New Topic Post Reply Printable Version
26 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

tooler14
Regular Member


Date Joined Jan 2004
Total Posts : 59
   Posted 4/6/2009 3:35 PM (GMT -6)   
I was hoping to get some advice. I've been on 6mp on and off for a few years. I seem to always go off of it during the summer because I don't like how my skin reacts to the sun when I"m on it.... Well it's starting again, my nose if covered with red dots and the skin that was exposed to the sun it SO itchy. I'm tempted to stop taking it but then I know I get my system all messed up for several months.
 
Does anyone have any ideas or hints on how to counteract these effects. I wore sunscreen on my face, not even sure if it helped.
 
Thanks :)

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 4/6/2009 4:36 PM (GMT -6)   
     I find I burn more easily.  I love the sun but take several meds which state to avoid long exposure to the sun...but do I listen?  NO...lol.  I am 62 yrs old and love a tan.  Bikini days are over, but still enjoy sun bathing.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 4/6/2009 4:44 PM (GMT -6)   

Hey there,

I don't usually post on this forum as I have Crohn's but look on here anyway sometimes and your post caught my eye as last year I had a severe phototoxic reaction to the sun (I am on methotrexate) even with high strength sunscreen and I was prescribed Plaquenil (hydroxychloroquine) to take during the spring/summer months to prevent another reaction, even though I now avoid the sun it is impossible to avoid it completely, I went to Greece about a month after the reaction and on Plaquenil (very, very afraid I might add!) and although stayed in the shade still had to face sunlight to walk to the shop etc and didn't react.

From what I can gather its very effective in preventing sun/skin reactions as when I saw a skin specialist a few months later he wanted light testing done but said I had to have the Plaquenil well clear out of my system as otherwise the testing wouldn't show anything which helped reassure me that it works well! So just thought that may be something you might find worth looking into, nearly a year on and I still have pigment colour damage from the phototoxic reaction and it was horrific at the time, sunsensivity really isn't something to take lightly! Hope that may help.


 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/6/2009 5:49 PM (GMT -6)   
It's recommended that you avoid sun exposure while on either 6-MP or Imuran, largely because the combination of those drugs and sun greatly increases the risk of developing skin cancer.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 4/6/2009 7:22 PM (GMT -6)   
     Really Judy?  Wow, I thought it was just because you are more sensitive to the rays.  I am olive skinned and never had to worry about exposure to the sun before but now I better watch myself.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


B00e00n00
Regular Member


Date Joined Mar 2009
Total Posts : 55
   Posted 4/6/2009 7:29 PM (GMT -6)   
What does prolonged Sun exposure mean? I swear if I get on this kind of drug, pyschlogically I won't be able to take it and would rather have surgery.
UC since 2006

2009 UC Pancolitis though Primiarly Left Sided, Active Moderate

Current Meds: Lialda 4 tab a day
Predinsone (40 mg a day) since 3/30 Not doing anything, hopefully something soon!

Current Supplements:
Vit. B-12, Vit. D3, VSl#3 Probiotics, Calcium citrate

What does remission feel like, I don't remember!

Nip UC in the bud with diet before it nips you in the bud (or butt) for good!


buckeyeinchicago
Regular Member


Date Joined Feb 2009
Total Posts : 40
   Posted 4/6/2009 8:02 PM (GMT -6)   
I never used to have issues with the sun until I went on the 6mp. I was in Mexico this past winter break and had a HORRIBLE sun reaction after constantly applying 50 SPF. I would go into these rages of itching that wouldn't calm down unless ice was immediately applied. It was such a bad reaction that my skin was numb to the ice and I couldn't feel the cold. I was planning on talking to a doctor before the summer started to see what I could do to help myself this summer. I went to Vegas this past week and laid out for only a few hours wearing SPF 30 and got a sun rash on my arms and neck. I don't know how to avoid being in the sun all together all summer but any ideas that anyone has to help would be greatly appreciated. I can't go off the 6mp but really love the sun...
Diagnosed when 13 and am now 25, female. Currently taking 100mg of 6mp, started at 60 mg of prednisone and now down to 30 mg, and 12 pills of asacol a day. I tried cortifoam for this flare and it didn't work. Previously I've tried all types of rectal meds but nothing ever helped. In the past I've tried rowasa, enemas, pentasa, colazal, sulfasalizine. I was in a four year remission until the end of January.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 4/7/2009 6:32 AM (GMT -6)   
     I only use Factor 8 sunscreen oil.  After my skin tans, I go to just the oil with no screen.  Last year while on a cruise, I sunbathed most of the afternoon away.  This was in the Caribbean.  I tanned alright but developed little red bumps all over my arms and legs.  They didn't itch or burn though.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 4/7/2009 7:22 AM (GMT -6)   
It doesn't matter if you are olive skinned or fair and freckled, skin cancer crosses all pigmentation. My mother, and olive skinned woman has terrible facial skin cancer and has become disfigured with the several surgeries she has endured. The last time she had surgery for skin cancer I went with her to the surgeon's office. Yikes, everyone in there was terribly disfigured on the face due to skin cancer. It scared the bejeezus out of me. Please people, do not sit in the sun! Either stay out of the sun between 10am-4pm or use sunscreen and wear a hat!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/7/2009 9:02 AM (GMT -6)   
I have a horrible time in the sun now that I'm on 6mp. I also get a rash on my face, mainly across the bridge of my nose and across my cheeks (docs thought it was a lupus rash) and if the temps are high and I'm in the sun for too long I get cold sweats and shaky. If at all possible, do not stay in the sun longer then necessary and if you do have to be in the sun be sure to go into the shade as often as possible.

