Don't Know What To Do...HELP!!!

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FightingChance
Regular Member


Date Joined Sep 2008
Total Posts : 44
   Posted 3/26/2009 5:07 AM (GMT -6)   
Hi,

So, I just got this new job and I'm excited for it. My first day is tomorrow but in the email that the boss sent me, it said that her and I might be traveling to a meeting tomorrow 30-40 minutes away from the office...together!!! Now, I have the urgency problem, and I'm kinda flaring right now, so I don't know how to handle this issue. I know it will be relatively uncommon to have to travel for this job with anyone else in the car, but I have had accidents before and that would be the most MORTIFYING THING IN THE WORLD!!! And, on the other hand, if I get in the habit of holding it, let's say I can even do that, then I have a problem being able to actually go when I can get to a bathroom! I am almost considering not going to this job and not taking it. What do you think I should do????

Help!!!!

Ouchie2
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 3/26/2009 6:34 AM (GMT -6)   
Tell him you would like to take your own car ..thats what I do hehehehe....
38 year old female
UC - Diagnosed 2006
HLA-B27 Gene
Iritis 2008
4 x Asacol
100mg Mercaptopurine (6MP)
Doxycycline


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/26/2009 7:19 AM (GMT -6)   
Or you can take one dose of Immodium to help you in this case.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


geminisunset
Regular Member


Date Joined Sep 2008
Total Posts : 153
   Posted 3/26/2009 7:47 AM (GMT -6)   
I would see if you can take your own car and meet your boss there. Tell her you prefer to drive because your stomach acts up as a passenger. I know for me, UC aside, I get car sick easily (not so I throw up or anything, but I feel sick to my stomach). If she wants to ride with you instead, tell her you spilled a pop on the passenger seat or something, lol.

Good luck!
GeminiSunset
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Medications: Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda (2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg, increased in March to 7.5mg/kg (started Aug 2008 - 6 infusions so far, next infusion on 4/30 continuing every 8 weeks); Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate)
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (currently taking one daily, will increase to two soon)
Diet: Spinach and Sunflower seed butter diet (starting 3/22/09)
Current Status: Reached remission for a few weeks in October 2008, but symptoms returned after I allowed myself to enjoy wine again.... gave up wine and have not been in full remission again yet. 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/26/2009 9:09 AM (GMT -6)   
I understand, this is a serious worry, been there.
Don't eat anything or drink coffee or soda. Give yourself extra time in the bathroom before your ride, then take 2 immodium about 20 minutes before you go. Thirty minutes in the car, you'll be OK...just keep telling yourself that. Can you at least be the driver? I find that gives me control and helps a lot. Roll the window down a little to keep cool, keep the radio low. You'll probably be talking away and be distracted and the time will fly by. Can you wear a pad, just for peace of mind? And wear something roomy so there is no pressure on your gut.
Remember, you'll be OK.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, tried to taper but now back up to 20-30 after several really bad days. Waiting for insurance decison on Humira...soon... 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/26/2009 10:15 AM (GMT -6)   
I am a very open person, so I'd probably come out and say that I have a chronic condition that can cause you to need to get to a restroom very quickly. Explain that it's usually quite well controlled, but that you're having a bit of a flare up right now, and that you'd feel more comfortable if you could drive yourself so you can stop if need be. Then I'd wear some disposable undies, too!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 3/26/2009 10:21 AM (GMT -6)   
I'd probably come out and say that I have UC and what it entails but not all people are open enough for that. I would take an immodium and take your own car. And the more you worry about it the more likely it is to increase urgency. Don't let UC keep you from taking a job you're really excited for!
Sam(antha)
20 year old medical technology/biology student
Remission since January/April 2006
4 400mg Asacol 2x daily, 10mg Elavil, 75mg Effexor XR for GAD, ortho lo

"Life is what happens when you are busy making other plans"
John Lennon


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/26/2009 7:41 PM (GMT -6)   
And, as usual, I would not tell.
No employer is going to be pleased to learn they just hired someone with a chronic disease. And if I had a new employee who wouldn't ride with me, it would really start things off on the wrong foot.
At most, if you are pretty sure you can't make it, then say you are having a little colitis, never know when it will hit. Play it down, not up.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, tried to taper but now back up to 20-30 after several really bad days. Waiting for insurance decison on Humira...soon... 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/27/2009 7:55 AM (GMT -6)   
Peety, is it true that now that Uc is recognized in the ADA that we are protected from employers who discriminate against chronic illnesses? If so, wouldn't it make sense to tell the employer of what we have?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/27/2009 1:28 PM (GMT -6)   
Supersaw, with some people it CAN interfer with their ability to do their job. Let's say you have a job as a receptionist and you are running to the bathroom every 5 minutes, how can it possibly NOT interfer with your job. It all depends on the situation and the job requirements. To say it won't interfer with your job is too geneneralized because there can be exceptions.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 3/27/2009 3:47 PM (GMT -6)   
I'm a very honest person. In fact, I've been told not to tell so much. Anyway, if it were me, I would tell her that I have UC and that we may need to make a bathroom stop along the way. People are very understanding when I tell them I have UC. Plus, I like driving together. I get to chat and learn more about the person I'm with.

If you have trouble with letting your boss know though, then you can always say you get car sick when you are a passenger and would prefer to take your own car.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/27/2009 6:08 PM (GMT -6)   
Even though the law can require them to give you a reasonable accommodation....who wants to start out a new job making demands like that? Ah ha, you hired a disabled person and didn't know it, now instead of solving your problems I'm a problem for you to solve. It's human nature, they will resent it. Not everyone is going to be compassionate as you might hope, when it comes to their pocketbooks -- or the impression they are making up the line with their decision to hire you -- affected. And if they handle it wrong, you've got a legal battle on your hands that is going to make you sick and tired.

If you need an accommodation to keep you job, it is your right to ask for it. But don't expect them to be happy about it. The job market is just too competitive to risk it, in my view, if you don't have to.

This disease is absolutely chronic! And I often notice people in jobs and think, geez, I could never do that with this stupid disease...what freedom they must enjoy that they probably don't appreciate....

Anyway, off my soapbox. FightingChance, how did it go?????
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, tried to taper but now back up to 20-30 after several really bad days. Waiting for insurance decison on Humira...soon... 


missea86
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 3/30/2009 5:08 PM (GMT -6)   
I would be very careful telling a brand new employer of the prob. even though they can't legally fire you for it. They will not be happy about the insurance ramifications and because you are brand nw could possible be legally allowed to let you go.
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