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qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 4/5/2009 2:46 PM (GMT -6)   
I know having Colitis means the immune system has gone wrong. But is this the case for the rest of our lives? I mean even when we  are in remission does this mean our immune system is still low, and that we are still more susceptible to other illness - coughs, colds etc?? Or is this just the case when in a flare up?
22 year old female, from the UK.
 
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect!
Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
  
Currently taking daily: 
10mg Prednisolone tablets (tapering from 40mg)
5mg Prednisolone suppository x 1 (Alternating each day with 1g Acetarsol suppository)
1g Mesalazine granules x 2
 
7.5g Zopiclone (taken every other night for sleeping)
10mg Citalopram (anti-anxiety/depression)
Vitamins A,C,D 
                             
                             


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 4/5/2009 2:53 PM (GMT -6)   
Neither. My immune system is pretty rock solid. It has all this extra time to do stuff it isn't suppose to do, lol. I don't get sick, I don't get nor even fear colds or the flu. If the UC starts to affect other areas such as rest and exercise and those things, then you can run the body down and become more susceptible to illness. We tend to pay more attention to things we eat and do so that puts us a step ahead of everyone else, even though we may run to the toilet every 5 seconds.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD3+Ca/SuperDHA


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/5/2009 7:57 PM (GMT -6)   
I've been flaring the entire time I've had this disease and I have to say I rarely get colds and there's only been 2 times in the last 18 yrs of having this DD that I've had the stomach flu so that's pretty darn good I'd say. And that's with having two kids going to school (you know how they bring colds and flus home easily and often).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 4/5/2009 10:52 PM (GMT -6)   
Actually, from what I understand our immune systems are a little TOO enthusiastic. Also, from my experience (I'm a college student and work in a dining hall so I'm exposed to sick people breathing on me all the darn time) I usually don't get sick more often than my friends-I just get whatever virulent cold happens to be going on. Also, my housemate was sick for like two months straight and I managed not to get sick from him.

I wouldn't worry about illness unless you're on an immunosuppressant like pred.
21, female, diagnosed 3/6/2009
Mild ulcerative colitis from rectum to mid transverse colon
Currently in remission
Currently taking Asacol (3x/day) and Calcium/D supplements


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/5/2009 10:59 PM (GMT -6)   
I worked with preschool age children while I was on immunosuppressants and then Remicade. I've had one cold in the past four years and one sinus infection. No other infections of any sort. My immune system laughs at that stuff, then decides which of my body systems to attack today.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


Scorpion24
Regular Member


Date Joined Mar 2009
Total Posts : 63
   Posted 4/5/2009 11:01 PM (GMT -6)   
Malkavian - get a better job! I'm in college too myself (as a matter of fact studying for a psychology exam at the moment) *shouldn't be on here* lol
you need to move away from what is getting your immune system excited, so go ahead and find a better job.

Querty - do not worry about it, our main issue is an immune system that's so healthy it has our colons in a choke hold - unless you're on medicine that will weaken your immune system then you have nothing to worry about. Let's just say that when you're in remission then you are as good as new, healthy as a horse!

- Cheers
Born with Ricketts (Feb, 1990) --beat it--
Diagnosed with Proctosigmoiditis (March, 09) --beating the 'crap' out of it--

Current status: flare-up


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 4/6/2009 2:20 AM (GMT -6)   
I see! I got it all wrong then - that makes much more sense. At the moment I do have a low white blood cell count AND am on Pred so that may cause a bit of a problem, but I'm glad it should be pretty much ok once thats not the case. Thankyou for your replies :-)
22 year old female, from the UK.
 
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect!
Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
  
Currently taking daily: 
10mg Prednisolone tablets (tapering from 40mg)
5mg Prednisolone suppository x 1 (Alternating each day with 1g Acetarsol suppository)
1g Mesalazine granules x 2
 
7.5g Zopiclone (taken every other night for sleeping)
10mg Citalopram (anti-anxiety/depression)
Vitamins A,C,D 
                             
                             


AnnaG
Regular Member


Date Joined Apr 2008
Total Posts : 191
   Posted 4/6/2009 3:46 AM (GMT -6)   
I'll have to say my immune system is pretty darn good too,I can't remmeber the last time I had a cold cough or anything viral,and I've had all the big guns in terms of the immune suppressants over the past two years
IV steriods,IVcyclosporin,pred,azathiopine,My GI explained it like this when your on immune supressants,you are not more likely to pick up coughs colds than anyone else,but you are more prone to what he called opertunistic infections,ie if you do get a cold in would be more likely to turn to somthing bronhcial,or pneumonia,so you have to watch out and get a course of antibiotics if things don't get better quickly,also,when on steriods infections and stuff can hide in the body,untill they are much more serious hence reporting fevers and such.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/6/2009 6:25 AM (GMT -6)   
You know what's really odd? Ever since I've been on 6mp I hardly ever get sick anymore. I get maybe a yearly cold and it can get a bit hairy (fever of 102 etc) but I never get sick with anything else. Before starting on 6mp I would get bronchititis a lot as well as other infections. I think, at least for me, 6mp stabilized my immune system a bit if that makes any sense.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 4/6/2009 6:49 AM (GMT -6)   
I've been at my new job for about 8 1/2 months, and being there I've been sicker than in the past. My immune system seems to be the same since before I got this disease. This past year, I had the flu bug 3 times. There was a weird cold bug going around and I only got a small part of it. I do wonder with getting this flu bug if my medicine has started pulling my immune system down since I've been on humira for almost 2 years. Oh well, I'm totally thankful for the medicine, so I gotta deal with it then. ;)
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


AnnaG
Regular Member


Date Joined Apr 2008
Total Posts : 191
   Posted 4/6/2009 8:58 AM (GMT -6)   
Its interesting,what you say Red,as I suppose a high fever is one of the body'sbest immune responses,I'm always telling my partner not to freak out when the kids get fever,it just shows a healthy immune system,thats responding to the alien attack
I don't know about the remicade,as I haven't been there but I guess constant exposure to some bug hanging around,is going to bring your immunity down if you don't have a long enough gap to recover properly.