Now when I have to do yard work, I do it in the mornings when the sun is the least hottest - stop midday and continue in the evening. If I am on the boat, I put the cover up so I'm not in the sun for very long. If you have to, use an umbrella when you're in the sun.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


jessiesmom
Regular Member


Date Joined Jun 2008
Total Posts : 36
   Posted 4/7/2009 10:29 AM (GMT -6)   
 have a horrible time in the sun now that I'm on 6mp. I also get a rash on my face, mainly across the bridge of my nose and across my cheeks (docs thought it was a lupus rash) and if the temps are high and I'm in the sun for too long I get cold sweats and shaky. If at all possible, do not stay in the sun longer then necessary and if you do have to be in the sun be sure to go into the shade as often as possible
 
My question is not about exposure to the sun but about these cold sweats and shakeyness.  I have just increased my 6MP to 150 mg/day from 100.  Any time I exert myself at all physically I get weak, shaky, short of breath and begin sweating.  I have to sit and recover each time.  Is this the 6MP?  Is this a normal reaction or does it mean the drug is lowering my blood counts?  Do I report this to my GI?  It's getting scary. confused
Ulcerative Colitis (Pancolitis) diagnosed November 2007.  Hospitalized with C.Diff. January 2008 following a series of antibiotics taken for bronchitis. 
 
Prednisone 5 mg.  Tapered and discontinued March 2008.  Colazal 3 capsules three times a day.  Acidophilis 100 mg. 2 tabs/day,  Potassium Chloride 40 mg. daily, Ferrous Gluconate 400 mg. daily, Cholestyramine Granules I packet daily,  Cozaar 1 tab daily, Lasix 40 mg. daily, Vytorin 1 tab daily, 6Mercaptopurine 50 mg. daily
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/7/2009 11:08 AM (GMT -6)   
It never hurts to bring it up to your doc. That happens to me too sometimes. Not short of breath but my muscles feel week and I get shaky. I just sit down, rest and drink a lot of water; I start to feel better after that.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Delarge
Regular Member


Date Joined Mar 2007
Total Posts : 157
   Posted 4/7/2009 2:29 PM (GMT -6)   
As Judilyn mentioned, immunosuppressive drugs (including 6-MP/azathioprine) increase the likelihood of developing cancer in general, most notably of the skin. Direct exposure to sunlight should be minimized if possible.

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 4/7/2009 4:56 PM (GMT -6)   
great...arizona summer on the way and i've been on 6-mp for almost 3 months now...
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently tapering prednisone (15 mgs) and I've been on 6_MP for 2 months.
In the middle of a bad flare now for 6 months...lost almost 30 lbs.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/7/2009 4:58 PM (GMT -6)   
Sun block, hat with a brim. I assume you try to stay in mid-day when the sun is hot enough to broil your brain anyway.

(My father lived in Phoenix after he retired.)
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 4/8/2009 6:47 AM (GMT -6)   
     My daughter, also olive skinned, goes to the tanning salon three times a week.  Can't tell her to stop, she says it is safe.  She isn't on any meds though.
     This particular post has scared the beJesus out of me.  You mean I can't get a tan now?  BOO HISSS... mad
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


blondeceo
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 4/9/2009 10:08 AM (GMT -6)   
The tanning bed isn't safe either.  Do some research on it.  Notice that they make you sign a waiver when you start going, that's so you can't sue them later.
 
I'm on Asacol and Remicade, and I have to put sunblock on whenever I go outside. 
diagnosed with UC in 2008
current meds: asacol 3 400mg 3 X a day, remicade every 4 weeks, prenatal vitamin, probiotic, gelatin pills


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 4/9/2009 10:53 AM (GMT -6)   
     Jessiesmom....150 mgm of 6MP!!!  Wow, that sure is a high dose.  I didn't like the reaction I got from taking 75 mgm of 6MP and decreased it on my own to 50 mgm one day and 25 the next.  My white count is still 2.9.  Little improved from the 2.4 it was when I was on 75 mgm.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


jessiesmom
Regular Member


Date Joined Jun 2008
Total Posts : 36
   Posted 4/9/2009 11:02 AM (GMT -6)   
Christine1946 said...
     Jessiesmom....150 mgm of 6MP!!!  Wow, that sure is a high dose.  I didn't like the reaction I got from taking 75 mgm of 6MP and decreased it on my own to 50 mgm one day and 25 the next.  My white count is still 2.9.  Little improved from the 2.4 it was when I was on 75 mgm.

