My UC is pretty well managed on even very low dosages of Asacol. Was on just 800mg a day for a full year with no problems before a recent mild flare up.The problem for me is the severe joint pains. The joint inflammation likes to torture me and move up and down from the hips, entire back, and neck area. At times, it was so severe that I couldn't walk or turn my neck.
My GI wants me to go on sulfazine since it is also used to treat rhumatoid arthritis. Just started it today. Of the side-effects, I know that orange skin, urine and sweat is completely harmless and nothing to worry about, but I'm a girl and I can't help but be a worried about it. I would hate to look like those those people with fake orange tans. I also wear a lot of white and almost all my bedding from towels, sheets, comforters, blankets, etc. - all white. (Yes, its obessesive, I know...) I'd hate to see them be stained...
For those on sulfazine, how bad was the staining? Is there a correlation b/w dosage and color?
Also, headaches and sun sensitivity are a concern for me. I live in L.A., doing things outdoors and enjoing the sun is big part of living here. In addition, I'm graduating from law school this year and with the prospect of studying for the bar, I really can't afford to be distracted by headaches while I study.
Any input from someone who has experienced of these side-effects and how to deal with it would be very much appreciated. Thanks in advance!
Currently tampering off prednisone after a flare-up - 10mg a day
Started 1000mg Sulfazine 4 times a day.