Posted 3/27/2009 9:47 PM (GMT -6)
Thanks a lot, I will purchase it... although I will wait until my meeting with my N.D. which will run a few tests to see what certain foods cause problems in my intestines...
you rock princesa! cheers
Posted 3/28/2009 7:12 AM (GMT -6)
After extensive research into many many things, I have found the following supplements are directly linked to help IBD:

VSL#3 or Natren Probiotic
Omega 3 Fish Oil
Vitamin D

That's what I now take and will keep everyone updated. I am also seeing a Homepathic on the UK Free Health Service. There has got to be a way out of this, God Willing.

Has anyone also tried Reiki? It is simply amazing but you must used a Reiki Master not just any one.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patchy Colitis. Also suffer from Peptic Ulcers could be related to Asacol. Current Medication: 500mg Asacol Suppositories, 800mg Asacol Tablets x 2 a day.

Posted 3/28/2009 8:44 PM (GMT -6)
Mitzo said...
I was taking a teaspoon in a glass of water once a day for 3 weeks - no help, and I think I read somewhere that L glutamine may cause diarrhea in some cases?

Actually, l-glutamine helps control diarrhea and, if anything, would be more likely to cause constipation at doses too high for the individual.
LondonRed said...
After extensive research into many many things, I have found the following supplements are directly linked to help IBD:

VSL#3 or Natren Probiotic
Omega 3 Fish Oil
Vitamin D

Yep, those are the things that have worked well for me and there's plenty of research and info out there on each one, explaining why they are helpful in the treatment of IBD.
Diagnosed with ulcerative colitis spring 1999.
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.

Post Edited (princesa) : 3/28/2009 7:47:40 PM (GMT-6)

Posted 3/28/2009 10:00 PM (GMT -6)

I have seen the literature re. 10-40 grams a day and to be honest, cannot fathom how that is possible without not having a bowel movement perhaps for many days, because even 5 grams or so is quite constipating, in my experience.  Glutamine acts as a powerful diuretic: it diverts body fluid flow to the bladder, away from the colon.  Hence it is powerful as an anti-diarrhea.  However, in my experience it had no anti-inflammatory effects whatsoever- purely the diuretic effect.  If I took more than 5 grams a day, I would often be blocked up for over 24 hours, all the while with no real stool forming.  So tremendous pressure would build up inside with gas, etc., and pain would actually be worse.   On top of this, I have come up on a couple studies in pubmed that indicated, paradoxically, that glutamine increased some measures of inflammation.  I am skeptical but I will see about digging up the links.  All I'd say is, be careful if you decide to try glutamine- start off with one or even half a minimal serving size a day- or less- and make sure it is not too constipating.  I used to take it in small amoutns to slow down heavy D days but I don't take it for maintenance because I never noticed any effect on inflammation.


Pancolitis >20 years, allergic to all 5ASAs
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up 
Currently Remicade and lots of probiotics, tapering pred again, maybe surgery this year

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