I had an appointment with the GI today, asked him about the AZO and blood work, he said that he does it every two weeks so I did it immediately after seeing him, a COMPLETE workup. But he was also talking to me about secondary diseases that could associate with UC especially left sided UC. He mentioned something about inflamed joints in the elbows, knees, ankles and I immediately stopped him there. For almost a month now I have had extreme swelling in my left knee of an unknown nature, When I asked the nurse about it she said that she had no clue and that the doctor read her report where I complained of it and if she wasn't worried then I shouldn't be either. But this has been a dibilitating problem, the more I am on it even just as walking through the grocery store it will swell to the point that I will no longer be able to bend it and the swelling starts heading north to my knee, and included the sole of my foot as well so walking was almost impossible. Se he looked at it and said that I definitely have Ankle Synovitis and that he treats it with Pred. Yeah me. So I started on Pred today, it's only for a month luckily and we are starting at four a day then wiening me off of them by the end of the month.
We then started talking about my lower back which has been painful to the point of immovability since I was diagnosed with UC. So he added a test for the marker HLA B-27 in my bloodwork to see if I also have Anklosing Spondylitis. From the research that I have doen about this, it sounds exactly like what I have, to my dismay as the outcome of this disease is fused vertibrae resulting in a perminant hunch. But hopefully that won't be for a while. It's amazing that I have been to Orthopedics, Rhumetologists, Physical therapists, Pain management specialists, and numerous doctors about my back and none of them even thought of this, they just keept raising my pain medication to where I am now on a perminant Morphine cloud and it isn't even bringing enough relief. I just hope that this is the answer and we can start treating the problem and not turn me into a non-functioning druggie who may not have Fribomyalsia after all.
I'm sorry that this was so long but I just though that maybe one of you out there might be going through the samething as it is related to UC and I just might be able to help even one of you.
*~~*Emily*~~*Diag. Aug 06 (Proctosigmoiditis)
, finally diagnosed with Fibromyalgia 12 August 08, Paxil (1 a day) for Depression, anxiety
Gabapentin (still working up to mx dose), Ambien (1 50mg a night), Venlafaxine (2 a day), cyclobenzaprine (1 10mg tab a night), Tramadol (3 50mg tabs every 4 hours), Indomethacin (1 50mg cap every 3 hours), Tylenol Extra strength (2 500mg tabs every 4 hours).
Getting ready to start Azathioprine, we'll see how that goes.