Posted 4/5/2009 5:35 PM (GMT -7)
Ahh, honey, we know your pain. Better yet, a whole bunch of us know it well. Welcome to the site. Start reading, go back to old posts about your condition. There is much to learn when you are newly diagnosed. Join the CCFA and lurk there too. I was at the convention in Chicago yesterday. Good stuff.
For what it is worth, a few tips: Stay on top of your doc. advice, treatment is different for each person, don't be afraid to talk about what you've read. I'd swear some of us know more that some GI's. Get to a good one, and fast. There are differing views about how aggressive treatment should be in the beginning. Asacol is just a start. Prednisone is a tough one, but it works for most in a flare-short term is the key there. The drug options for 5ASA's are many now, try a few before giving up. Consider rectal meds early-Rowasa or Cortafoam; different, but good, get the blood tests that you may need later, now. It will speed up the time if you need to go on 6MP or Azathioprine. These take time to work, and 2 plus weeks just to get the blood work to see if you CAN take them. Time is not your friend in a flare. Have them test you to try to rule out Crohn's, this will save you much grief. Get tested for Celiac, this too will save you time when deciding treatments. When you have this under control, take your medicines faithfully so as not to flare again. Oh, and by the way, don't stress out(I know, ha ha), the brain and gut speak to each other in a language we are just beginning to understand.
Happy reading, and good luck!
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal