what should i do?

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nymomof3
New Member


Date Joined Mar 2009
Total Posts : 16
   Posted 3/30/2009 5:03 PM (GMT -6)   
today i  went back to my gastro because my proctitis is really bad and the cortisteroid enemas were not doing anything, i have been in alot of pain and alot of bowel movements with no stool just blood and mucous he put me back on the canasa's suppositories, i also told him i am in alot of pain and can not sit anymore, i might have a fissure or hemroid, he never even examined me..should i get a second opinion i feel he should of at least looked, how many of you have switched doctors and have gotten better,,im so tired of this and not feeling well, maybe he's missing something..he just doesnt seem alarmed and im in alot of discomfort..thanks for listening

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/30/2009 5:49 PM (GMT -6)   
If you are not happy with your current GI then yes by all means, seek another opinion. This is your life and your body; you have to do what is right by you.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


nymomof3
New Member


Date Joined Mar 2009
Total Posts : 16
   Posted 3/30/2009 5:55 PM (GMT -6)   
red_34 i read that you also were unable to tolerate asacol, rowasa and canasa, what symptoms did you have from them and what did you finally find to work, cause i think thats my problem and he just doesnt listen when i tell him, he keeps telling me to take them and i think they are not working

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/30/2009 8:41 PM (GMT -6)   
I was on Asacol for 12 years when my body decided it didn't like them anymore. I was getting severe abdominal pains, increased D, and an overall flu like feeling. But those symptoms didn't start until I was already off the Asacol and trying to use Rowasa. My GI switched me from Asacol to Colazal before that because my flare wasn't settling down so he thought he would try a different medication. Asacol sometimes doesn't do much for the left side of the colon on down and Colazal is basically designed for the left side on down. He kept persisting that I try the Rowasa but after the 3rd attempt with the above mentioned symptoms I said enough is enough and I told him that just don't work and they were making me worse.

I think doctors tend to think that one medication is going to work for everyone. Or maybe they are just hoping.

But after I switched to Colazal I felt a ton better until my daughter gave me a stomach virus and that threw me into a tailspin of flares which forced me onto 6mp which is an immune suppresor.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/30/2009 9:30 PM (GMT -6)   
How long have you been using the cortisteroid enemas nymom? I have luck with cortifoam, it's the only rectal med that works for me, but of course the worse the disease activity the longer it will take to heal.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 3/30/2009 10:44 PM (GMT -6)   
Definitely consider a change of doctor....but, if your symptoms persist over another week or you get worse, go see your doc again and request him to do a look-see.

Have you taken a look yourself?? You can squat over a mirror and see if you have anything external happening. If so, let him know and hopefully he will prescribe you something to help....I personally prefer Proctocedyl ointment for external hemmies and fissures....

Keep us updated as to how you're doing.

q
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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