Anyone ever hospitalized twice for same flare?

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Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 4/7/2009 10:55 AM (GMT -6)   
I was in the hospital for 2 days and it gave me a quick start to feeling better, but day after day since then I've been feeling worse.
It was over a week ago and yesterday and today I feel exactly as bad as the days before I was hospitalized. I'm going more and more, so weak, so tired,
prob. getting dehydrated and I'm running fevers again. I see my GI on Thursday. I"m already on 40mg of pred, I don't know what is next.
Diagnosed with Ulcerative Proctitis at 24 years old 1995/ Ulcerative Colitis in 1998.
In remission from 2005 - 3/2009.

Hospitalized for flare 3/2009.

Current Meds: Apriso 4/day, Prednisone 40mg per day, Rowasa Enemas 2/day, Culturelle


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 4/7/2009 3:04 PM (GMT -6)   
Yep, turns out the doctor doing the rounds on the ward at the time got it all wrong, didn't give me enough medication and discharged me too early. So I ended up back in a few weeks later!

22 year old female, from the UK.
 
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect!
Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
  
Currently taking daily: 
10mg Prednisolone tablets (tapering from 40mg)
5mg Prednisolone suppository x 1 (Alternating each day with 1g Acetarsol suppository)
1g Mesalazine granules x 2
 
7.5mg Zopiclone (taken every other night for sleeping)
10mg Citalopram (anti-anxiety/depression)
Vitamins A,C,D 
                             
                             


Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 4/7/2009 5:47 PM (GMT -6)   
Due to frequency of BMs you can become very dehydrated, anemic, low on potassium and electrolytes and if you aren't responsive to oral medication sometimes hospitalization is necessary to provide IV hydration and medications such as stronger steriods and sometimes antibiotics. It is not uncommon for UC sufferers to be hospitalized a few times in their lives as a result of their illness.
Diagnosed with Ulcerative Proctitis at 24 years old 1995/ Ulcerative Colitis in 1998.
In remission from 2005 - 3/2009.

Hospitalized for flare 3/2009.

Current Meds: Apriso 4/day, Prednisone 40mg per day, Rowasa Enemas 2/day, Culturelle


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 4/8/2009 7:57 AM (GMT -6)   
     First time I was hospitalized back in 98 my symptoms before going to the ER....diarrhea for a month, bleeding a LOT from the rectum, lethargy, pains in lower abdomen and finally fever of 102.  I had lost about 20 lbs in a month to boot.  I saw my family doctor and he thought it might be UC and recommeded a GI doctor, but the GI couldn't see me for three months...gosh, you could die by then!  So, I woke my husband in the middle of the night and said...."this is it, I am dying, you must take me to the hospital."  There they kept me for the next eight days, fed through an IV and performed a myriad of tests.  I was sure I had cancer because my paternal grandmother passed away from rectal cancer.  A colonoscopy confirmed the UC.  I was discharged and that was that. 
     I suffer a flare every year or two.  Last year was my worse flare ever.  I was hospitalized for ten days and was still as sick as a dog when released.  I didn't go back into the hospital but came close to it.  The flare lasted seven months.
     Things will get better.  Did you doctor suggest 6MP?  I believe that has helped me.  Not too happy about the long term effects it may cause but hey...I am almost 63 yrs old.  More concerned about the quality of life.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 4/8/2009 8:17 AM (GMT -6)   
I was hospitalized twice, but not for the same flare. The first time was because I was soooooo dehydrated, and lost a lot of blood, and weighed 97 pounds. They took me off all foods and just on a liquid diet and Ensure like drink 24/7 for about a week. During that time they put me on Remicade. The next week I went on foods. Was about to be released when I got C-Diff, and staff infection. Kept me in there almost another week. I was in there for a total of 25 days. I also had a blood transfusion during that time too.

The second time I was in the hospital was because of a major reaction to Remicade. I was in there for almost a day, and couldn't wait to get out of there. I had another blood transfusion because of the reaction to the Remicade I immediately had to go to the bathroom and poop a TON of blood.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 4/8/2009 9:04 AM (GMT -6)   

I was hospitalized last year in June and then in September.  In September, gall stones added to my problems, but it was still the same flare (that lasted basically all of last year).  When I was released the first time, I wasn't any better.  I basically just got rehydrated, but I still went home and continued to have diarrhea and blood. 

Hospital stays are good for getting rehydrated and getting some rest, but they don't seem good for much else (at least not for me).


