Did you have bowel problems before UC?

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Regular Member

Date Joined Mar 2005
Total Posts : 130
   Posted 4/3/2009 4:19 PM (GMT -6)   
I had constant bowel issues leading up to 17 years old, when I finally had a major flare up, and was diagnosed with UC. I didn't complain much so I kind of blame myself a little for ending up with UC. I think that if I would have learned to eat properly to avoid having diarrhea and poor bowel function for so many years maybe I wouldn't be so sick now.

I am curious if other people were the same or did you go from healthy fully formed bm's to UC bloody diarrhea over night for no apparent reason?
UC (Pancolitis) diagnosed in 1992.
   Medications: Dipentum, Salofalk Enemas, prednisone (Stopped 2008), entocort enemas (Stopped 2008), Cortenema (Stopped), Asacol (Stopped 2003)
   Other therapies: Spinach & Sunflower Seeds, gluten free, dairy free (except for aged cheese and SCD yogurt), rice free, HPI (2008), SCD (Stopped, but still make yogurt), Vitamine E enema
Osteoporosis diagnosed in 2008.
   Medications: None yet, but they want me to take fosamax
GERD diagnosed 2008, but had it forever.
   Medicaitons: Parriet (Stopped)

Rio in Maryland
Veteran Member

Date Joined Nov 2007
Total Posts : 891
   Posted 4/3/2009 4:25 PM (GMT -6)   
I had no bowel problems at all, and had never been ill before UC. Even catching a cold was rare occurrence.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine, 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Mesacol/Asacol enema at least once a week
Spinach & sunflower seed diet

Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 4/3/2009 4:35 PM (GMT -6)   
Not really. I've always been senstivie to MSG (it causes horrible bloating and diarrhea within 30 minutes of eating it), but that's about it. I had my fair share of tummy bugs as a kid, too, but nothing out of the ordinary. I'm pretty gassy, too, but most of my family is as well, and I don't really think that's related to UC.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg 20mg 15mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).

Regular Member

Date Joined Mar 2009
Total Posts : 55
   Posted 4/3/2009 4:36 PM (GMT -6)   
I had or still HAVE i should say urinary problems prior, going to bathroom every 7-10 minutes. I also had frequent constipation problems prior to my first flare.

I believed if I had changed my diet soon enough I could of avoided all this headache. Even after UC up until about Sept of last year I believe I could put UC in remission for good through dieting. I procrasinated and when I finally tried to take control I was too slow to adapt and it got out of hand.

I don't believe People are given a death message of IBD and there's nothing they can do about it. However if it gets to a certain point it can be hard to stop without medication, not that medication forever is the sentence. It's just such a complex disease that you have to get it right and depending on how bad it is you have very few chances to get it right.

My belief is that we were born with our colon as our weak point. That in addition to poor diet leads to IBD. I believe if we ate right (listen to our bodies we would never develop IBD. I know the prevailing thought is that its autoimmune disease and my view will probably be met with some skeptisim (I don't totally discount the autimmune thing for the record) but that is what I believe.

Regular Member

Date Joined Feb 2009
Total Posts : 402
   Posted 4/3/2009 4:43 PM (GMT -6)   
I never had any problems growing up...my UC did seem to appear gradually though...first it started with more frequent than normal BM's - then mucous - then pain - then blood. It was when blood appeared that I actually thought I should get to the doctors, as it wasn't much of a problem before and I thought i would go away by itself. I wish I had gone sooner though! 
22 year old female, from the UK.
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for IV Hydrocortisone - had no effect!
Hospitalised Feb '09 for a week of IV Hydrocortisone.
Currently taking daily: 
20mg Prednisolone tablets (tapering)
5mg Prednisolone suppositories x 1
1g Acetarsol suppositories x 1 (soon to change to Acetarsol)
1g Mesalazine granules x 2
Vitamins A,C,D 

Veteran Member

Date Joined Mar 2008
Total Posts : 2855
   Posted 4/3/2009 5:24 PM (GMT -6)   
Not in the slightest. Oh, what I took for granted...
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, tried to taper but now back up to 20-30 after several really bad days. Waiting for insurance decison on Humira...soon... 

Veteran Member

Date Joined Dec 2008
Total Posts : 3231
   Posted 4/3/2009 6:34 PM (GMT -6)   
After I had been on antibiotics for a long time, I would have issues with diarrhea, bloating, and gas. And then I was drinking high-fructose corn syrup beverages everyday. I had these issues for almost 10 years before getting Colitis.

