man you've been through a lot... I wish I could help you... I googled and it sounds like it only happens after surgery... maybe you'll have better luck in the ostomy forum?? it almost sounds though like...they removed your diseased colon and then you just got symptoms of ulcerative colitis in your rectum? i dunno.. maybe try finding a dr that can explain it better or has better knowledge?
Kara, 22F Married.Latest-Went to ER cuz I couldn't eat for 5 days and was having severe flare up after passing two kidney stones after a week of the flu. (long month)
GI tried to taper me off of pred fairly fast in hopes to keep me on Lialda and at a lower dosage of pred. to try mesalamine enemas again. Starting the Imuran as soon as labworks done... longer pred time....yippee *rolls eyes*
Medications:Prednisone 40mg Again! (groan)Lialda 4 a day until Imuran
I am so sick of this disease!