Debilitating hip pain

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exit 4
Regular Member


Date Joined Apr 2009
Total Posts : 148
   Posted 4/6/2009 12:58 PM (GMT -6)   

Debilitating hip pain

Hello,

I have been diagnosed with UC 15 years ego, had all the usual tribulations with blood, etc. Taken prednisone for flare ups, currently in remission on Asacol maintenance doze. about 5 years ego started having hips pain, discomfort. MRI. X-rays show nothing. Therapy, chiropractors do not help. GI is useless – prednisone is the only thing he knows…Tried Celebrex – bad reaction – dizzy, chest pain. Few times per year hip pain nocks me out so bad, I am pretty much immobile for few days. I am thinking of cortisone shots. Anyone had them? Should I see arthritis doc?

Any advise is appreciated.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/6/2009 1:04 PM (GMT -6)   
You should see a rheumatoligist to have this evaluated. I haven't had hip issues, but have had cortisone shots for my knee which is trashed. I'll be having surgery soon, but the cortisone took me from barely able to walk to pain-free. The thing is, you want to be sure what is wrong, because if the joint is damaged, relieving the pain can lead to putting more stress on the joint and causing more damage.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 4/6/2009 1:09 PM (GMT -6)   
Hi,
I got some relief from hip/sciatic/back pain through a good massage therapists who knew how to do something called "myofascial release." It was recommended by my golf coach, who is a bodybuilding champion and helps pro golfers with rehab. It was a combination of many things the physical therapists did and chiropractic moves, too. I think it helped a lot and was very soothing besides.

I also have had three shots. One in February 2008, but I was already doing better so I don't know if it did anything. Then I irritated it again in October 2008, finally broke down and got two shots in February 2009 and am fine now. So right now I can say the shots worked for me.

I think they would have been able to tell on the MRI if you had arthritis. The specialist I worked with was an orthopedic surgeon, he ordered the MRI, found some slightly bulging disks but no arthritis, and referred me for the shots. Also gave me oxycodone, but was only willling to refill it once (and I used it very judiciously) since I was hesitating on the shots!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, tried to taper but now back up to 20-30 after several really bad days. Waiting for insurance decison on Humira...soon... 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 4/6/2009 1:24 PM (GMT -6)   
Cortisone would be great to get you up and going, but your body puts you down to keep you from really injurying an area worse so use caution. I would keep trying to figure out the reasoning for it acting up. Really can't tell much from the description. Everyone's opinion and treatment methods are different, even among doctors. A normal x-ray for one guy can be a bad x-ray for the next guy reading it.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD3+Ca/SuperDHA


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 4/6/2009 3:17 PM (GMT -6)   
Yeah, I should mention I got lots of mixed advice from everyone about whether to get the shots.
I finally decided I had suffered enough and it was worth a try, even my golf coach agreed.

Be sure you check the cost/co-pay so there are no surprises.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, tried to taper but now back up to 20-30 after several really bad days. Waiting for insurance decison on Humira...soon... 


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/7/2009 1:44 AM (GMT -6)   
Well it is a common side effect or reward for UCers. All of us get hip pain after the UC has been active for over 6 years. All my siblings - four of us are UCers and all of us have this hip pain. Besides this one gets blurred vision also. So take care and consult some good ortho and explain to him that you have been on steroids for UC.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 4/7/2009 2:45 AM (GMT -6)   
I've taken a few massage classes. It was great, we would give each other massages during the lab part of the classes. Our department head would lecture us all the time about the negative effects of steroids and cortisone shots. He would say that cortisone shoots provide some relief initially; however, they age the joints.

You should tell your massage therapist if you have taken steroids, especially if you have bone issues as a result. You should also tell your massage therapist about any medications you are taking, any ailments you may have, and any pain you may be experiencing. Your massage therapist will then make an assessment as to whether or not he/she can give you a massage and if so whether or not there are any areas, he/she should not massage.

A few contraindications include:

Osteoporosis - No massage or gentle massage depending on condition of bones - bones could break
Infection/inflammation - No massage - the infection/inflammation could spread
Coronary Artery Disease - No massage - a blood clot could get released into the blood stream
Acute injury - may need to stay away from area depending on extent of injury
Pacemaker - do not massage near any pacemakers!!
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

Post Edited (subdued) : 4/7/2009 2:51:16 AM (GMT-6)


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 4/7/2009 5:15 AM (GMT -6)   
PSA, why do you get hip pain after 6 years of UC?
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD3+Ca/SuperDHA


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/7/2009 5:37 AM (GMT -6)   
Well its a sixer. I am joking. The thing is once you are on steroids for long period, the side effects tend to show up on your bones and joints after a couple of years. The main areas affected are your knee and hip joints and ofcourse fertility. All my siblings have hip joint pain. It is not only related to steroid but also an outcome of UC. Another major thing which starts showing is severe boils on your back. That is the signal that "man now its' time to take a decision - either go for surgery or try some drastic method to cure it". My boil did not cure for over 8 months even after my surgeries and use of copper sulphate.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/7/2009 5:40 AM (GMT -6)   
At times I feel I ought to have known about this forum a couple of years back. I think 70 per cent of my problems and agonies which I have undergone or undergoing may not have been there, as the support of members on this forum is remarkable. You tend to get so much information, which otherwise no doctor would share with you. I may have been in a better position to treat my UC if I had been here earlier. Well better late then never.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


exit 4
Regular Member


Date Joined Apr 2009
Total Posts : 148
   Posted 4/7/2009 7:42 AM (GMT -6)   

Little more info - I have not taken prednisone for more then 10 days at a time and it was at least a year since I took it last time. My hip pain episodes so severe that about a year ego I had to call 911. Emergency room just pumped me full of pain killers and sent me home! After that I went for Xray and MRI – nothing showed. The irony of the situation is that my pain only lasts few days and by the time I get to see a doc/specialist my pain is pretty much gone. Takes about a week to feel almost no pain. It’s very frustrating...


Male, 45; UC 15 years, Lexapro helped with stress and UC.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 4/7/2009 7:47 AM (GMT -6)   
Sadly it does not take a long term course of prednisone to do bone damage. Since you have used the word debilitating I assume this is severe pain. You really should get an appt. with a rhuematologist.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 4/7/2009 1:20 PM (GMT -6)   
Crohnie4now said...
Hmm, I always thought weight bearing exercise were a good thing for the joints..


Weight-bearing exercise is good for the bones (except for injuries of course). I use weights at the gym, figure skate, and take Kathak, a kind of Classical Indian dance (we spend most of the time stomping in class). These kinds of sports are great for the bones.

Of course, you will need to modify your exercise if you have brittle bones. There is always swimming... I'm not too keen on swimming though. So it's understandable why I refuse to take Prednisone. I love sports, but not all sports.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


Delarge
Regular Member


Date Joined Mar 2007
Total Posts : 157
   Posted 4/7/2009 2:23 PM (GMT -6)   
If a DEXA scan has been performed and osteoporosis of the hip has been eliminated as a possibility, the pain you're experiencing could very well be an extra-intestinal manifestation of IBD. If this is indeed the case, switching from mesalamine to sulfasalazine should be considered. I'd recommend consulting a rheumatologist.

exit 4
Regular Member


Date Joined Apr 2009
Total Posts : 148
   Posted 4/7/2009 8:56 PM (GMT -6)   
Thank you all. I will make app to see rheumatoligist and go from there.
Male, 45; UC 15 years, Lexapro helped with stress and UC.

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