sided UC; presently fighting off flare in sigmoid colon)

schrek-chewbacca hunk
Veteran Member

Date Joined Jun 2005
Total Posts : 2666
   Posted 3/26/2009 3:49 PM (GMT -6)   

Yes, my wife Philsy is glad about the decision but worried about the operation, as can be expected. 

Thank you for thinking of her, She will be so happy.  She knows how much in terms of blesssings I have received from you all.

By the way, when I came out of the nursing home and hospital from 8 operations with Charcot and a flaring UC, I lost 100lbs. 

As some of you might remember, my wife although a techie by profession is a marvelous seamstress.  You may remember all the wonderful clothes she made for me to make me feel good during UC.  Sadly, I have been in sweats mostly since my release, but the old girl says she will make me all new clothes.  Even she can't take in that much material - someone at Goodwill will be looking very dapper indeed.

It is expected that I will probably loose a bit more weight before starting to put some on again.  I had to get new glasses even.

Anyway, I will show her these messages and she will be happy.  Bless you all.






Regular Member

Date Joined Sep 2006
Total Posts : 78
   Posted 3/26/2009 6:14 PM (GMT -6)   
Bob, I wish you all the best with the surgery.  It seems that we are neighbors!  Who is your doctor?  I've been going to one I like, but it is always good to have another option.  What hospital are you having the surgery in?  Just curious...although I hope surgery is not in my future :) 

Leslie, 30~ left-sided UC diagnosed in 1999
9 asacol x day
nightly rowasa (as needed)
multi-vitamin, calcium

lil slowpoke
Regular Member

Date Joined Sep 2006
Total Posts : 290
   Posted 3/26/2009 6:40 PM (GMT -6)   


 Good to hear from you, I've thought of you often , I miss your thoughtful and amusing posts. I'll never forget your tale of going to a halloween party as 'tinky-winky'.  Be well,


uc since feb '05
colazol 9 day, calcium, multivitamin, fishoil
atenolol, bc pills,( for migraine relief )
still on canasa
stonyfield farm yogurt

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