DX:  Pancolitis as of 9/08 (Proctitis as of 1/08) and IBS
Status:  Remission
What Worked:  Spinach/Sunflower Seed Diet & IBS Diet (www.helpforibs.com)
What Didn't Work:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol, Iron, Zoloft, Acidophilus.
 
 
 
 
 


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 4/8/2009 9:18 AM (GMT -6)   
I agree with you Kiss520. When I was in the hospital, they kept giving me drugs that I knew I didn't need, but then I became reliant on them. When I got home from the hospital, my husband worked on getting me away from those drugs. When I was in the hospital the second time they gave me a prescription for acid reflux or something like that. I never picked up that drug. Don't need it. Don't have any problems in that area.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 4/9/2009 4:10 PM (GMT -6)   
     Kiss...rest?  In the hospital?  What hospital were you in?  If ever I need to be hospitalized again, I am going to that one.  I slept probably fifteen hours during a ten day hospital stay.  The noise was unbearable.  They had placed some old man suffering from senility across the hall from me.  He had his days and nights mixed up.  All he did was holle
r for the nurse, all night long.  They left his door open and said they couldn't close it because of some law that states a patient's door cannot be closed unless the patient requests it.  OOOOk.  He probably didn't know whether his door was open or closed.  Once he was discharged a few days later...I thought..great, now some peace and quiet.  No such luck.  The first two roommates I had were wonderful, but, unfortunately for me, one was discharged after my first day in there and the second was only in for two days.  The third and fourth roommates were from H***!  Both should have been on the psycho ward.  They eventually put roommate #3 on the psycho ward but roommate #4 was another senile patient who yelled all night.  Needless to say, by that time, with my BP 210/110, I decided to raise some H*** myself.  That is when they moved me to a private room.  My BP returned to normal, my UC came somewhat under control and I was able to get some much needed Zzzzzz's.
     Sweetie...they gave me Nexium while I was on prednisone to avoid my developing an upper gastric ulcer which does happen sometimes.  When I went off the prednisone, I stopped the Nexium.
    
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 4/9/2009 7:00 PM (GMT -6)   
Christine - Are you sure you were in a hospital and not the fourth circle of hell? ;-) That sounds AWFUL!!! Both my hospital stays were restful - painkillers and sleeping aids took care of that. That's not to say they didn't have their share of pitfalls, like getting jerked around by doctors, waiting all day to speak to someone, basically being starved by the staff, and having the most evil person in the world for a roommate. And did I mention the 90-year-old woman doing a colonoscopy prep in a mobile toilet 3 feet from my bed?

I would never say they were enjoyable visits, but at least my body could rest rather than chasing after my two-year-old.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08) and IBS
Status:  Remission
What Worked:  Spinach/Sunflower Seed Diet & IBS Diet (www.helpforibs.com)
What Didn't Work:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol, Iron, Zoloft, Acidophilus.
 
 
 
 
 


Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 4/9/2009 7:14 PM (GMT -6)   
I felt like the hospital "jump started" my way to feeling better but I came out too soon. The steriods by IV made a huge difference, the potassium, the rehydration, but I have been deteriorating day by day since I left the hospital. I did have a private room (all the rooms in our town hospital are private) and I actually did get tons of rest. I'm just so darn tired of being so sick with this flare.
Diagnosed with Ulcerative Proctitis at 24 years old 1995/ Ulcerative Colitis in 1998.
In remission from 2005 - 3/2009.

Hospitalized for flare 3/2009.

Current Meds: Apriso 4/day, Prednisone 40mg per day, Rowasa Enemas 2/day, Culturelle


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 4/9/2009 7:18 PM (GMT -6)   
I hate to always be bringing this up, but have you tried the spinach/sunflower diet that's been discussed on this site? It was the only thing that worked for me. Since you're sounding pretty desperate, I thought I'd mention it.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08) and IBS
Status:  Remission
What Worked:  Spinach/Sunflower Seed Diet & IBS Diet (www.helpforibs.com)
What Didn't Work:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol, Iron, Zoloft, Acidophilus.
 
 
 
 
 


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 4/9/2009 8:56 PM (GMT -6)   
Christine... your story sounds worse than mine. While I was in the hospital, there was a guy like the one you encountered, but this guy was down the hall from my by the nurses station. I'd hear him hollar at night, but I was able to have my door shut so it wasn't that bad. There was another woman who sang all the time, but it was the same song. That got a bit annoying. I had roommates but they never stayed, and I ended up having my own room thanks to the C-diff concern. So, my experience was an ok experience. Yours sounded worse though. I'm sorry.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade

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