Hi...totally sucks regarding your diagnosis...I don't remember you were being checked for it, but it's good the doc did so.
I'm impressed you didn't have the ERCP....to me, that's a good thing.
Did the doctor put you on URSO?
PSC isn't as rare as one might want to believe. The goal will be for it to not be into an active state. Yeah, it's good it's slow at progressing for those of us it does in that pattern. It doesn't for all, however..
Do the research...it's quite scary to do the reading, however....but it's still good to know.
You could try http://pscpartners.org/
for some good information on PSC.
*Heather* Status..Asacol (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!