Hope for the cure

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Mar 2009
Total Posts : 63
   Posted 4/4/2009 3:15 PM (GMT -6)   
In my opinion, the molecules Bacteria produces has something to do with our condition. If you consider an example such as Mycobacterium paratuberculosis, which is being studied as the possible cause for crohn's disease, then you might be surprised at how unique our condition is. The fact is that research is constantly being carried out to find the cause of Ulcerative Colitis and genetic susceptibility is something we have in common! I hope that one day we wake up and find out that researchers have found an antibiotic answer to our prayers so that we can start a new page in life!

I'm just interested in how many of you guys are as enthusiastic as I am when it comes to our condition, let's all hope for a cure someday soon

good things come when you least expect!


Regular Member

Date Joined Mar 2009
Total Posts : 63
   Posted 4/4/2009 3:22 PM (GMT -6)   
Totally check this video out... if you're interested


Regular Member

Date Joined Jan 2009
Total Posts : 307
   Posted 4/4/2009 3:49 PM (GMT -6)   
I pray for a cure or at least a cause is found every day...based on the intelligence and the technological advancements within medicine I'm almost positive that something will happen in at least my lifetime. 

Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Asacol - 2 x 3 day (waiting for results)
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Mens Multi Vitamin - 1 a day
Metamucil Wafers - Once a day
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
Diagnosed with PSC: 3/9 --now taking Urso

Regular Member

Date Joined Sep 2008
Total Posts : 45
   Posted 4/4/2009 4:09 PM (GMT -6)   
I really hope that there will be some cure before I end up with my colon removed :)
UC (Proctosigmoiditis) april 2008
Prednisone 25mg
Asacol 3x3
Asacol enema every second night
colon dophilus probiotics
flare up

Veteran Member

Date Joined Mar 2008
Total Posts : 1766
   Posted 4/4/2009 5:50 PM (GMT -6)   

Funny that you should mention M. paratuberculosis. I'm reading a journal article right now about possible environmental triggers. This article says that that research on M. paratuberculosis has been inconclusive so far.

On a slightly different note, does anyone watch Oprah? Earlier this week Dr. Oz said that we are "single digit years away" from using stem cell therapy. I hope that's true--it would help so many people!

Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (7 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3 DS, Turmeric

Veteran Member

Date Joined Mar 2008
Total Posts : 678
   Posted 4/4/2009 6:46 PM (GMT -6)   
I watched the same youtube video the other day! I'm certainly hoping for a cure ASAP.
31 yr old female currently breastfeeding (weaning so I can start 6mp)
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon

Regular Member

Date Joined Sep 2007
Total Posts : 365
   Posted 4/5/2009 12:07 PM (GMT -6)   
Interesting they are talking about T-bet cells....

I had a tumor removed from my pituitary gland - my Prolactin levels were in the high 300's....normal males are supposed to be around 15 or so... My surgeon thought I had this tumor for a very long time....maybe longer than my UC... So I started reading into what high levels of Prolactin hormone can do to one's body....although I really don't understand what these articles are saying because they are in "doctor language"....

If someone here can understand the medical terms in this article, could you transcribe it and reply?


It mentions Prolactin levels and T-bet cells....I have been trying to see if my tumor could be linked to UC.... The video above talks about how T-bet cells could be related to UC....I am wondering how they could be related to Prolactin levels?

34 yr old male. UC for 14 years. Started left-sided, most recent scope shows pancolitis. 30mg pred (as of 2/01/09), 12x pills Asacol per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Spinach and sunflower seed diet (moderated recently due to kidney stones). Multivitamin. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!) "I poop in the woods because I can"

Regular Member

Date Joined Apr 2007
Total Posts : 459
   Posted 4/5/2009 12:52 PM (GMT -6)   
As long as nobody knows the cause of UC, nobody is going to find a cure for it
I doubt that I will see a cure before I die

Regular Member

Date Joined Mar 2009
Total Posts : 55
   Posted 4/5/2009 12:59 PM (GMT -6)   
I'm skeptical they'll ever find a cure unfortunately.
UC since 2006

2009 UC Pancolitis though Primiarly Left Sided, Active Moderate

Current Meds: Lialda 4 tab a day
Predinsone (40 mg a day) since 3/30 Not doing anything, hopefully something soon!

Current Supplements:
Vit. B-12, Vit. D3, VSl#3 Probiotics

What does remission feel like, I don't remember!

Nip UC in the bud with diet before it nips you in the bud (or butt) for good!

Regular Member

Date Joined Dec 2008
Total Posts : 199
   Posted 4/6/2009 1:55 AM (GMT -6)   
I believe there will be a cure soon. There is no reason to be so pessimistic. I am studying bioengineering and hope to study UC and maybe help develop a cure for it.
Asacol-12 a day
1 Culturelle
1 Canasa
2 Fish oil supplements
1 Vitamin

Regular Member

Date Joined Apr 2008
Total Posts : 191
   Posted 4/6/2009 4:07 AM (GMT -6)   
I'm trying to hang on to my colon,for a bit longer in the hope there may be a cure its great your going to study
mumbles,have you seen the work they are doing at Trinty college dublin Ireland.
One thing that makes me doubt a bit is that everyone seems to response differently to meds and UC seems to be a collection of different causes symptoms and responses,under an umbrella name,so the complexity of it could be a problem,even if they could eventually grow us new colons like the woman with the windpipe I guess that would not be an answer either.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, March 23, 2018 10:46 PM (GMT -6)
There are a total of 2,943,350 posts in 322,943 threads.
View Active Threads

Who's Online
This forum has 161314 registered members. Please welcome our newest member, neell.
271 Guest(s), 3 Registered Member(s) are currently online.  Details
Spring, tonyaraven, Edsson