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Veteran Member

Date Joined Apr 2009
Total Posts : 654
   Posted 4/5/2009 5:27 PM (GMT -6)   
Hi Everyone,
I'm new to the site.  I just had a few questions.  Anyone's input would be really great. So here it goes.
I got pregnant in 2007 with my third child.  Started having D afew times a day.  Then all of a sudden I couldn't hold it.  When I had to go I had to go.  Said something to OB,  She told me to stay away from dairy maybe that was causing it.  She also said I was pregnant not much a GI could do right now.  So,  I had my child in June and and slowly the D was getting worse.  I finally went to a GI two weeks ago.  Had a Colonoscopy on Tuesday.  He said I had severe UC(entire colon).  He put me on Dyciclomine(4 times a day) and Asacol 3 pills three times a day.  My only symtoms are D about eight to ten times a day and I have only had alittle blood mixed in with my stole since my colonoscopy(I mean a really little bit, sometimes none)  Never passed blood through stool before colonoscopy.  I also have no stomach pain.  Just an urgency to go to the bathroom.  I get crampy and then I go D and I'm fine.  I don't know nothing about UC and alot of people have blood and seem much worse.  I was wondering if anyone else had this happen.  Also,  I'm scared.  I'm scared the meds won't work.  That I will have to go on steroids(heard the side affects are terrible), or I will have to have surgery, or I will get cancer(they removed three polyps don't know results yet).  I have three kids and now I keep looking at them thinking am I going to be around to see them grow.  I also don't want to go on field trips because if I have to go to the bathroom we have a problem,  I don't want to take them places where there aren't bathrooms or I'm worried the whole time that I wil D in my pants(like coming back from a resturant).  No one in my family has this and I feel alone right now.  I don't know what to do.  Any advise or support would be greatly appreciated. Also, diet what would you recommend(trying to stay away from dairy right now).
Sorry for the long email.

Veteran Member

Date Joined Mar 2008
Total Posts : 1202
   Posted 4/5/2009 7:35 PM (GMT -6)   
Ahh, honey, we know your pain. Better yet, a whole bunch of us know it well. Welcome to the site. Start reading, go back to old posts about your condition. There is much to learn when you are newly diagnosed. Join the CCFA and lurk there too. I was at the convention in Chicago yesterday. Good stuff.
For what it is worth, a few tips: Stay on top of your doc. advice, treatment is different for each person, don't be afraid to talk about what you've read. I'd swear some of us know more that some GI's. Get to a good one, and fast. There are differing views about how aggressive treatment should be in the beginning. Asacol is just a start. Prednisone is a tough one, but it works for most in a flare-short term is the key there. The drug options for 5ASA's are many now, try a few before giving up. Consider rectal meds early-Rowasa or Cortafoam; different, but good, get the blood tests that you may need later, now. It will speed up the time if you need to go on 6MP or Azathioprine. These take time to work, and 2 plus weeks just to get the blood work to see if you CAN take them. Time is not your friend in a flare. Have them test you to try to rule out Crohn's, this will save you much grief. Get tested for Celiac, this too will save you time when deciding treatments. When you have this under control, take your medicines faithfully so as not to flare again. Oh, and by the way, don't stress out(I know, ha ha), the brain and gut speak to each other in a language we are just beginning to understand.
Happy reading, and good luck!
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal

Veteran Member

Date Joined Mar 2009
Total Posts : 1439
   Posted 4/5/2009 11:49 PM (GMT -6)   
Hmm, if you're having diarrhea, try a low residue diet-it's what pretty much every reliable doctor I've had has told me to do when I'm flaring. There are a couple of good lists of foods on the internet, including one on wikipedia. Basically it's a lot of low fiber stuff, which means less stuff in your colon that you'll need to pass so you'll be going less often. Some staples on it are rice, applesauce, well-cooked lean meats (like chicken and fish), bananas, and white bread/toast. Use canned or well cooked veggies and fruits, though some versions I've seen allow raw lettuces if tolerated. Also, sugary drinks usually worsen diarrhea. As you start feeling better you can reintroduce foods with fiber into your diet. Also, if you need to add calories adult nutrition drinks (boost, ensure) are a good option, and I like drinking juice smoothies (Naked brand are expensive but my favorite) when I'm having a flare-just check the labels as a few kinds have fiber!

Also, if it gives you any hope I've actually been flaring on and off for about two years without knowing what I had-the first time I was misdiagnosed with pseudomembranous colitis and treated with antibiotics, and I've had a couple of other flares that were diagnosed as gastroenteritis and healed spontaneously. This recent flare I was put on Asacol and pred and they've done wonders for me so far-I've gone about a month with no noticeable symptoms. The pred gave me some mood swings/ made me pee a lot/ made me eat everything in sight (one of my friends joked that it basically turned me into a pregnant woman) but it fixed my gut quick and it was worth it to feel human again.
21, female, diagnosed 3/6/2009
Mild ulcerative colitis from rectum to mid transverse colon
Currently in remission
Currently taking Asacol (3x/day) and Calcium/D supplements

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