Recently diagnosed with colitis

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Regular Member

Date Joined Mar 2009
Total Posts : 27
   Posted 3/26/2009 6:09 PM (GMT -6)   
Following syptoms for weeks and colonoscopy yesterday, I have now been diagnosed with colitis and was given a box of patient-sample Lialda prescription to take until the follow-up appointment scheduled coming Monday. Until last evening, I had no idea about an ailment called colitis, but since then I have been reading up on it. For this appointment, I'm now preparing questions to ask my doctor and need some help and advice. Further, on my colonoscopy pictures, I have colitis listed on certain sections of my rectum, sigmoid, transverse colon and cecum, but not others. Nothing also on any sections of my ascending colon. Does this mean that I have pancolitis? My symptoms are blood in the stool and diarrhea/constipation. And when I have diarrhea, I'm going two or three times. No other symptoms. Is this good or bad? Also, he took some biopsy samples- why? Thanks, in advance, for your help. 

Regular Member

Date Joined Feb 2009
Total Posts : 63
   Posted 3/26/2009 9:26 PM (GMT -6)   
Hi rummy,
Sorry to hear about your recent diagnosis.
The biopsies are taken to determine if its UC or Crohns....Your symptom sound normal for UC. Sorry I can't answer more of your questions. Hope you start to feel better soon.
Female 33 Married
diagnosed January 2009
mild pancolitis
Sulfasalazine 500mg 3X

"The Lord is my Shepherd"

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 3/26/2009 11:38 PM (GMT -6)   
Pancolitis is inflammation of the entire large colon...I hope the meds work for you and you get into remission very quickly and stay there for a long time...I know it's overwhelming, especially when like you say, you've never even heard about colitis before, it was kinda the same for me when I got sick with crohn's (another form of IBD, inflammatory bowel disease), I had only heard the term crohn's but had no idea what it entailed, boy I sure found out the hard way...but hopefully the meds will work great for you...2-3 times of D with blood is not too bad, of course it's hard to rate what's good or bad for others, but as you read through the forum and learn that many go 10+ times a day then it'll give you a bit of a guideline...he would have taken biopsies for a couple of reasons, 1) to make sure there are no pre-cancerous cells and 2) to help determine/confirm UC.

Feel better soon, and educate yourself as much as possible to help you get somewhat of a handle on this dreaded disease.

My bum is broken....there's a big crack down the middle of it! LOL :)

Elite Member

Date Joined May 2003
Total Posts : 30216
   Posted 3/27/2009 12:32 AM (GMT -6)   
Hi..welcome to the forum!

It sounds more like CD rather than UC considering you don't have a consistent inflammation pattern.....colitis is a clinical term for inflammation in the colon....but there are other "colitis" that can mimic either such as microscopic colitis or c.diff..etc.

The biopsies should lean toward or exclude possibilities. I do hope that you'll be able to get a definitive diagnosis.

The Lialda should help get some of the inflammation down and help with your symptoms.

Looking forward to hearing the results of your biopsies...please keep us posted.

Hope you start feeling better soon.

*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Regular Member

Date Joined Nov 2008
Total Posts : 33
   Posted 3/27/2009 7:37 AM (GMT -6)   
I agree with quincys suggestion that your areas of inflammation sound more like CD rather than UC since you have areas of no inflammation then another spot at the begining of the colon (cecum). Hopefully the biopsys will determine whether it is CD or UC and your meds will help you gain remission quickly.

Take Care
Dx'd June 08 severe UC (pancolitis), symptoms for years before dx
30 yrs old
Asacol 400mg x 9, Prednisone 40mg tapering off now
6-mp 100mg, Canasa
Probiotics x3/day, Ominvite Multivitamin

Regular Member

Date Joined Mar 2009
Total Posts : 27
   Posted 3/27/2009 8:46 AM (GMT -6)   
Thank you nucid, quincy, pb4 and UC_Dad. Guess, I will know for better on coming Monday. Will post again then. Take care, you all.

Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 3/27/2009 9:16 AM (GMT -6)   
Welcome to the forum, although I'm sorry that you're here. I also wish you lots of luck with your treatment. Let us know what your doctor says on Monday.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg 20mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).

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