Honestly.. I don't want to be on steroids anymore. I HATE them. I've been on 40mg for two months... they're not helping. I am at 200 freaking pounds and I broke down in the office yesterday because I feel like a beast. I have acne that I've never had, hair growing above my lip, my hair is falling out ..just tons of it... my body isnt my body. I'm freakin tired of not wanting to look at myself in the mirror.
Remicade allows me to get help immediately... not wait three months for Imuran to POSSIBLY kick in...and by possibly I mean who knows if I could have a reaction to it.
I've told my Dr. I want to get pregnant....but she said I could always just get off the meds.... plus my husband and I both agreed that I need to get healthy before we try again anyways. It's more important.... if I had a baby now...and couldn't take care of it cuz I was sick... what kind of mother would I be? not the kind I'd want to be.
In my opinion steroids suppress the immune system anyways.. I just don't care at this point... I want to get better. Remicade gets me better. Now I have to get another expensive colonoscopy.. She thinks either it's spread or it could have some IBS with it, but I'm pretty darn sure that I'll still have UC...if it was moderate left sided before...it probably still is... who knows. I don't, but we'll find out.
God listen to me.. I'm so frustrated. Yet another thing... STEROID MOOD SWINGS.
Kara, 22F Married.Latest-Went to ER cuz I couldn't eat for 5 days and was having severe flare up after passing two kidney stones after a week of the flu. (long month)
GI tried to taper me off of pred fairly fast in hopes to keep me on Lialda and at a lower dosage of pred. to try mesalamine enemas again. Starting the Imuran as soon as labworks done... longer pred time....yippee *rolls eyes*
Medications:Prednisone 40mg Again! (groan)Lialda 4 a day until Imuran
I am so sick of this disease!