Iam also on 30 mg/day of Prednisone.  My GI is trying to get me off the Prednisone by increasing the 6MP.  I am having bloodwork done next week.  I just increased tha 6MP two weeks ago and now I really feel like my blood count is way down.  BTW - I had my annual eye exam a couple of weeks ago and my interocular pressure has increased.  That usually means Glaucoma but my opthamalagist says it is probaboy secondary to steroid usage.  Another reason to get off Prednisone.  I feel like I am in a downward spiral.
Ulcerative Colitis (Pancolitis) diagnosed November 2007.  Hospitalized with C.Diff. January 2008 following a series of antibiotics taken for bronchitis. 
 
Prednisone 5 mg.  Tapered and discontinued March 2008.  Colazal 3 capsules three times a day.  Acidophilis 100 mg. 2 tabs/day,  Potassium Chloride 40 mg. daily, Ferrous Gluconate 400 mg. daily, Cholestyramine Granules I packet daily,  Cozaar 1 tab daily, Lasix 40 mg. daily, Vytorin 1 tab daily, 6Mercaptopurine 50 mg. daily
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 4/9/2009 11:09 AM (GMT -6)   
     Oh, sorry to hear that.  I know what you mean when you say you feel like you are in a downward spiral.  I was so darn sick last year, the pain from the proctitis radiated down into my legs and into my vaginal area.  I went to my GYN doctor and she said there was so much inflamation that she couldn't do a PAP smear and I had to go back the following month.  Thank God all was clear in that area.
     When flaring and on prednisone, my eyes sometimes blur.  At that time I do get them checked for glaucoma and such.  So far, so good.  I'll pray that  your condition improves.  By the way, Jessie is the name of my granddaughter!
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


tmom
New Member


Date Joined Jun 2009
Total Posts : 11
   Posted 6/11/2009 9:30 PM (GMT -6)   
my son's doctor never mentioned the sensitivity to the sun. of course on the day it was prescribed it was snowing. didn't know this at all. thanks all for sharing.

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 6/12/2009 3:40 AM (GMT -6)   
Yer thanks, very interesting topic! My IBD nurse never mentioned staying out of the sun when she was going through the side effects of 6mp but sounds like its definitely worthwhile to be careful. However I've just looked on the side effects on the info leaflet that came with the tablets and it says "...side effects occurring commonly...certain types of cancer...especially on areas of skin exposed to the sun" Thats pretty scary considering its under the 'occurring commonly' section!!

22 year old female, from the UK. Diagnosed with Ulcerative Proctitis Jan '08. Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect! Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
  
Currently taking daily: 
20mg Prednisolone tablets, 100mg Azathioprine (started taking 11th May),1g Acetarsol suppository every other night, 1g Mesalazine granules x 2 
Motilium (anti sickness), 1.5mg Zopiclone (taken when needed for sleeping), 10mg Citalopram (anti-anxiety/depression), Probiotic Multivitamins 
                             
                             


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/12/2009 6:12 AM (GMT -6)   
I, personally, don't find skin cancer is as scary as the very rare side effect Lymphoma from 6mp. 9 times out of 10, the skin cancer is caught early and removed. My father and my MIL both had skin cancer and had it removed. My MIL has a scar about the size of a quarter on her back but my father - well let's just say he was that 1 out of 10 that let it go for too long and now he has a scar about 1 1/2 FEET down his shoulder and into his back. But yes, skin cancer from 6mp is a very real possibility. My doc didn't tell me this info either when I started it.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-had 2 series of 3, OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 6/12/2009 9:50 AM (GMT -6)   
Hmmm..but for those of us that are taking 6mp what are the signs of skin cancer that we should be looking out for?! Just to be on the safe side.  

22 year old female, from the UK. Diagnosed with Ulcerative Proctitis Jan '08. Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect! Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
  
Currently taking daily: 
20mg Prednisolone tablets, 100mg Azathioprine (started taking 11th May),1g Acetarsol suppository every other night, 1g Mesalazine granules x 2 
Motilium (anti sickness), 1.5mg Zopiclone (taken when needed for sleeping), 10mg Citalopram (anti-anxiety/depression), Probiotic Multivitamins 
                             
                             


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/13/2009 7:06 AM (GMT -6)   
Moles that are turning different shades, shape and size. Skin that is rough or raised. Basically anything that looks out of the ordinary.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-had 2 series of 3, OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 

New Topic Post Reply Printable Version
26 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Wednesday, June 20, 2018 11:38 AM (GMT -6)
There are a total of 2,973,661 posts in 326,118 threads.
View Active Threads


Who's Online
This forum has 161103 registered members. Please welcome our newest member, jrobinson1289.
465 Guest(s), 13 Registered Member(s) are currently online.  Details
fishface, SlappyHappy, spouse21, GuitarGERD, Girlie, Sara14, Sherrine, subduedjoy, RobLee, Old Mike, garyi, ShinytopPC, MacroMan