Oh, sorry to hear that. I know what you mean when you say you feel like you are in a downward spiral. I was so darn sick last year, the pain from the proctitis radiated down into my legs and into my vaginal area. I went to my GYN doctor and she said there was so much inflamation that she couldn't do a PAP smear and I had to go back the following month. Thank God all was clear in that area.
When flaring and on prednisone, my eyes sometimes blur. At that time I do get them checked for glaucoma and such. So far, so good. I'll pray that your condition improves. By the way, Jessie is the name of my granddaughter!
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!! Hope I don't jinx myself. Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks. Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.