Sorry to hear about
your sufferring. Well please do not worry as they say worrying is like sitting on a rocking chair. You feel you have a lot to do, but it takes you no where. My suggestion is that while tapering down you should stick to 40-35-30-25-20-15-10-5-2.5mg. The tapering should be 5 mg per week. This helps in preventing flare ups as the our body's own constitution produces pred/steroids. But the process is slow in case of flare ups and one has to taper down slowly.
I hope you are taking calcium and Alpha D to prevent side effects and calcium loss, which is normal in case of pred and leads to osteoporaris. Don't worry about
your moon face or about
facial hair as pred. leads to water retention and this goes off once you are off pred.
Have you tried cortison enemas/mesacol foam enemas. They are quite effective in case the UC is in the lower part of the colon.
Would you like to try some natural cure. Fresh grown yellow Turmeric is very good cure for UC. Lots of people have been benefitted including on this forum. I always recommend this to others as I myself used to take it to go in remissions, when other things failed. Boswalia/Sallaki is another herbal/ayurvedic medicine. Besides this one can also try fresh pumpkin juice. There are lots of postings by me on this forum. Please check.
Should you need any further assistance, please free to get back. Keep me posted. You will be in my prayers. Please do not take too much stress as it would aggravate the flare up. Relax - go for meditation-yoga-morning walks.
Another very important piece of advice. Do not take prednisolone in the evening or night time. Please have it in the morning, preferably with milk to reduce its side effects.
45 years Male
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
on Combiflam, Multivitamins and restricted diet.
Tried Sallaki/Turmeric/Homoepathy/Allopathy/Chinese/Unani/Ayuvedic/Yoga before going for surgery
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."