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Beef Dirkie
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 4/5/2009 8:37 AM (GMT -6)   
Hi everyone! I'm a 12 year veteran of this disease and figured it was about time I participated in the community.
 
I noticed blood in my stool shortly after I turned 13, and didn't tell anyone for about 3 months due to embarrasment. I was hopitalized, and put on a 60mg prednisone/day that messed me up at the time. After I weaned off the drug (now with my awesomely bloated cheeks and face full of acne) I took sulfsalazine, and much later changed to Asacol because I was tired of peeing dark orange. I've flared 3 times in my life, all of which I attribute to not taking my medication consistantly and not restricting my diet. I can't remember the last time I had a flare up. I currently take 4 Asacol tablets a day and try to eat a balanced diet as well as keep myself in shape through regular exercise. On a scale of severity of 1 - 10, with 1 being the lowest, I'd probably rate mine a 2 or 3 after reading some of the things others have gone through.
 
I'm 25 now, and most of stuggles with the disease are mental rather than physical. I've become incredibly neurotic of bathroom usage in order to gain control over potential incontinence. I don't track how often I have bowel movements, but whenever I go into an unknown situation I always use the restroom. I have never had an "accident" since I've been treated for my condition, but it's because I don't put myself it situations where "accidents" can occur that I feel some sense of control. While this thought process has limited some of my experiences in life, it's a tradeoff I choose to have, and on the whole I'm a pretty happy guy.
 
Well I hope to provide some of my own insights, and have some of my own questions answered from people who have gone through the same dumb disease. My grand hope is that combining all our insights, we can come up with an exact cause for the condition (my dad swears it's tick bites, because I was bitten by one on a school trip shortly before I got sick =b ). Hopefully, eventually we can help find a cure!
 
Cheers,
Dirk

quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 4/5/2009 2:25 PM (GMT -6)   
Hi..welcome to the forum!

Hope you're going through a good spell at the moment.

I would strongly suggest you look into rectal meds as a treatment/maintenance..it may help keep you off prednisone...considering this is a life-long disease.

Tick bites could very well trigger an autoimmune response in the body....many of us don't recognise early rectal inflammation until things spread upward a bit or the most becomes obvious such as blood...you could have already been having some inflammation/symptoms without recognising them, and tick bites created an overload of your system increasing the response in the rectum/colon.

You might consider making a signature with the meds you're taking...where in the colon your UC is (limited or throughout)...etc. It has to be limited to 10 lines, spaces between lines are considered one line as well.

Welcome again,
quincy

quincy
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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