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AlliUC
Regular Member


Date Joined Mar 2009
Total Posts : 50
   Posted 4/1/2009 1:42 PM (GMT -6)   
Hi there,

I checked in with my doctor today (been a week) and ran a couple of things by him. I just wanted to get the benefit of your collective input as well if any of you have a moment.

I have been on pred for 3 weeks. Last week I started back on salofalk enemas as well. I am still fighting my flare up. I am unable to pass much of anything and each morning I go to the bathroom, the enema is released (if it lasted all night) and I let go of a little mucus and blood. Otherwise, I am unable to move anything. Then two days ago my mouth started to get uncomfortable. This morning I have some pretty obvious ulcers in my mouth. Inside doesn't hurt but the corners of my mouth hurts. My pain and cramping has remained unchanged this week. I am not feeling better but I am not feeling worse and that has got to be good.

Is there anything to be worried about that I am getting the mouth ulcers now? I just thought it was strange to be getting new symptoms when I am supposed to be getting better. Made me wonder if the salofalk was helping or not.

Doctor says, no increase in pain or blood, he is thinking I am improving. He will do another colonoscopy if I ask but I don't want to do that yet. We have planned to talk again next Tuesday to see where things are at.

Thanks
Alli
Female, 41
1996 diagnosed proctitis (during pregnancy, just months after I quit smoking)
Mar 3, 2009 diagnosed ulcerative colitis - it got my entire colon - severe

Fighting my first major flare up of UC (but I think my first UC flare up was at the end of 2006, 2 months after I quit smoking again)
60 mg prednisone (started at 30 but was doubled immediately) Mar 5/09
salofalk enemas = 5-aminosalicylic acid (mesalamine) added March 24/09 after second colonoscopy showed not enough progress ( previously managed proctitis with same stuff as suppository and then enema in 06)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/1/2009 1:48 PM (GMT -6)   
Mouth ulcers can be an extra intestinal manefestaion from having an IBD, for me I found using probiotics everyday has stopped mouth ulcers in their tracks, it's so nice not to get them anymore, there are medicated mouth washes that people have success with too (hopefully one of them will come along and post the name of it for you).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 4/1/2009 1:51 PM (GMT -6)   
So your not on any oral meds besides prednisone? That seems odd, IMO. But yes, mouth ulcers are a common symptom of UC.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg 20mg 15mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 4/1/2009 3:19 PM (GMT -6)   
     Odd thing....as a kid I ulcers in my mouth quite frequently but did not have UC.  In hindsight, I believe I did have IBS.  My mom always put Alum on them.  Burned like H***.  They went away though...must have burned them out.  Now, they are the forerunner of a flare.  When I get an ulcer in my mouth I know I am doomed for a flare.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


JLG45
Regular Member


Date Joined Feb 2009
Total Posts : 114
   Posted 4/1/2009 3:39 PM (GMT -6)   
I get mouth ulcers two weeks prior to every flare. Another two weeks after that they are gone but the flare can remain.
Diagnosed U.Proctitis 07

Flare Feb 09 - Diagnosed with Severe Pancolitis
Remicade, 50mg Prednisone, Cortenema PM, 1g 5 ASA suppository AM


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 4/1/2009 5:06 PM (GMT -6)   
I get them too, I just finished with 4 at one time! fun!! If they are in the corners of your mouth, they sound like cold sores which are different than canker sores.
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
LDN - 2/17/09 1.5 mg., increased to 3 mg. 3/3/09
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 4/1/2009 6:58 PM (GMT -6)   
If it's on the corners of your lips, it's probably cold sores. I've been having non-stop cold sores since September and my PCP says that it's because my body is being suppressed by the Remicade so the cold sores aren't able to heal. Pred might cause the same effect. If it's really bad, you could ask your doctor for either topical or oral meds.
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (7 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3 DS, Turmeric
 


AlliUC
Regular Member


Date Joined Mar 2009
Total Posts : 50
   Posted 4/1/2009 10:32 PM (GMT -6)   
Thanks for your comments everyone.

I seem to have soreness at the corners (where you would have a cold sore, except I have never had a cold sore before - Can UC cause cold sores?)
I have some ulcers inside my mouth.

Hopefully this is just par for the course and not a bad sign.

I am going to think positively and hope they don't stick around to long.
Female, 41
1996 diagnosed proctitis (during pregnancy, just months after I quit smoking)
Mar 3, 2009 diagnosed ulcerative colitis - it got my entire colon - severe

Fighting my first major flare up of UC (but I think my first UC flare up was at the end of 2006, 2 months after I quit smoking again)
60 mg prednisone (started at 30 but was doubled immediately) Mar 5/09
salofalk enemas = 5-aminosalicylic acid (mesalamine) added March 24/09 after second colonoscopy showed not enough progress ( previously managed proctitis with same stuff as suppository and then enema in 06)

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