VerM
Regular Member


Date Joined Feb 2009
Total Posts : 101
   Posted 4/6/2009 10:48 AM (GMT -6)   
Isn't the immune system attacking the colon just a theory?
I will not be passive.  I will fight until I win.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/6/2009 10:55 AM (GMT -6)   
Yes it's a theory but then again why would immune suppressing medication work if it wasn't?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


VerM
Regular Member


Date Joined Feb 2009
Total Posts : 101
   Posted 4/6/2009 11:05 AM (GMT -6)   
True
I will not be passive.  I will fight until I win.


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 4/6/2009 11:19 AM (GMT -6)   
All causes are still just a theory when it comes to UC.

I personally believe that even though the symptoms are relatively the same (especially when it comes to the inflammation seen during a colonsocopy), UC isn't really just one disease, but rather a collection of diseases, each with its own cause (faulty immune response, bacterial imbalance, etc). That's why some treatments work for some (Remicade, probiotics, fecal transplant) but not for others.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg 20mg 15mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 4/6/2009 1:14 PM (GMT -6)   
Scorpion-This is the best paying job I can find right now, and no one is going to hire me for a month or two til I graduate. I used to have a job with less exposure to people, but my boss threatened to fire me for being sick so I quit and got this one.
21, female, diagnosed 3/6/2009
Mild ulcerative colitis from rectum to mid transverse colon
Currently in remission
Currently taking Asacol (3x/day) and Calcium/D supplements


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/6/2009 1:56 PM (GMT -6)   
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30408
   Posted 4/6/2009 2:04 PM (GMT -6)   
pb4....what comments and is the point of your link? It's a good link...to just list it isn't as helpful as a comment attached.

q
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/6/2009 2:11 PM (GMT -6)   
Posted the link in the wrong post.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5958
   Posted 4/6/2009 2:13 PM (GMT -6)   
     It is my understanding the UC patients have OVER active immune systems.  That is why we take immunosuppressant drugs.  Correct me if I am wrong.  I stopped getting flu vaccines because every darn year I did get the vaccine I came down with the flu!  For the past few years, no flu vaccine, no flu.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 4/6/2009 8:01 PM (GMT -6)   
Im with Dr.-A and some other posts here- I seem to get far fewr colds, flu etc when my UC is active, thanks to hyper-immunity.
Pancolitis >20 years, allergic to all 5ASAs
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up 
Currently Remicade and lots of probiotics, tapering pred again, maybe surgery this year
 
 


buckeyeinchicago
Regular Member


Date Joined Feb 2009
Total Posts : 40
   Posted 4/6/2009 8:08 PM (GMT -6)   
I am a teacher and exposed to all my germy second graders. I don't get sick very often but I do notice that when i get sick it lingers for a long time b/c of the 6mp. I have been on pred. since January and have only felt sick formt he side effects but nothing big yet. I do know though that when I do get sick it will usually linger for a week or two at least.
Diagnosed when 13 and am now 25, female. Currently taking 100mg of 6mp, started at 60 mg of prednisone and now down to 30 mg, and 12 pills of asacol a day. I tried cortifoam for this flare and it didn't work. Previously I've tried all types of rectal meds but nothing ever helped. In the past I've tried rowasa, enemas, pentasa, colazal, sulfasalizine. I was in a four year remission until the end of January.


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 4/6/2009 8:24 PM (GMT -6)   
Red_34 said...
Yes it's a theory but then again why would immune suppressing medication work if it wasn't?


Thing is inflammation is an immune system response to infection, doesn't mean you body is trying to attack itself. Your throat turns red and sore, and swells a bit in response to a cold virus, but the body clearly isn't attacking itself in that case. So it apparently still works in some respects, but seems to want to attack the colon for us for no reason, or is it trying to attack something in the colon we don't know about? Million dollar question.

elt27
Regular Member


Date Joined Jan 2009
Total Posts : 35
   Posted 4/6/2009 10:33 PM (GMT -6)   
I'm on pred at the moment, and have had a cold for the past week. I've never had colds for this long before, usually I'd get them for a few days and then they'd go away again, so I'm guessing it's the pred. Wish I could just hurry up & get better though.
Diagnosed with Ulcerative Colitis December 2008
Treating with:
-Prednisone (6mg - tapering (slowly...) from 40mg)
-Pentasa x8 a day
-Pentasa enema once daily
Also taking Iron supplements and Multi-vitamins


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 4/7/2009 9:14 AM (GMT -6)   
elt27 said...
I'm on pred at the moment, and have had a cold for the past week. I've never had colds for this long before, usually I'd get them for a few days and then they'd go away again, so I'm guessing it's the pred. Wish I could just hurry up & get better though.

Me too! It's just lingering on and on. As if we havn't got enough to worry about..!

22 year old female, from the UK.
 
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect!
Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
  
Currently taking daily: 
10mg Prednisolone tablets (tapering from 40mg)
5mg Prednisolone suppository x 1 (Alternating each day with 1g Acetarsol suppository)
1g Mesalazine granules x 2
 
7.5g Zopiclone (taken every other night for sleeping)
10mg Citalopram (anti-anxiety/depression)
Vitamins A,C,D 
                             
                             

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