Wedding tomorrow night

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Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 3/27/2009 12:48 PM (GMT -6)   
I am in the wedding party tomorrow night and I am flaring big time. My BM's are in excess of up to about 20x again per day sometimes more. I am dying here. is there anything I can take to get me through the day and most of all get me through standing up at the altar w/o having to make a mad getaway!

AnnaG
Regular Member


Date Joined Apr 2008
Total Posts : 191
   Posted 3/27/2009 1:04 PM (GMT -6)   
Gosh poor you,I think most people reading this will say the same as me get to the chemist and get some immodium,just as a one off,d'ont drink any coffee,tea,just sip water and try to eat only small portions,
and take a bag with baby wipes,and a couple changes of underwear,belive me I've had to do this many a time
Oh and no alcohol I know at a wedding!
Hope that helps Takecare Anna

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/27/2009 1:14 PM (GMT -6)   
I guess the only thing to try is Imodium...unfortunately, it doesn't do a thing for me when I'm in a bad flare like that. But, you could go ahead and get some and try it tonight to see if it helps. I'd probably also get some disposable underwear. Sorry to hear about the bad timing.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg 20mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 3/27/2009 3:08 PM (GMT -6)   
i'd recommend the immodium as well. Start with the max dose. When flaring I take immodium when flying or other times when going to the water closet every twenty minutes isn't feasible.

Good luck, and remember to have fun. Don't spend the whole time worrying about your UC.
 
36 y.o. male
Diagnosed w/ UC in May '06, had symptoms since '99
Meds & supplements: LDN 4.5mg, Florastor, Lialda, Allegra, multi-vitamin, buproprion, fluoxetine, vit E, D, and zinc.
 
Eating a low sugar and wheat, and no dairy diet.


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 3/27/2009 3:24 PM (GMT -6)   
thanks, guys. I will def. try the immodium.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/27/2009 5:19 PM (GMT -6)   
Eat light and easily digestible food tomorrow, too. Try a gas-x too, can't hurt. I hope you're OK!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, tried to taper but now back up to 20-30 after several really bad days. Waiting for insurance decison on Humira...soon... 


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 3/27/2009 9:01 PM (GMT -6)   
I think I am getting to the point where I am going to have to go to the hospital instead. I can't even keep things down anymore and going to the bathroom 2x/hour sometimes more. This is horrible. What a friggin horrible disease this crap is. I may miss my best friends wedding now because of this. God darn ... sorry for the rant. I am just in a lot of pain right now.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4201
   Posted 3/27/2009 9:09 PM (GMT -6)   
I don't have any suggestions except for the immodium. Maybe if you go to the hospital, they could put you on pred, though I don't know how fast that works as I've never been on it. Sorry you are feeling so bad right now. Yeah, this disease definitely sucks big time. I hope you don't have to miss your friend's wedding, but I'm sure he or she will understand if you have to. Take care of yourself.
25 years old; <FONT color=#0000ca nights 3-4 every> Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops; Ortho Tri-Cyclen


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/27/2009 10:02 PM (GMT -6)   
That really sucks Anthony, it's one thing to be a guest but to be in the wedding party makes it that much worse....sometimes desperate times call for desperate measures, definitely think you should give the imodium a try and my own personal experiance tip is doing a phospho enema first thing when you get up in the am, to at least try and clear out what's sitting in the colon/rectom close to being on it's way out...I've done this and as horrible as those enmas are they have helped during desperate times...I hope things work out in your favor for tomorrow.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 3/28/2009 1:19 AM (GMT -6)   
i'd totally give you one of my hydrocodone if i could man
Kara, 22F Married.
Latest-Went to ER cuz I couldn't eat for 5 days and was having severe flare up after passing two kidney stones after a week of the flu. (long month)
GI tried to taper me off of pred fairly fast in hopes to keep me on Lialda and at a lower dosage of pred. to try mesalamine enemas again.  Starting the Imuran as soon as labworks done... longer pred time....yippee *rolls eyes*
Medications:Prednisone 40mg Again! (groan)Lialda 4 a day until Imuran
I am so sick of this disease!
 
