CCFA conference on Sunday!

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Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 4/3/2009 2:13 PM (GMT -6)   
I live about an hour north of Seattle and the northwest CCFA chapter is having *free* (lunch included!) conference on Sunday!  Here's the list of topics and speakers:

1.) IBD 101: Overview of Crohn's Disease & Ulcerative Colitis -- Stephen Rulyak, MD
2.) Current & Future Therapies for IBD -- Robert Wohlman, MD
3.) Pediatric IBD Issues -- Dr. Bisher Abdullah
4.) Coping Strategies for Patients & Families, Followed by Patients & Loved Ones Panel -- Theresa Rogers, LCSW
5.) Women & IBD -- Betty White, MN, ARNP
6.) "I'd Like to Buy a Bowel" Surgery Related to IBD -- Donna Rydberg, MSN, RN, CWOCN
7.) Alternative Therapies -- Christine Bowen, ND (naturopathic medicine), Karen Lamphere, MS, CN (nutrition) & Trevor Sevigny, MSAOM (acupuncture)
*Plus, pediatric & adult patient panels during lunch!*

I'm hoping that it's as informative as it looks and I'm looking forward to meeting other people with IBDs in my area.  I also am getting involved with the chapter.  I volunteered to distribute information to local GIs offices and I signed up for the Take Steps walk.  It feels good to feel like I'm doing something to help find a cure for this DD!

Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg 20mg 15mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).

Rio in Maryland
Veteran Member

Date Joined Nov 2007
Total Posts : 891
   Posted 4/3/2009 2:56 PM (GMT -6)   
I went to a CCFA conference in my area some time ago and it wasn't bad. However, a lot of time was spent discussing surgery and Crohn's. I learn much more from this forum and from my own research, but it's good to know what's going on in your area, and also you can get to speak to some of the vendors. I had a chance to speak with the manufacturers of VSL #3 and got some samples. It will be interesting to know what the Alternative Therapy speakers have to say at that conference.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine, 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Mesacol/Asacol enema at least once a week
Spinach & sunflower seed diet

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