I should have listened to the warning signs. But I ignored them, because I had no idea that one could bleed out their ass.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

Post Edited (subdued) : 4/5/2009 4:39:43 AM (GMT-6)

Veteran Member

Date Joined Mar 2007
Total Posts : 4538
   Posted 4/3/2009 7:03 PM (GMT -6)   
I never had bowel problems before getting UC. I had been constipated about 3 times throughout my life, but it went away after either eating a lot of fiber or taking a laxative. Other than that, my bowels were in pristine condition! Wish they still were.
25 years old; diagnosed March 2007;
Currently: persistant rectal inflammation
Asacol, 4 tabs, 3xday; Rowasa nightly; Viactiv; Metamucil wafers; multivitamin; Primadophilus Reuteri; sublingual allergy drops; Ortho Tri-Cyclen

Regular Member

Date Joined Mar 2009
Total Posts : 63
   Posted 4/3/2009 11:30 PM (GMT -6)   
My whole life I have had bowel issues, I did not say anything to anybody about it. I had the need to go to the washroom all the time, I felt a lot of gas in my intestines... the noises and random cramps!
it was all normal ever since I was 6 and I believe I've had an issue my whole life, but at least I can take care of it now and I can confirm that my issue has to do with diet and a certain bacteria. Thanks for posting that question because I know that I felt alone in that end...

The answer is YES I have had issues before I was diagnosed and NO you should not blame yourself because of these so called "warning signs" since they were simply not that awful (or at least we thought)

Old Hat
Veteran Member

Date Joined Feb 2007
Total Posts : 5190
   Posted 4/3/2009 11:39 PM (GMT -6)   
No! My UC seemed to develop after I was treated with 3 different antibiotics for tonsilitis, then later was prescribed the wrong antibiotic to treat an intestinal amebiasis. Many members have posted similar stories involving sinus infection treatment-- so antibiotics probably pushed a lot of us off the cliff. / Old Hat (30 yrs with left-sided UC ... [etc.])

Regular Member

Date Joined Mar 2009
Total Posts : 52
   Posted 4/4/2009 12:42 AM (GMT -6)   
I have always had problems. Mine was that I rarely moved my bowels. I would go weeks without a movement. I didn't often feel pain and I didn't feel constipated, I just didn't go. The amount of food that I ate didn't seem to make a difference. I never thought it was very good for me but I accepted it as the way that I was.

For the last 12 years, I would know that my proctitis was acting up because I would stop going for even longer. Now I have both, urgency and blockage.
Female, 41
1996 diagnosed proctitis (during pregnancy, just months after I quit smoking)
Mar 3, 2009 diagnosed ulcerative colitis - it got my entire colon - severe

Fighting my first major flare up of UC (but I think my first UC flare up was at the end of 2006, 2 months after I quit smoking again)
60 mg prednisone (started at 30 but was doubled immediately) Mar 5/09
salofalk enemas = 5-aminosalicylic acid (mesalamine) added March 24/09 after second colonoscopy showed not enough progress ( previously managed proctitis with same stuff as suppository and then enema in 06)

New Member

Date Joined Mar 2009
Total Posts : 5
   Posted 4/4/2009 2:31 AM (GMT -6)   
I had been fit as a fiddle my whole life. I was diagnosed with UC at age 28 - 6 months ago. Not used to being sick!

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 4/4/2009 7:09 AM (GMT -6)   
Same here, never had a problem ever before UC. The only time I recall ever actually having D is being on a road trip and eating a whole bag of dried apricots - that would give anyone D! :)
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Regular Member

Date Joined Apr 2008
Total Posts : 460
   Posted 4/4/2009 8:12 AM (GMT -6)   
I only had bowel movements every 3-4 days but I was that way my entire life so I think it was just normal for me. My UC came on suddenly in the form of c.diff. One day I just started having D all day, then the next day I started having bleeding.
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
LDN - 2/17/09 1.5 mg., increased to 3 mg. 3/3/09
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano

Regular Member

Date Joined Jan 2006
Total Posts : 358
   Posted 4/4/2009 9:19 AM (GMT -6)   
When I was young I would often have bad stomach aches.... as in colon issues sort of stomach ache. I didn't have it every day or even every week but every month or so I'd have a pretty angry stomach with D. My mum always thought it was something bad I ate. Looking back I think it was just the precursor to what I have now.

