Ankle Synovitis and Ankylosing Spondylitis

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gurgling tummy
Regular Member


Date Joined Aug 2006
Total Posts : 166
   Posted 4/2/2009 2:49 AM (GMT -6)   
 Hey guys,
  I had an appointment with the GI today, asked him about the AZO and blood work, he said that he does it every two weeks so I did it immediately after seeing him, a COMPLETE workup. But he was also talking to me about secondary diseases that could associate with UC especially left sided UC. He mentioned something about inflamed joints in the elbows, knees, ankles and I immediately stopped him there. For almost a month now I have had extreme swelling in my left knee of an unknown nature, When I asked the nurse about it she said that she had no clue and that the doctor read her report where I complained of it and if she wasn't worried then I shouldn't be either. But this has been a dibilitating problem, the more I am on it even just as walking through the grocery store it will swell to the point that I will no longer be able to bend it and the swelling starts heading north to my knee, and included the sole of my foot as well so walking was almost impossible. Se he looked at it and said that I definitely have Ankle Synovitis and that he treats it with Pred. Yeah me. So I started on Pred today, it's only for a month luckily and we are starting at four a day then wiening me off of them by the end of the month.
  We then started talking about my lower back which has been painful to the point of immovability since I was diagnosed with UC. So he added a test for the marker HLA B-27 in my bloodwork to see if I also have Anklosing Spondylitis. From the research that I have doen about this, it sounds exactly like what I have, to my dismay as the outcome of this disease is fused vertibrae resulting in a perminant hunch. But hopefully that won't be for a while. It's amazing that I have been to Orthopedics, Rhumetologists, Physical therapists, Pain management specialists, and numerous doctors about my back and none of them even thought of this, they just keept raising my pain medication to where I am now on a perminant Morphine cloud and it isn't even bringing enough relief. I just hope that this is the answer and we can start treating the problem and not turn me into a non-functioning druggie who may not have Fribomyalsia after all.
  I'm sorry that this was so long but I just though that maybe one of you out there might be going through the samething as it is related to UC and I just might be able to help even one of you.
 
*~~*Emily*~~*
Diag. Aug 06 (Proctosigmoiditis), finally diagnosed with Fibromyalgia 12 August 08, Paxil (1 a day) for Depression, anxiety
Gabapentin (still working up to mx dose), Ambien (1 50mg a night), Venlafaxine (2 a day), cyclobenzaprine (1 10mg tab a night), Tramadol (3 50mg tabs every 4 hours), Indomethacin (1 50mg cap every 3 hours), Tylenol Extra strength (2 500mg tabs every 4 hours).
Getting ready to start Azathioprine, we'll see how that goes.


Ouchie2
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 4/2/2009 5:55 AM (GMT -6)   
Hi there..I have the gene too...years ago before I was diagnosed with UC a doctor thought I may have Ankylosing Spondylitis because of back pain..but strangely it went away then I gave up smoking and the UC symptoms appeared and I was then diagnosed a few years later....a specialist from the USA working here in NZ tested for the gene and sure enough alot of UC sufferers have this gene I'm told...I have just recently found out my mother also has it ...so its definately making more and more sense. Unfortunately the medication isnt working and the doctors are now looking at trialing a new drug ...so back to the drawing board once again
38 year old female
UC - Diagnosed 2006
HLA-B27 Gene
Iritis 2008
4 x Asacol
100mg Mercaptopurine (6MP)
Doxycycline


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/2/2009 5:57 AM (GMT -6)   
Hi GT

I am sorry to hear what you are going through. It must be painful. So far as I recollect, earlier sometimes I used to have this kind of pain. Infact even all the UC doctors used to put this question to me as to whether I have joint pains, backache etc. Even after my 1st stage in 2005 November, they did conduct some test (it was some machine like ultrasound and they used it on my knee joints and hip joints to check). I know I may not be able to help you much but my prayers and good wishes for your speedy recovery are always there. Had it been only knee pain, I would have advised that you may consider taking Sallaki/Boswellia. It is an ayurvedic herb which people take for arthritis and has also proved to be good for UC as per clinical trials. Take care
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5968
   Posted 4/2/2009 7:00 AM (GMT -6)   
     I never heard of this!  However I recently developed a heel spur....is this in any way related or just a fluke?  I attribute it to walking on the treadmill with flimsy sneakers.  I also have osteoporosis.  My bone scan read minus 3.5.  I refuse Fosamax and Actonel because both of them caused heartburn.  Don't need ulcers in my esophagus...already in the colon.  Forget Boniva and that new fangled shot they give once a year.  God only knows what the long term side effects are to that.  I do want to hang around till 80 in somewhat good health.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


gurgling tummy
Regular Member


Date Joined Aug 2006
Total Posts : 166
   Posted 4/2/2009 7:46 AM (GMT -6)   
Christine,
Actually I was just reading it again and bone spurs are a part of the disease as well.

CFG,
How bad is your pain and is it just localized in your lower back? What medications have they given you for it or how have you been able to control it? I have been in excruciating pain for the past three years and keep growing an immunity to the pain medications. I know that I am damaging my liver and kidneys and everything else with the amount of pain medication I have to take to just get to an acceptable level. I hope you are feeling well.

PSA.Delhi,
Thank you for the kind words, it means the world to have somewhere to go to get support. I hope you are doing well today also.

Emilie
*~~*Emily*~~*
Diag. Aug 06 (Proctosigmoiditis), finally diagnosed with Fibromyalgia 12 August 08, Paxil (1 a day) for Depression & anxiety, Azathioprine (1 every morning)Morphine (three a day) for pain, Tramadol (as needed for breakthrough pain),  Fioircit (for migrains), Phenergran (for nausea), Prednisone (10 mg tabs 4 a day), Omeprazole (for gerd from the pred), Tylenol PM (to actually get some sleep every once in a while), Calcium (for osteopenia), aloe juice (2Xs a day), chinese herbs for energy.


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/2/2009 9:33 AM (GMT -6)   
Hi Emilie
Please do not worry as I always quote "If you become sick and patient, one thing you should never loose is Patience". Have patience, the things would improve and the darkest hour of the day is just before the dawn. There must be some light at the end of tunnel. So cheer up. You may bank upon me at any hour of the day. I will always be there to provide all support. I have seen the worst in UC and have always come back alive. Nobody can cause damage so long your life line is there. Have faith in healing powers.

Pramod
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5968
   Posted 4/2/2009 2:18 PM (GMT -6)   
     Heel spurs are part of UC???  Or osteoporosis?  Never did I hear of bone spurs and UC being related.  My doctor never said a word about that.  I bought some Dr. Scholl's foot pads for Plantar Facitis...I think that is what it is called.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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