Natural Remission

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Scorpion24
Regular Member


Date Joined Mar 2009
Total Posts : 63
   Posted 4/1/2009 1:18 PM (GMT -6)   
Something has been haunting me...

When I had my first flare up roughly 8 doctors diagnosed me with internal hemorrhoids, which to me sounded like complete bull crap but I didn't really care much. They put me on hemorrhoidal medications and about 3 weeks in I went into remission! without anything, I figured that things were fine and continued my awful diet and lack of rest for roughly 4 months until my first serious flare up came about...

to me this is very interesting although I have no clue how I went into remission without any medication, it simply does not make sense

Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 4/1/2009 1:26 PM (GMT -6)   
Did you take the hemorrhoidal medication? What kind of drug was it? I wonder if that did it or if you really didn't have colitis at that time then just happend by chance to get colitis later. Did they do a scope to confirm what you had at that time?

AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 4/1/2009 1:33 PM (GMT -6)   
I went into remission w/o any meds after my first flare. I had been flaring for a year, was going 10+ times a day, mostly blood. Lost weight, was anemic. Never went to the Dr. b/c I was young and stupid and didn't have insurance. One day I was bleeding with tons of diarrhea, then the next day it stopped. Maybe it was disease burnout or maybe it was b/c I fell in love with my now husband at that time? I enjoyed 7 years of almost 100% normalcy, only had minor blips until a couple stressful months in a row in '07. Would love to get back there!
31 yr old female currently breastfeeding (weaning so I can start 6mp)
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 4/1/2009 1:33 PM (GMT -6)   
Only thing I can say was being in initial stages of the disease, the inflammatory process may have been easier to get under control with just the body doing its thing. Maybe you had it confined to the rectum, which is where mine started. You were able to get some anti-inflammatories on that area and gave you a brief remission.

As we all know our body can put us in remission or take us out at will. All we need is the right process or pathway turned on and the body has everything it needs to heal up.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/1/2009 1:37 PM (GMT -6)   
My body is stupid, I've never been in full remission with my crohn's colitis for my entire 18 long yrs :(
My bum is broken....there's a big crack down the middle of it! LOL :)


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 4/1/2009 2:07 PM (GMT -6)   
My doctor said that sometimes people go into remission all on their own. I kind of did, in December (see my sig for reference), maybe because of probiotics. I wouldn't say I was in full remission as I was still having loose stools, but I wasn't having that many a day and they weren't urgent. My doctor did tell me about a patient of his who first came to him when he was in his 60s. Since his 20s, he would have a week or two period of severe bloody diarrhea that would just go away. He finally saw a doctor about it the first time it didn't go away on his own, and was diagnosed with UC. My doctor speculates he'd had it all along, but he was lucky in that it would go away w/o treatment.

UC is weird, weird, weird.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg 20mg 15mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16728
   Posted 4/1/2009 2:10 PM (GMT -6)   
My doctor thought I had hemmroids when I first went to see her. She sent me home with Anusol suppositories and an appointment to get a sigmoidoscopy. I used the Anusol and I improved dramatically. When I went for the sigmoidoscopy, she found some inflammation and no hemmroids. That's when I switched to Canasa... I think some hemmroid creams have cortisone which can help inflammation. 
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December 08 but had symptoms months ago - Treating with Asacol 400mg (9 a day)


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 4/1/2009 2:13 PM (GMT -6)   
when I first started getting UC symptoms for the firsts couple years I would flare for a month or two and then go into remission and this would happen two or three times a year with no meds at all. I didn't even go to the doctor and get diagnosed with UC for a few years after symptoms started so I couldn't have possibly been on meds for it. This is what led me to believe that my UC was being caused or being temporarily cured by something that I was consuming in my diet. Because its not like every few months my body was going through some kind of cycle to make things work properly in my digestive system sometimes and then sometimes not. So after that thought I decided to take action and figure out what was going on with that and i discovered that if I eat a lot of foods high in beta carotene and magnesium (spinach and sunflower seeds) I can stay in remission. Have been in remission for three years now doing this on zero meds.
 
After the first few years of having UC symptoms things did get worse and worse till I was in a severe flare for one year non stop. This is the time when I finally broke down and went into the doctor and got diagnosed with UC. I have always been the type that never goes to the doctor unless I am nearly dead:) Plus I already figured it's what I had from researching my symptoms on the internet. Anyway I tried several different medications for UC over the next year or two and none put me into remission or helped much. Then I discovered the sunflower seed and spinach thing and it put me into remission.

Post Edited (Cfromutah) : 4/1/2009 3:26:40 PM (GMT-6)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/1/2009 2:34 PM (GMT -6)   
My mom is like that with her UC she doesn't take meds for her UC, when she first got sick they put her on meds and she said it made her feel worse so she stopped and never took any not even rectal meds since then and she's always just gone into and out of remission spontaneously. Sometimes she gets really bad flares too but still manages to go into remissions even with not taking/using any meds.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/1/2009 3:32 PM (GMT -6)   
UC is a disease of flares and remissions. Even if untreated, a lot of people will have periods of remission. In their case, treatment may extend the remission time significantly.

This nature of the disease is one of the things that makes it so hard to say a treatment is working based on anecdotal evidence. A dozen or two people isn't a large enough sample to rule out the disease cycle as causing the improvement rather than the treatment.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 4/1/2009 4:11 PM (GMT -6)   
My body is stupid too, no complete remissions for me.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, tried to taper but now back up to 20-30 after several really bad days. Waiting for insurance decison on Humira...soon... 


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 4/1/2009 4:13 PM (GMT -6)   
With there being a relatively small amount of people with UC on healing well and then only a small percentage of them that's tried any certain treatment and if any one treatment seems to be helping a dozen or more of them I would say that's pretty good odds that the treatment helps. Now if there was a huge study and any one treatment only helped a couple dozen people I would say that's not very good odds.

Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 4/1/2009 6:29 PM (GMT -6)   
Honestly, I had UC for two years without a formal diagnosis (I was misdiagnosed with antibiotic associated colitis the first time I had a flare), having 2-3 very mild flares a year during that time period, and they've always gone into remission without medication after awhile.
21, female, diagnosed 3/6/2009
Currently taking Asacol (3x/day) and Prednisone (tapering dose)

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 12:00 AM (GMT -6)
There are a total of 3,005,625 posts in 329,243 threads.
View Active Threads


Who's Online
This forum has 161787 registered members. Please welcome our newest member, melzissa.
282 Guest(s), 2 Registered Member(s) are currently online.  Details
George_, Ss800