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Scorpion24
Regular Member


Date Joined Mar 2009
Total Posts : 63
   Posted 4/1/2009 9:18 PM (GMT -6)   
Overtime will my UC get worse?!
I have mild/moderate proctosigmoiditis and I am taking my medicine constantly (5-ASA) I'm taking L-Glutamine and Probiotics + aloe vera juice and flax seeds, I fully changed my diet and resting habits. My symptoms are getting better day by day but I am quite afraid...

Will it get worse? can it travel around in my colon eventhough I am doing so much to fight it? I'm already tired of my medicine and I hate how the doctors just say "yeah you're probably going to take it for the rest of your life"!

it's scary and that's the bottom line

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/1/2009 9:37 PM (GMT -6)   
No one can predict that for you, it's definitely a common concern for IBDers but for me I found taking one day at a time an easier way to cope with what the future may bring, granted I've never been in full remission my entier 18 yrs of having IBD but I've had some spells that were definitely better than others so don't stress over something that you may not be able to totally control, take each day as it comes and try to enjoy every good day you have, don't dwell on your disease because it'll eat you up...and then poop you out LOL!

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 4/1/2009 10:14 PM (GMT -6)   
mine progressively got worse for the first few years till i learned how to control it with diet and since its gotten better and better. I am completely symptom free now

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 4/1/2009 10:26 PM (GMT -6)   
Nobody knows. Some people manage their UC quite easily and never really have any problems with it, while others get worse quite rapidly. There's someone on here who had a colectomy about two or three years after being diagnosed because none of the meds helped her.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg 20mg 15mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 4/2/2009 11:10 AM (GMT -6)   
It's hard to say, because clearly over time you learn how to manage it so at least it seems better than those first really difficult months and years.

I'm not a big believer in the supplements, have tried this and that and just lose enthusiasm for keeping up with them after a while and never notice any big difference one way or another anyway. I just stick to the probiotics and asacol for maintenance, and am hopeful about Humira.

Maybe you should simplify your meds routine if you think you can't maintain it as is.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, tried to taper but now back up to 20-30 after several really bad days. Waiting for insurance decison on Humira...soon... 


robray
Regular Member


Date Joined Mar 2005
Total Posts : 130
   Posted 4/2/2009 2:44 PM (GMT -6)   
It sounds like you are doing the right things. It seems that every one is different with how the disease progresses.

Personally mine got worse over the years and now it seems I flare up every year around Feb/Mar and it last longer every time. I was diagnosed in 1991 and if I could go back and do things differently I would have really concentrated on my diet and tried to find foods that cause no gas or diarrhea and are fully digested. I am never symptom free and always have some bowel issues. Keep working at getting yourself as healthy as possible it will really help you out later.
UC (Pancolitis) diagnosed in 1992.
   Medications: Dipentum, Salofalk Enemas, prednisone (Stopped 2008), entocort enemas (Stopped 2008), Cortenema (Stopped), Asacol (Stopped 2003)
   Other therapies: Spinach & Sunflower Seeds, gluten free, dairy free (except for aged cheese and SCD yogurt), rice free, HPI (2008), SCD (Stopped, but still make yogurt), Vitamine E enema
Osteoporosis diagnosed in 2008.
   Medications: None yet, but they want me to take fosamax
GERD diagnosed 2008, but had it forever.
   Medicaitons: Parriet (Stopped)

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