 


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 3/28/2009 7:44 AM (GMT -6)   
Again, thanks guys. I just boosted myself back up to 40mg on Prednisone. I had no choice. Apparently I am going to be on 6MP soon because I can't come off the steroids. Now I just hope that nothing gets screwed up. Wish me luck.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 3/28/2009 4:12 PM (GMT -6)   
      Let us know how you make out Anthony.  Hope you can stay out of the hospital.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


jays_fan
New Member


Date Joined Mar 2009
Total Posts : 12
   Posted 3/28/2009 5:28 PM (GMT -6)   
In my experience, a couple Tylenol-3 with codeine can shut you down minimum four hours depending on your body weight. I've also used immodium, but it doesn't respond well to my body during a heavy flare-up (nausea, bad gurgling sounds, discomfort); also, it can stop you up (if you take too much) which can apprarently distend your colon. I'm not a doctor though and am only replying through personal experience. Hope you improve soon!

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 3/29/2009 1:31 AM (GMT -6)   
Anthony; how did everything work out?
Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 3/29/2009 12:01 PM (GMT -6)   
Well, I made it through the wedding. I think the boost on the prednisone def. helped. I was getting pretty nervous up at the altar and one of my friends was noticed me starting to turn pale and start to sweat. Either way. The groom was very happy I made it and I must say I was very happy I was there for him. Thank you guys. Now I am paying the piper as we speak, but, again, I am glad I made it and I am glad you guys helped out!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/29/2009 12:45 PM (GMT -6)   
What a relief that you made it, hope you were able to enjoy the rest of the wedding, even without having an IBD it can be pretty nerve-wracking stand up at the alter (usually even tougher on the bride and groom LOL), but I'm glad it all worked out for you.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/29/2009 3:01 PM (GMT -6)   
yay!
For future reference, I found lots of churches have a bathrooms not far from the altar near whatever door is used at the front of the church.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, tried to taper but now back up to 20-30 after several really bad days. Waiting for insurance decison on Humira...soon... 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 3/30/2009 7:25 AM (GMT -6)   
Great to hear Anthony, glad you made it through the ceremony! That was a rough one I'm sure.

Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 3/30/2009 8:12 AM (GMT -6)   
     Glad you made it through the ceremony Anthony.  When I am flaring, I miss Mass.  The bathroom is in the basement of the church and I KNOW I would never make it downstairs in time.  Are you still taking the prednisone?  Can't quit that cold turkey ya know.  It may have devastating results.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 3/30/2009 8:18 AM (GMT -6)   
Wow congratz on making it through that! :-)

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 3/30/2009 8:50 AM (GMT -6)   
glad to hear you made it through!!
I know my own wedding was very nerve-racking!
I almost had to run down the aisle myself!! haha

Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 3/30/2009 2:16 PM (GMT -6)   
Yeah, I am doing the standard tapering again. I just started 6MP so hopefully that will fully get me off the prednisone since I can't seem to live w/o the steroids right now. It sucks!

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 4/1/2009 5:52 PM (GMT -6)   
     I've been on 6MP for over five years.  It will take anywhere from three to six months to kick in with the prednisone.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16284
   Posted 4/1/2009 5:59 PM (GMT -6)   
I had the same exact situation a few weeks ago. I wasn't flaring too badly but I was still nervous that my flare might get worse before the wedding and I would have to run off the altar. I am happy you made it through. It is horrible to miss these experiences over crapping.

Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December 08 but had symptoms months ago - Treating with Asacol 400mg (9 a day)


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 4/2/2009 7:53 AM (GMT -6)   

Glad to hear you made it through something that could have been awful.  That's great news. 

I know this is a bit late, but in case anyone is wondering, when I used to have something important to do while flaring, I would take a dicyclomine (anti-spasmodic) and some Tylenol or Hydrocodone.  It can make you a little groggy, but it totally relaxes your bowels and even your nerves (which can be good when standing up in wedding).


DX:  Pancolitis as of 9/08 (Proctitis as of 1/08) and IBS
Status:  Remission
What Worked:  Spinach/Sunflower Seed Diet & IBS Diet (www.helpforibs.com)
What Didn't Work:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol, Iron, Zoloft, Acidophilus.
 
 
 
 
 

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