Newly diagnosed

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Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 3/25/2009 10:22 PM (GMT -6)   
Hey.

I'm a 21 year old female student. I was diagnosed with ulcerative colitis a few weeks ago (affecting about half of the colon, up to about the middle of the horizontal section on the top), though I've been suffering symptoms for about two years. I was misdiagnosed with antibiotic associated colitis the first time I remember having a flare-up. I then spent the next two years with stomach problems on and off, with doctors telling me I had gastroenteritis each time I had a flare-up or otherwise refusing to believe that I was sick at all. I once had a triage nurse in the ER accuse me of having Munchausen's (she kept asking me if I wanted to 'talk to someone' and saying generally rude things)-if anyone else has had this problem please let me know because I'd like to know that I'm not alone. I recently found a great GI who has been treating me, though.

I'm on a tapering dose of prednisone to get my recent flare under control, plus asacol (3x400mg, 3 times a day) for maintenance. So far it's been working great, I haven't had bleeding or diarrhea since taking them and I'm really surprised at how fast they started working. Though, I feel bad for my boyfriend dealing with my mood swings from the prednisone.

Right now I'm trying to figure out if any foods specifically aggravate my stomach-I know both alcohol and caffeine have been causing me problems. Can anyone suggest a way to do this? Are there any foods that will specifically help to prevent flare-ups?

Also, any tips on managing or experiences are welcome. It would be nice to feel I have someone to talk to about this as I only know one person with UC in person.

sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 3/25/2009 11:00 PM (GMT -6)   
i'd try to eliminate dairy and see if it helps... and maybe slowly reintroduce it to see...

keeping a food diary is great to see what you're eating, what's affecting you etc... remember that usually the rule is that its what you ate 3 days ago that's causing the symptoms that day lol. Just look for patterns

Mostly it's just trial and error

Also i'd try eliminating fried foods, spicy foods, fattening foods... I know red meat is really hard for me. Raw veggies and fruits... (salad's a big no no for me)

I don't do popcorn or corn period hahaha.

what else...uhh.. I dunno I think what you're going to find is it's VERY case by case... suited to the individual. Everyone has a diff diet they've found to work or not work for them. It takes time and can be very frustrating...sorry.
Kara, 22F Married.
Latest-Went to ER cuz I couldn't eat for 5 days and was having severe flare up after passing two kidney stones after a week of the flu. (long month)
GI tried to taper me off of pred fairly fast in hopes to keep me on Lialda and at a lower dosage of pred. to try mesalamine enemas again.  Starting the Imuran as soon as labworks done... longer pred time....yippee *rolls eyes*
Medications:Prednisone 40mg Again! (groan)Lialda 4 a day until Imuran
I am so sick of this disease!
 
 


Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 3/25/2009 11:07 PM (GMT -6)   
Actually, I've found dairy does pretty much nothing to me, which is odd because I know it bothers a LOT of people (even people who don't otherwise have digestion problems). I've been told to cut it out in the past but noticed no change in symptoms.

I started a food diary a few days ago, but wasn't sure how to correlate any problems with when I ate what. Thanks for letting me know that.

I've been staying away from fried foods for the most part, they're just not very appealing to me anymore. Same with processed fatty stuff (like packaged cupcakes).

sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 3/25/2009 11:10 PM (GMT -6)   
yeah... well good for you that you don't have issues with dairy... that's seriously awesome! haha

I forgot also.... I found artificial sweeteners are a big no no for me and limiting real sugar.. I really don't know how to cut out both so I just opt for small amounts of sugar hahaha

you'll figure it out ya sound smart... hehehe my email is posted if ya ever wanna talk...my im names too.
Kara, 22F Married.
Latest-Went to ER cuz I couldn't eat for 5 days and was having severe flare up after passing two kidney stones after a week of the flu. (long month)
GI tried to taper me off of pred fairly fast in hopes to keep me on Lialda and at a lower dosage of pred. to try mesalamine enemas again.  Starting the Imuran as soon as labworks done... longer pred time....yippee *rolls eyes*
Medications:Prednisone 40mg Again! (groan)Lialda 4 a day until Imuran
I am so sick of this disease!
 
 


Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 3/25/2009 11:28 PM (GMT -6)   
Yeah, I know. I mean, I don't like plain milk much, but I'm really glad I can have cheese and frogurt. <3

Sugar AND artificial sweeteners would be rough to cut out-they're EVERYWHERE. Is it all artificial sweeteners or just some that bother you? Anyway, I guess I'll see what if that helps.

I will keep that in mind. =)
21, female, diagnosed 3/6/2009
Currently taking Asacol (3x/day) and Prednisone (tapering dose)

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