Began Humira on 10 Jan 2009

Humira pen (1) weekly WIE UFN

Rowasa nightly

Probiotics + protein digestive enzymes

Veteran Member

Date Joined Aug 2008
Total Posts : 903
   Posted 4/4/2009 9:28 AM (GMT -6)   
I had problems since summer of 1992. It wasn't exactly a flare up, but it was minor symptoms. I would feel constipated, or when I went I'd have a hard time going, and my bm's would look purple. The symptoms came and went. It went away when I graduated High School and then came back in 2002. Then when I got married in 2005 I was totally fine. No problems at all. Then in 2007 my major flare hit and that was when I was diagnosed.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade

Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 4/4/2009 10:16 AM (GMT -6)   
     As a kid I was almost always constipated.  When I was 21 I thought I was too fat...weighed 120 on a 5 ft 3 1/2 in frame, so I starved myself.  This was prior to even hearing about anorexia.  I went down to 102 before realizing that I was in a danger zone.  I am sure this screwed up my entire system.  That, and the fact my family physician prescribed erythromycin for everything from the common cold to a hang nail.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

New Member

Date Joined Aug 2008
Total Posts : 9
   Posted 4/4/2009 10:43 AM (GMT -6)   
The only issue I ever dealt with was gas, going back to when I was about 12 years old. The pain was horrible. But i never went to the doctor because I blamed it on my diet, and the fact that many in my family had the same issue. It was also manageable with otc meds.

But the year leading up to my UC diagnosis I was having problems with constipation. I began to eat as much fiber as I could stand and I took a stool softener everyday. Then the bleeding started and it never stopped. That was in December 2007 and by September 2008 I had "the surgery".

27 years old
UC diagnosed Aug 2008
September 2008: surgery (step one of 2 step plan)
May 2009: Proposed TD (step 2)
Current Meds: Daily multivitamin.

Veteran Member

Date Joined Feb 2005
Total Posts : 2103
   Posted 4/4/2009 10:48 AM (GMT -6)   
I noticed I was lactose intolerant when I was 13 and then IBS a year or so later and then I was diagnosed in 10th grade. I do remember this one time in 7th grade when I was sitting in music class and I had the worst pain. I didn't know it at the time but it was gas pain just like I get now.
My family seems to have a lot of bowel issues so I'm not surprised.
20 year old medical technology/biology student
Remission since January/April 2006
4 400mg Asacol 2x daily, 10mg Elavil, 75mg Effexor XR for GAD, ortho lo

"Life is what happens when you are busy making other plans"
John Lennon

Veteran Member

Date Joined Aug 2007
Total Posts : 2204
   Posted 4/4/2009 11:39 AM (GMT -6)   
Yep. "Nervous stomach" as a child, constipation. Had an upper/lower GI series when I was about 9-10 years old and found nothing. Diagnosed with irritable bowel syndrome in college and suffered off and on until I was diagnosed with UC in my early 30s.
Diagnosed with ulcerative colitis spring 1999.
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.

Regular Member

Date Joined Mar 2005
Total Posts : 130
   Posted 4/4/2009 7:46 PM (GMT -6)   
Thanks everyone for sharing. The mix of issues and no issues before UC is probably about 50/50 depending on how you interrpret some of the responses.
UC (Pancolitis) diagnosed in 1992.
   Medications: Dipentum, Salofalk Enemas, prednisone (Stopped 2008), entocort enemas (Stopped 2008), Cortenema (Stopped), Asacol (Stopped 2003)
   Other therapies: Spinach & Sunflower Seeds, gluten free, dairy free (except for aged cheese and SCD yogurt), rice free, HPI (2008), SCD (Stopped, but still make yogurt), Vitamine E enema
Osteoporosis diagnosed in 2008.
   Medications: None yet, but they want me to take fosamax
GERD diagnosed 2008, but had it forever.
   Medicaitons: Parriet (Stopped)

Regular Member

Date Joined Apr 2009
Total Posts : 208
   Posted 4/5/2009 12:09 AM (GMT -6)   
I had severe constiption for years and was first diagnosed with Proctitis before it became colitis 4 years later.

Beef Dirkie
New Member

Date Joined Apr 2009
Total Posts : 4
   Posted 4/5/2009 8:44 AM (GMT -6)   
I did not have any problems.
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