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rummy
Regular Member


Date Joined Mar 2009
Total Posts : 27
   Posted 3/30/2009 11:00 AM (GMT -6)   
In a few hours, based on my colonoscopy and biopsy results, I will get the verdict from my GI on what is it that I'm afflicted with. So far, all indications point to some type of UC. However, from reading sites/literature and also responses by a few members to my early posts, it may be Crohn's Colitis.
 
Life in the past couple of years has been incredible- met and married the love of my life, honeymooned overseas, settled into a nice apartment, achieved success professionally, been able to support my family, etc. However, today afternoon, there will be a cruel twist in my life. I feel numb, sad, angry and real afraid. What is my life going to be like? How am i going to deal with the pain and sufferring? Why does my new wife have to put up with this? Can i manage my daily activities? How long can I live? Can I have a family with kids?
 
I'm supposed to be at work. But, I don't feel like going in. Rather than feel like a volcano about to erupt, I thought I'll seek release by coming here and talk to my future family and friends. These are all emotions you folks have gone through and continue to go through. I'm a rookie and hence pardon my frustrations. Any words of encouragement and thoughts would be nice......
 
 
 
 

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/30/2009 11:28 AM (GMT -6)   
When you are diagnosed with a chronic illness you pretty much go thru the grieving process as if you lost a loved one. Fear, Denial, Anger and Acceptance in no particular order. If indeed you do have an IBD, I won't lie and say the road will be easy because it's not. But how you choose to travel that road is up to you. You can become bitter and angry but to what end? You have to look for your inner strength and build from there. You will be faced with many challenges that's no lie. No one knows what the future holds and doing the what if's will get you no where. So it's best to take one day at a time, try not to think about the future too much or you will drive yourself nuts. But the most important tip I can give about having an IBD is be proactive. Teach yourself everything there is to know about this and recognize the early signs of a flare. The sooner you know your body the easier it will be to recognize a flare when it happens. But until then, do not fear coming on here and asking questions regardless how dumb you think it may sound. On here there is NO dumb questions.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
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AnnaG
Regular Member


Date Joined Apr 2008
Total Posts : 191
   Posted 3/30/2009 11:31 AM (GMT -6)   
I so feel for you,I was feeling pretty much the same God its nearly three years ago,I have been changed completly as a person by this disease and my kids and partner have suffered as well,but we are all still here,life goes on,and even on bad days when I'm feeling tired and low,or in pain,I always remind myself there is love in our home,things that were important to me three years ago seem quite trivial now.Most days I try to mentially make a note of how lucky I am,rather then dwelling on the negatives.
I live in a beautifull place,I have a partner who loves me,colitis is not a terminal disease,people have normal life spans,etc( like that )
Hopes this helps a bit,Take care,and remember,however bad it gets you will find someone here who has been through the same The human spirit is a wonderfull thing when faced with tough calls in life its amazing how people
people cope and you will too

Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 3/30/2009 11:51 AM (GMT -6)   
Rummy,

Stay strong. I too went through a range of emotions when I was first diagnosed a few years ago, and yes UC has impacted my lifestyle and day-to-day choices, but that doesn't stop me from working towards my goals and enjoying each day. In fact, because of UC I probably make more of an effort now to appreciate the simpler things in life and to just live in the moment.

Also, keep in mind that often people who you come across on online forums are those for whom basic treatments aren't working too well, so they are looking online for solutions. However, there are also a lot of people out there with UC who live perfectly normal lives once they find the right balance of medications, supplements, dietary changes - you just don't hear about them because they probably don't have a need to join an online forum like healingwell.

So, there's lots of hope, and the positive is that once you get a final diagnosis at least you know where things stand and you can get working with your doctor on getting things back to normal soon.

Don't hesitate to discuss and ask your doctor as much as you can about your treatment options and alternatives. The more you know, the more confident you are that you're on the right track.

All the best!
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine, 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Mesacol/Asacol enema at least once a week
Spinach & sunflower seed diet


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 3/30/2009 12:54 PM (GMT -6)   
I second Red's advice to learn as much as you can about IBD and the various treatment options - allopathic as well as alternative. The first couple of years were very hard for me, but I read everything I could get my hands on and was determined to take control of my health, as much as was within my power, and in spite of my doctor telling me I was "in denial." The pay off - as Rio says - is learning what works for you personally so you can manage your condition and return to a normal, full life. I wouldn't wish IBD on anyone, but I do feel it ultimately benefitted me, causing me to clean up my diet, start working out and take much better care of myself. I feel it's made me stronger, more appreciative of what I have, and I'm in better shape than ever.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 

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